Local Support Groups, Disability/Diag

Mutual support groups whose members are people who have specific disabilities, illnesses or other health conditions, their families and friends. The groups meet in-person, by telephone or via the Internet; and provide an opportunity for participants to share information, resources, practical tips for daily living and encouragement about issues related to the disability or health problem. (AIRS PN-8100.3000)

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Disclaimer...
Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

RI

Statewide

Address: RI
Phone: 401-369-0045
Email: rhode-island@chadd.net
Services Provided: The Rhode Island Chapter of CHADD (Children and Adults with Attention Deficit Hyperactivity Disorder) offers monthly programs for Adults with ADHD, Parents of Children with ADHD and professionals in the ADHD community.

CHADD of RI Support Group meets monthly the first Wednesday of the month
7:00-9:00
Bradley Hospital
The Pine Room
1011 Veterans Memorial Parkway
East Providence , RI 02915
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/30/2019
43 Jefferson Boulevard
Warwick, RI 02886
Phone: 401-941-3322
Address: 43 Jefferson Boulevard
Warwick, RI 02886
Phone: 401-941-3322
Eligibility: Statewide all ages
Services Provided: Pediatric Low Vision Services and functional vision assessments

Summer Youth Programs that include mobility training [http://www.in-sight.org/index.php/our-solutions/youth-programs]

Mobility Training

In Sight Radio [http://www.in-sight.org/index.php/our-solutions/insight-radio]

Support groups throughout Rhode Island [http://www.in-sight.org/index.php/our-solutions/support-groups]
Provider Profiles: Location
Insight
43 Jefferson Boulevard
Warwick, RI 02888


Our mission is to inspire confidence, build skills and empower people who are blind and visually impaired to become fully integrated, equally valued members of society by providing diverse services that produce opportunities and choices.

Pediatric Low Vision Services
Children age birth to three years old are generally referred to this service through their early intervention case coordinator. Children over the age of three are generally referred to the program through their caseworker at Rhode Island State Services for the Blind.

INSIGHT Radio is a unique radio reading service that provides the daily reading of local and national newspapers, magazines, books, and other printed materials of interest to our listeners. We currently broadcast twenty-four hours per day, seven days per week.

INSIGHT Radio broadcasts on a closed signal. In order to access the service you must have a free receiver from INSIGHT.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/31/2019
Organization Name: The Autism Project
(Show others in Organization)
Address: 1516 Atwood Avenue
Johnston, RI 02919
Phone: 401-785-2666
Eligibility: All are welcome.
Wheelchair Accessible: Yes
Services Provided: Professional Training
Program, classroom and individual consultation
Parent Education Series and Support
Grandparent Support Groups
Social Skill Groups
Summer Camp
Advocacy
Provider Profiles: The Autism Project is a ‘Hub of Hope’ that connects people—with a spectrum of needs—to the available resources and education that support independent and purposeful lives.
Autism Project
1516 Atwood AVenue
Johnston, RI 02919
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/30/2019

Cranston, RI

Address: Peter Pastore Youth Center
155 Gansett Avenue
Cranston, RI 02910
Phone: 401-383-8878
Email: info@msdreamcenter.org
Eligibility: The MS Dream Center welcomes people with Multiple Sclerosis, their care partners, family and friends. There is no fee to join. The Center is open Tuesdays, Wednesdays and Thursdays from 9:30 a.m.-2:00 p.m.
Services Provided: Weekly classes are provided in the area of chair yoga, tai chi, reiki, exercise to music, and strength strengthening.

Painting and Art enrichment classes

Hairstylist comes to center once a month to provide haircuts for a nominal fee.

Support groups
Provider Profiles: The MS Dream Center goal is to bring awareness to the disease and reach out to those living with it, empowering them and offering important respite opportunities for care partners.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 6/7/2019

East Providence, RI

Organization Name: Bradley Hospital-A Lifespan Partner
(Show others in Organization)
Address: 1011 Veterans Memorial Parkway
East Providence, RI 02915
Phone: 401-432-1000
Services Provided: Our major programs are the Children's and Adolescent Program, Center for Autism and Developmental Disabilities, Outpatient Program and the Bradley School.

Children's Services [https://www.lifespan.org/centers-services/childrens-services-bradley-hospital]

Adolescent Services [https://www.lifespan.org/centers-services/adolescent-services-bradley-hospital]

The Center for Autism and Developmental Disabilities [https://www.lifespan.org/centers-services/center-autism-and-developmental-disabilities-cadd]

Outpatient Services [https://www.lifespan.org/centers-services/outpatient-behavioral-health-services-children-teens-and-families-bradley-0]

Inpatient Programs [https://www.lifespan.org/centers-services/child-adolescent-inpatient-program-bradley-hospital]

The Intensive Program for Obsessive-Compulsive Disorder [https://www.lifespan.org/centers-services/intensive-program-obsessive-compulsive-disorder]

Resources for Parents [https://www.bradleyhospital.org/resources-parents]
Provider Profiles: Bradley Hospital offers a wide range of programs, services and research for psychological, developmental and behavioral conditions in children and adolescents. Bradley Hospital is dedicated to patient- and family-centered mental health care. A Lifespan partner and a teaching hospital for The Warren Alpert Medical School of Brown University, Bradley Hospital has established itself as the national center for training and research in child and adolescent psychiatry.

Bradley School. Lifespan School Solutions, a subsidiary of Bradley Hospital, is the parent corporation of the Bradley Schools, a private, school-funded, educational program for children and adolescents whose psychiatric and behavioral needs cannot be met in a public school setting.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 10/31/2018

Providence, RI

Address: Rhode Island College
600 Mount Pleasant Avenue
Providence, RI 02908
Phone: 401-456-8072
TDD: 800-745-5555
Languages Spoken: Spanish via RI Relay 711 or (866) 355-9241
Eligibility: Statewide
Services Provided: Services Provided:
• Technical assistance and training in the areas of Early Intervention, infant mental health and trauma-based care practices, inclusive practices in schools, Positive Behavioral Interventions and Supports and Multi-Tiered Systems of Supports in schools, learners with low incidence disabilities (vision, hearing, deaf-blindness), transition from high school, and community-based employment strategies for youth and adults.
• Services include:
o Instruction and mobility services to children who are blind or visually impaired.
o Educational Advocates for students with disabilities who are in state care.
o Benefits counseling and assistance for Social Security beneficiaries.
o Family support and navigation of services.
o Support group for self-directed support users (DDD)
o Plan writing for self-directed support users (DDD).
o Support for parents with intellectual disabilities.
o Support to students in post-secondary education.
Provider Profiles: Paul V. Sherlock Center on Disabilities, founded at Rhode Island College in 1993, is a University Center for Excellence in Developmental Disabilities (UCEDD). UCEDDs are evidence driven and designed to advance policies, practices, and research that improve the health, education, social, and economic well-being of people with disabilities, their families, and their communities. There are 67 UCEDD programs in the United States. This national network is administered through the United States Department of Health and Human Services Administration on Developmental Disabilities.
The Sherlock Center partners with state and national agencies, schools, institutions of higher education and community providers to implement its core functions: preservice preparation, services (including technical assistance, community education, and direct services), research, and information dissemination. As of 2016, the Sherlock Center is a LEND (Leadership Education in Neurodevelopmental and Related Disabilities) Program.
Areas of Emphasis:
Early Childhood and Education
Inclusion and Community Membership
Low Incidence Disabilities
Self-Determination
Transition, Employment and Adult Life
Workforce and Professional Development
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 10/21/2019

Wakefield, RI

Medical Office Building South County Hospital
70 Kenyan Avenue
Wakefield, RI 02879
Phone: 401-782-8020 x3366
Organization Name: South County Healthcare
(Show others in Organization)
Address: Medical Office Building South County Hospital
70 Kenyan Avenue
Wakefield, RI 02879
Phone: 401-782-8020 x3366
Services Provided: Pediatric Diabetes Support Group: Our Pediatric Diabetes Support Group meets the last Tuesday of the month at the Cardiopulmonary Suite in our Medical Office Building, 70 Kenyon Ave., Wakefield. The group meets from 6:30 p.m. to 7:45 p.m. and is facilitated by certified diabetes educators. There is no fee and no registration is required. To learn more, call 401 782-8020, ext. 3366.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/14/2018

MA

Lowell, MA

Organization Name: Epilepsy Foundation of New England
(Show others in Organization)
Address: 650 Suffolk Street
450
Lowell, MA 01854
Phone: 617-506-6041
Email: info@epilepsynewengland.org
Services Provided: Resource Center
Education and Training
Family Programs and Support
Peer Support Groups
Summer Camp
Youth Leadership Network
The Matty Project [https://epilepsynewengland.org/programs/the-matty-project]
Provider Profiles: Epilepsy Foundation New England is a 501 c 3 nonprofit organization whose mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. Epilepsy Foundation New England is an independent affiliate of Epilepsy Foundation of America; we serve the approximately 100,000 people in Maine, Massachusetts, New Hampshire, and Rhode Island affected by epilepsy and the people who care for them. Our vision statement is Help for Today, Hope for Tomorrow.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 4/19/2019

Watertown, MA

51 Water Street
Suite 206
Watertown, MA 02472
Phone: 617-393-3824
Organization Name: Asperger's/Autism Network (AANE)
(Show others in Organization)
Address: 51 Water Street
Suite 206
Watertown, MA 02472
Phone: 617-393-3824
Eligibility: Support Group for parents of adults/older children with Asperger's Disorder
Services Provided: Numerous Programs for children, teens and adults
[https://www.aane.org/resources/family-and-friends/]

Rhode Island Support Group for Parents of Adults meets 2nd Monday of the month September -June
6:30-8:00 p.m.
Bradley Hospital/Pine Room
1011 Veteran's Memorial Parkway
East Providence, RI 02915
Contact to join Tobyaane@gmail.com
Provider Profiles: AANE works with individuals, families, and professionals to help people with Asperger Syndrome or similar autism spectrum profiles build meaningful, connected lives. We do this by providing information, education, community, support, and advocacy--all in an atmosphere of validation and respect.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 8/3/2018

Nationwide

Address: 950 Pennsylvania Ave NW
Washington, DC 20210
Phone: 800-514-0301
TDD: 800-514-0383
Toll Free Phone: 800-514-0301
Services Provided: Provides Information and Referral literature/materials

ADA Implementation Assistance
Accessibility Related Standards/Legislation Compliance
Assistive Technology Equipment
Group Advocacy
Information and Referral
Issue Advocacy
Labor and Employment Law
Legislative Advocacy
Library Services
Protection and Advocacy for Individuals with Disabilities
Source: Nationwide Suggest Providers Queue
Last Updated: 1/9/2020
Address: PO Box 524
Crown Point, IN 46308
Phone: 219-789-9874
Toll Free Phone: 800-328-8476
Email: info@aspergersyndrome.org
Eligibility: Open to all.
Services Provided: An online resource for families, individuals, and medical professionals who deal with the challenges of Autism and Autism Spectrum Disorders.
Source: Nationwide Suggest Providers Queue
Last Updated: 4/18/2019
Organization Name: 5p- (five p minus) Society
(Show others in Organization)
Address: 6229 Eckleson Street
Lakewood, CA 90713
Phone: 888-970-0777
Toll Free Phone: 888-970-0777
Eligibility: Parents and health care providers of children with Cri Du Chat syndrome.
Services Provided: Provides information, communication, and support groups to families having a child with 5P- Syndrome and to spread awareness and education to the families and their service providers. This syndrome is a chromosomal deletion disorder that results in intellectual and developmental issues in children.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
4601 Presidents Drive Ste 300
Lanham, MD 20706
Phone: 301-306-7070
Organization Name: CHADD
(Show others in Organization)
Address: 4601 Presidents Drive Ste 300
Lanham, MD 20706
Phone: 301-306-7070
Email: Affiliate_Services@chadd.org
Eligibility: Open to the public, children and adults with attention-deficit/hyperactivity disorder, ADHD.
Services Provided: Provides an online clearinghouse for the latest evidence-based information and resources on ADHD. The National Resource Center on ADHD is a program of CHADD, Children and Adults with Attention-Deficit/Hyperactivity Disorder. Find an affiliate using the website locator.
Provider Profiles: Internet based resource
Source: Nationwide Suggest Providers Queue
Last Updated: 11/27/2019
Address: 300 Rosewood Drive Suite 105
Danvers, MA 01923
Phone: 978-463-5843
Eligibility: Those affected by scleroderma and their families.
Services Provided: Raise funds and awareness for support, education and research.
Provides educational and emotional support, stimulates and support research designed to identify the cause and cure for scleroderma, and improve methods of treatment; and enhances the public's awareness of this disease.
Chapters and Support Groups may be located in Resources.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/9/2020
Address: PO Box 1102
Olney, MD 20830
Toll Free Phone: 877-588-7904
Email: thyca@thyca.org
Eligibility: Thyroid cancer patients, survivors, caregivers and medical professionals.
Services Provided: Provides current information about thyroid cancer and support services available to people at any stage of testing, treatment, or lifelong monitoring for thyroid cancer, as well as their caregivers. Use website to find a support group in your area.
Source: Nationwide Suggest Providers Queue
Last Updated: 12/2/2019