Local Support Groups, Disability/Diag

Description: Mutual support groups whose members are people who have specific disabilities, illnesses or other health conditions, their families and friends. The groups meet in-person, by telephone or via the Internet; and provide an opportunity for participants to share information, resources, practical tips for daily living and encouragement about issues related to the disability or health problem. (AIRS PN-8100.3000)

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Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

RI

Statewide

Address: RI
Phone: 401-369-0045
Email: rhode-island@chadd.net
Services Provided: The Rhode Island Chapter of CHADD (Children and Adults with Attention Deficit Hyperactivity Disorder) offers monthly programs for Adults with ADHD, Parents of Children with ADHD and professionals in the ADHD community.

CHADD of RI Support Group meets monthly the first Wednesday of the month
7:00-9:00
Bradley Hospital
The Pine Room
1011 Veterans Memorial Parkway
East Providence , RI 02915
Original Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 8/3/2018
Address: 43 Jefferson Boulevard
RI
Phone: 401-941-3322
Eligibility: Statewide all ages
Services Provided: Pediatric Low Vision Services and functional vision assessments

Summer Youth Programs that include mobility training [http://www.in-sight.org/index.php/our-solutions/youth-programs]

Mobility Training

In Sight Radio [http://www.in-sight.org/index.php/our-solutions/insight-radio]

Support groups throughout Rhode Island [http://www.in-sight.org/index.php/our-solutions/support-groups]
Provider Profiles: Location
Insight
43 Jefferson Boulevard
Warwick, RI 02888


Our mission is to inspire confidence, build skills and empower people who are blind and visually impaired to become fully integrated, equally valued members of society by providing diverse services that produce opportunities and choices.

Pediatric Low Vision Services
Children age birth to three years old are generally referred to this service through their early intervention case coordinator. Children over the age of three are generally referred to the program through their caseworker at Rhode Island State Services for the Blind.

INSIGHT Radio is a unique radio reading service that provides the daily reading of local and national newspapers, magazines, books, and other printed materials of interest to our listeners. We currently broadcast twenty-four hours per day, seven days per week.

INSIGHT Radio broadcasts on a closed signal. In order to access the service you must have a free receiver from INSIGHT.
Original Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 10/26/2017
Organization Name: The Autism Project
Address: 1516 Atwood Avenue
RI 02919
Phone: 401-785-2666
Fax: 401-785-2272
Eligibility: All are welcome.
Wheelchair Accessible: Yes
Services Provided: Professional Training
Program, classroom and individual consultation
Parent Education Series and Support
Grandparent Support Groups
Social Skill Groups
Summer Camp
Advocacy
Provider Profiles: The Autism Project is a ‘Hub of Hope’ that connects people—with a spectrum of needs—to the available resources and education that support independent and purposeful lives.
Autism Project
1516 Atwood AVenue
Johnston, RI 02919
Original Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 7/13/2018

Cranston, RI

Address: Peter Pastore Youth Center
155 Gansett Avenue
Cranston, RI 02910
Services Provided: - Weekly classes are provided in the area of chair yoga, tai chi, reiki. exercise to music, and strength strengthening

- The Center provides haircuts once a month by a local hair stylist.

- We offer arts and crafts and painting classes several times a month;

- Once a month we have a “For MS Members Only” segment at which time we discuss a particular subject pertaining to day to day dealings with MS symptoms.

- We have frequent visits by drug companies that sponsor neurologists as well as MS Ambassadors who share their stories.

- Now that we have access to our own space we are able to offer night time classes for the newly diagnosed, as well as for men and women care partners.

- Additionally, we are able to network with the Masonic Grand Lodge of R.I. who help us to acquire much needed assistive devices ( ex. chair lifts, scooters, wheelchairs, transfer benches ) for our members. We also work with OSCIL (Ocean State Center for Independent Living) who provide upgrades to our members’ homes in the area of accessibility.
Provider Profiles: The MS Dream Center welcomes people with Multiple Sclerosis, their care partners, family and friends. There is no fee to join. The Center is open Tuesdays, Wednesdays and Thursdays from 10 am-2 pm.
Original Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/14/2018

East Providence, RI

Organization Name: Bradley Hospital-A Lifespan Partner
Address: 1011 Veterans Memorial Parkway
East Providence, RI 02915
Phone: 401-432-1000
Services Provided: Our major programs are the Children's and Adolescent Program, Center for Autism and Developmental Disabilities, Outpatient Program and the Bradley School.

Children's Services [https://www.lifespan.org/centers-services/childrens-services-bradley-hospital]

Adolescent Services [https://www.lifespan.org/centers-services/adolescent-services-bradley-hospital]

The Center for Autism and Developmental Disabilities [https://www.lifespan.org/centers-services/center-autism-and-developmental-disabilities-cadd]

Outpatient Services [https://www.lifespan.org/centers-services/outpatient-behavioral-health-services-children-teens-and-families-bradley-0]

Inpatient Programs [https://www.lifespan.org/centers-services/child-adolescent-inpatient-program-bradley-hospital]

The Intensive Program for Obsessive-Compulsive Disorder [https://www.lifespan.org/centers-services/intensive-program-obsessive-compulsive-disorder]

Resources for Parents [https://www.bradleyhospital.org/resources-parents]
Provider Profiles: Bradley Hospital offers a wide range of programs, services and research for psychological, developmental and behavioral conditions in children and adolescents. Bradley Hospital is dedicated to patient- and family-centered mental health care. A Lifespan partner and a teaching hospital for The Warren Alpert Medical School of Brown University, Bradley Hospital has established itself as the national center for training and research in child and adolescent psychiatry.

Bradley School. Lifespan School Solutions, a subsidiary of Bradley Hospital, is the parent corporation of the Bradley Schools, a private, school-funded, educational program for children and adolescents whose psychiatric and behavioral needs cannot be met in a public school setting.
Original Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 10/31/2018

Providence, RI

Address: Rhode Island College
600 Mount Pleasant Avenue
Providence, RI 02908
Phone: 401-456-8072
TDD: 800-745-5555
Fax: 401-456-8150
Languages Spoken: Spanish via RI Relay 711 or (866) 355-9241
Eligibility: Statewide
Services Provided: Services Provided:
• Technical assistance and training in the areas of Early Intervention, infant mental health and trauma-based care practices, inclusive practices in schools, Positive Behavioral Interventions and Supports and Multi-Tiered Systems of Supports in schools, learners with low incidence disabilities (vision, hearing, deaf-blindness), transition from high school, and community-based employment strategies for youth and adults.
• Services include:
o Instruction and mobility services to children who are blind or visually impaired.
o Educational Advocates for students with disabilities who are in state care.
o Benefits counseling and assistance for Social Security beneficiaries.
o Family support and navigation of services.
o Support group for self-directed support users (DDD)
o Plan writing for self-directed support users (DDD).
o Support for parents with intellectual disabilities.
o Support to students in post-secondary education.
Provider Profiles: Paul V. Sherlock Center on Disabilities, founded at Rhode Island College in 1993, is a University Center for Excellence in Developmental Disabilities (UCEDD). UCEDDs are evidence driven and designed to advance policies, practices, and research that improve the health, education, social, and economic well-being of people with disabilities, their families, and their communities. There are 67 UCEDD programs in the United States. This national network is administered through the United States Department of Health and Human Services Administration on Developmental Disabilities.
The Sherlock Center partners with state and national agencies, schools, institutions of higher education and community providers to implement its core functions: preservice preparation, services (including technical assistance, community education, and direct services), research, and information dissemination. As of 2016, the Sherlock Center is a LEND (Leadership Education in Neurodevelopmental and Related Disabilities) Program.
Areas of Emphasis:
Early Childhood and Education
Inclusion and Community Membership
Low Incidence Disabilities
Self-Determination
Transition, Employment and Adult Life
Workforce and Professional Development
Original Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 5/5/2017

Warwick, RI

Organization Name: Epilepsy Foundation of New England
Address: 250 B Centerville Road
Warwick, RI 02886
Phone: 401-921-4466
Fax: 401-921-3366
Services Provided: Resource Center and call center
Workshops
Family Programs and Support
Summer Camp Matty is a therapeutic horseback riding program designed for children with epilepsy.
Young Men and Young Women gatherings
Provider Profiles: The Matty Fund ® is now a partner of The Epilepsy Foundation New England and known as The Matty Project. They will continue to provide family resources, raise epilepsy awareness, promote patient safety and improve the quality of life for children and families living with epilepsy.
[https://www.epilepsynewengland.org/]
Original Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 3/20/2017

MA

Watertown, MA

51 Water Street
Suite 206
Watertown, MA 02472
Phone: 617-393-3824
Organization Name: Asperger's/Autism Network (AANE)
Address: 51 Water Street
Suite 206
Watertown, MA 02472
Phone: 617-393-3824
Eligibility: Support Group for parents of adults/older children with Asperger's Disorder
Services Provided: Numerous Programs for children, teens and adults
[https://www.aane.org/resources/family-and-friends/]

Rhode Island Support Group for Parents of Adults meets 2nd Monday of the month September -June
6:30-8:00 p.m.
Bradley Hospital/Pine Room
1011 Veteran's Memorial Parkway
East Providence, RI 02915
Contact to join Tobyaane@gmail.com
Provider Profiles: AANE works with individuals, families, and professionals to help people with Asperger Syndrome or similar autism spectrum profiles build meaningful, connected lives. We do this by providing information, education, community, support, and advocacy--all in an atmosphere of validation and respect.
Original Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 8/3/2018