Local Support Groups, Disability/Diag

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Mutual support groups whose members are people who have specific disabilities, illnesses or other health conditions, their families and friends. The groups meet in-person, by telephone or via the Internet; and provide an opportunity for participants to share information, resources, practical tips for daily living and encouragement about issues related to the disability or health problem. (AIRS PN-8100.3000)

120-34 Queens Blvd #320
Kew Gardens, NY 11415
Phone: 718-803-3782
Service Categories:
Address:
120-34 Queens Blvd #320
Kew Gardens, NY 11415
Phone: 718-803-3782
Toll Free Phone: 800-962-9629
Fax: 718-803-0414
Email: askus@unitedspinal.org
Eligibility: Membership is free and open to all individuals who are living with a spinal cord injury or disease, their family members, friends, and healthcare providers.
Services Provided:

United Spinal Association is dedicated to enhancing the quality of life of all people living with spinal cord injuries and disorders (SCI/D), including veterans, and providing support and information to loved ones, care providers and professionals. Offers options to request assistance, connect with a mentor, connect with a chapter, advocacy, and product and service information.

Spinal Cord Resource Center: Submit questions on any aspect of Spinal Cord Injury/Disease or get information and resources that may help you resolve a situation including local support.

Disability Products & Services Guide: Search the United Spinal Association Disability Products & Services Directory to discover providers and organizations that specialize in optimizing the health, independence and quality of life of people with a spinal cord injury or disease.

  • Health/Disability Related Support Groups
  • Information and Referral
  • Legislative Advocacy
  • Self Advocacy Support
Source: Nationwide Suggest Providers Queue
Last Updated: 10/13/2020
1011 Veterans Memorial Parkway
East Providence, RI 02915
Phone: 401-432-1000
Service Categories:
Organization Name: Bradley Hospital-A Lifespan Partner
(Show others in Organization)
Address:
1011 Veterans Memorial Parkway
East Providence, RI 02915
Phone: 401-432-1000
Services Provided:

Our major programs are the Children's and Adolescent Program, Center for Autism and Developmental Disabilities, Outpatient Program and the Bradley School.

Children's and Adolescent outpatient services. A multidisciplinary staff of board-certified child and adolescent psychiatrists, psychologists, nurses and qualified trainees provides treatment using a variety of modalities including individual, group and family therapy, and psychopharmacologic management.

https://www.lifespan.org/centers-services/bradley-outpatient-services


Children's and Adolescent inpatient services for children ages 2 to 18 years who suffer from serious disorders and are in need of short-term stabilization assessment and treatment.

https://www.lifespan.org/centers-services/child-adolescent-inpatient-program-bradley-hospital 


The Center for Autism and Developmental Disabilities CADD offers unique and highly specialized clinical services for children and adolescents between the ages of 2 and 18 who show signs of serious emotional and behavioral problems in addition to a developmental disability, such as autism, Asperger's or intellectual disability.  
https://www.lifespan.org/centers-services/center-autism-and-developmental-disabilities-cadd

The Intensive Program for Obsessive-Compulsive Disorder

https://www.lifespan.org/centers-services/intensive-program-obsessive-compulsive-disorder

Communication, Occupational and Sensory Treatment (COAST) Clinic offers comprehensive evaluation and treatment for children and adolescents who have difficulty participating in age-appropriate activities due to physical, neurological, cognitive, behavioral, communication or sensory processing challenges.

https://www.lifespan.org/centers-services/coast-clinic

Resources for Parents [https://www.bradleyhospital.org/resources-parents]

Parent's Guide to Mental Health https://www.bradleyhospital.org/sites/default/files/lifespan-files/documents/hospital-sites/bradley/bradl-servi-guide-55152-mentalhealthguide-web.pdf 

Provider Profiles:

Bradley Hospital offers a wide range of programs, services and research for psychological, developmental and behavioral conditions in children and adolescents. Bradley Hospital is dedicated to patient- and family-centered mental health care. A Lifespan partner and a teaching hospital for The Warren Alpert Medical School of Brown University, Bradley Hospital has established itself as the national center for training and research in child and adolescent psychiatry.

Bradley School. Lifespan School Solutions, a subsidiary of Bradley Hospital, is the parent corporation of the Bradley Schools, a private, school-funded, educational program for children and adolescents whose psychiatric and behavioral needs cannot be met in a public school setting and are in a separate listing.

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 6/29/2020
Rhode Island College
600 Mount Pleasant Avenue
Providence, RI 02908
Phone: 401-456-8072
Service Categories:
Address:
Rhode Island College
600 Mount Pleasant Avenue
Providence, RI 02908
Phone: 401-456-8072
TDD: 800-745-5555
Fax: 401-456-8150
Languages Spoken: Spanish via RI Relay 711 or (866) 355-9241
Eligibility: Statewide
Services Provided:

Services Provided:
• Technical assistance and training in the areas of Early Intervention, infant mental health and trauma-based care practices, inclusive practices in schools, Positive Behavioral Interventions and Supports and Multi-Tiered Systems of Supports in schools, learners with low incidence disabilities (vision, hearing, deaf-blindness) dual sensory, transition from high school, and community-based employment strategies for youth and adults.
• Services include:
o Instruction and mobility services to children who are blind or visually impaired.
o Educational Advocates for students with disabilities who are in state care.
o Benefits counseling and assistance for Social Security beneficiaries.
o Family support and navigation of services.
o Support group for self-directed support users (DDD)
o Plan writing for self-directed support users (DDD).
o Support for parents with intellectual disabilities.
o Support to students in post-secondary education.

Provider Profiles:

Paul V. Sherlock Center on Disabilities, founded at Rhode Island College in 1993, is a University Center for Excellence in Developmental Disabilities (UCEDD). UCEDDs are evidence driven and designed to advance policies, practices, and research that improve the health, education, social, and economic well-being of people with disabilities, their families, and their communities. There are 67 UCEDD programs in the United States. This national network is administered through the United States Department of Health and Human Services Administration on Developmental Disabilities.
The Sherlock Center partners with state and national agencies, schools, institutions of higher education and community providers to implement its core functions: preservice preparation, services (including technical assistance, community education, and direct services), research, and information dissemination. As of 2016, the Sherlock Center is a LEND (Leadership Education in Neurodevelopmental and Related Disabilities) Program.
Areas of Emphasis:
Early Childhood and Education
Inclusion and Community Membership
Low Incidence Disabilities
Self-Determination
Transition, Employment and Adult Life
Workforce and Professional Development

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/10/2020
Peter Pastore Youth Center
155 Gansett Avenue
Cranston, RI 02910
Phone: 401-383-8878
Service Categories:
Address:
Peter Pastore Youth Center
155 Gansett Avenue
Cranston, RI 02910
Phone: 401-383-8878
Email: info@msdreamcenter.org
Eligibility: The MS Dream Center welcomes people with Multiple Sclerosis, their care partners, family and friends. There is no fee to join.
Services Provided:

Weekly classes are provided in the area of chair yoga, tai chi, reiki, exercise to music, and strength strengthening. Many of these classes are offered virtually due to Covid Pandemic. https://www.msdreamcenter.org/programs

Painting and Art enrichment classes

Hairstylist comes to center once a month to provide haircuts for a nominal fee.

Support groups

Provider Profiles:

The MS Dream Center goal is to bring awareness to the disease and reach out to those living with it, empowering them and offering important respite opportunities for care partners.

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 11/12/2020
4601 Presidents Drive Ste 300
Lanham, MD 20706
Phone: 301-306-7070
Service Categories:
Organization Name: CHADD
(Show others in Organization)
Address:
4601 Presidents Drive Ste 300
Lanham, MD 20706
Phone: 301-306-7070
Fax: 301-306-7090
Email: Affiliate_Services@chadd.org
Eligibility: Open to the public, children and adults with attention-deficit/hyperactivity disorder, ADHD.
Services Provided: Provides an online clearinghouse for the latest evidence-based information and resources on ADHD. The National Resource Center on ADHD is a program of CHADD, Children and Adults with Attention-Deficit/Hyperactivity Disorder. Find an affiliate using the website locator.
Provider Profiles: Internet based resource
Source: Nationwide Suggest Providers Queue
Last Updated: 11/27/2019
51 Water Street
Suite 206
Watertown, MA 02472
Phone: 617-393-3824
Service Categories:
Organization Name: Asperger's/Autism Network (AANE)
(Show others in Organization)
Address:
51 Water Street
Suite 206
Watertown, MA 02472
Phone: 617-393-3824
Eligibility: Support Group for parents of adults/older children with Asperger's Disorder
Services Provided: Numerous Programs for children, teens and adults
[https://www.aane.org/resources/family-and-friends/]

Rhode Island Support Group for Parents of Adults meets 2nd Monday of the month September -June
6:30-8:00 p.m.
Bradley Hospital/Pine Room
1011 Veteran's Memorial Parkway
East Providence, RI 02915
Contact to join Tobyaane@gmail.com
Provider Profiles: AANE works with individuals, families, and professionals to help people with Asperger Syndrome or similar autism spectrum profiles build meaningful, connected lives. We do this by providing information, education, community, support, and advocacy--all in an atmosphere of validation and respect.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 8/3/2018
650 Suffolk Street
450
Lowell, MA 01854
Phone: 617-506-6041
Service Categories:
Organization Name: Epilepsy Foundation of New England
(Show others in Organization)
Address:
650 Suffolk Street
450
Lowell, MA 01854
Phone: 617-506-6041
Fax: 617-506-6047
Email: info@epilepsynewengland.org
Services Provided: Resource Center
Education and Training
Family Programs and Support
Peer Support Groups
Summer Camp
Youth Leadership Network
The Matty Project [https://epilepsynewengland.org/programs/the-matty-project]
Provider Profiles: Epilepsy Foundation New England is a 501 c 3 nonprofit organization whose mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. Epilepsy Foundation New England is an independent affiliate of Epilepsy Foundation of America; we serve the approximately 100,000 people in Maine, Massachusetts, New Hampshire, and Rhode Island affected by epilepsy and the people who care for them. Our vision statement is Help for Today, Hope for Tomorrow.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 4/19/2019
950 Pennsylvania Ave NW
Washington, DC 20210
Phone: 800-514-0301
Service Categories:
Address:
950 Pennsylvania Ave NW
Washington, DC 20210
Phone: 800-514-0301
TDD: 800-514-0383
Toll Free Phone: 800-514-0301
Fax: 202-307-1198
Services Provided: Provides Information and Referral literature/materials

ADA Implementation Assistance
Accessibility Related Standards/Legislation Compliance
Assistive Technology Equipment
Group Advocacy
Information and Referral
Issue Advocacy
Labor and Employment Law
Legislative Advocacy
Library Services
Protection and Advocacy for Individuals with Disabilities
Source: Nationwide Suggest Providers Queue
Last Updated: 1/9/2020
RI
Phone: 401-369-0045
Service Categories:
Address:
RI
Phone: 401-369-0045
Email: rhode-island@chadd.net
Services Provided: The Rhode Island Chapter of CHADD (Children and Adults with Attention Deficit Hyperactivity Disorder) offers monthly programs for Adults with ADHD, Parents of Children with ADHD and professionals in the ADHD community.

CHADD of RI Support Group meets monthly the first Wednesday of the month
7:00-9:00
Bradley Hospital
The Pine Room
1011 Veterans Memorial Parkway
East Providence , RI 02915
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/30/2019
1415 W. 22nd St., Tower Floor
Oak Brook, IL 60523
Phone: 3123375661
Service Categories:
Address:
1415 W. 22nd St., Tower Floor
Oak Brook, IL 60523
Phone: 3123375661
Toll Free Phone: 8662210302
Fax: 3127264446
Email: info@recoveryinternational.org
Eligibility: Contact for specific information.
Services Provided:

The mission of Recovery International is to use the cognitive-behavioral, peer-to-peer, self-help training system developed by Abraham Low, MD, to help individuals gain skills to lead more peaceful and productive lives.

See the website for local and online meetings and resources.

Source: Nationwide Suggest Providers Queue
Last Updated: 10/5/2020
InSight View on Map
43 Jefferson Boulevard
Warwick, RI 02886
Phone: 401-941-3322
Service Categories:
Address:
43 Jefferson Boulevard
Warwick, RI 02886
Phone: 401-941-3322
Eligibility: Statewide all ages
Services Provided: Pediatric Low Vision Services and functional vision assessments

Summer Youth Programs that include mobility training [http://www.in-sight.org/index.php/our-solutions/youth-programs]

Mobility Training

In Sight Radio [http://www.in-sight.org/index.php/our-solutions/insight-radio]

Support groups throughout Rhode Island [http://www.in-sight.org/index.php/our-solutions/support-groups]
Provider Profiles: Location
Insight
43 Jefferson Boulevard
Warwick, RI 02888


Our mission is to inspire confidence, build skills and empower people who are blind and visually impaired to become fully integrated, equally valued members of society by providing diverse services that produce opportunities and choices.

Pediatric Low Vision Services
Children age birth to three years old are generally referred to this service through their early intervention case coordinator. Children over the age of three are generally referred to the program through their caseworker at Rhode Island State Services for the Blind.

INSIGHT Radio is a unique radio reading service that provides the daily reading of local and national newspapers, magazines, books, and other printed materials of interest to our listeners. We currently broadcast twenty-four hours per day, seven days per week.

INSIGHT Radio broadcasts on a closed signal. In order to access the service you must have a free receiver from INSIGHT.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/31/2019
Medical Office Building South County Hospital
70 Kenyan Avenue
Wakefield, RI 02879
Phone: 401-782-8020 x3366
Service Categories:
Organization Name: South County Healthcare
(Show others in Organization)
Address:
Medical Office Building South County Hospital
70 Kenyan Avenue
Wakefield, RI 02879
Phone: 401-782-8020 x3366
Services Provided: Pediatric Diabetes Support Group: Our Pediatric Diabetes Support Group meets the last Tuesday of the month at the Cardiopulmonary Suite in our Medical Office Building, 70 Kenyon Ave., Wakefield. The group meets from 6:30 p.m. to 7:45 p.m. and is facilitated by certified diabetes educators. There is no fee and no registration is required. To learn more, call 401 782-8020, ext. 3366.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/14/2018
335R Prairie Avenue
Providence, RI 02905
Phone: 401-444-5685
Service Categories:
Organization Name: Hasbro Children's Hospital
(Show others in Organization)
Address:
335R Prairie Avenue
Providence, RI 02905
Phone: 401-444-5685
Services Provided: Urology, Orthopedic and Neurosurgical care for children with Spina Bifida
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/14/2018
6229 Eckleson Street
Lakewood, CA 90713
Phone: 888-970-0777
Service Categories:
Address:
6229 Eckleson Street
Lakewood, CA 90713
Phone: 888-970-0777
Toll Free Phone: 888-970-0777
Fax: 562-920-5240
Email: director@fivepminus.org
Eligibility: Parents and health care providers of children with Cri Du Chat syndrome.
Services Provided:

Provides a comprehensive resource for accurate, up-to-date information, support, and acceptance to maximize the quality of life for individuals with 5p- and their families. This syndrome is a chromosomal deletion disorder that results in intellectual and developmental issues in children. Also supports five Regional Family Get-Togethers per year.

  • Disease/Disability Information
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 11/6/2020
PO Box 1102
Olney, MD 20830
Service Categories:
Address:
PO Box 1102
Olney, MD 20830
Toll Free Phone: 877-588-7904
Fax: 630-604-6078
Email: thyca@thyca.org
Eligibility: Thyroid cancer patients, survivors, caregivers and medical professionals.
Services Provided: Provides current information about thyroid cancer and support services available to people at any stage of testing, treatment, or lifelong monitoring for thyroid cancer, as well as their caregivers. Receives ongoing input and review from numerous thyroid cancer specialists.

  • Specialized Information and Referral
  • Internet Information Resources
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 10/30/2020
300 Rosewood Drive Suite 105
Danvers, MA 01923
Phone: 978-463-5843
Service Categories:
Address:
300 Rosewood Drive Suite 105
Danvers, MA 01923
Phone: 978-463-5843
Fax: 978-463-5809
Eligibility: Those affected by scleroderma and their families.
Services Provided: Raise funds and awareness for support, education and research.
Provides educational and emotional support, stimulates and support research designed to identify the cause and cure for scleroderma, and improve methods of treatment; and enhances the public's awareness of this disease.
Chapters and Support Groups may be located in Resources.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/9/2020
1516 Atwood Avenue
Johnston, RI 02919
Phone: 401-785-2666
Service Categories:
Organization Name: The Autism Project
(Show others in Organization)
Address:
1516 Atwood Avenue
Johnston, RI 02919
Phone: 401-785-2666
Fax: 401-785-2272
Wheelchair Access: Yes
Eligibility: All are welcome.
Services Provided:
  • Professional Training Program, classroom and individual consultation
  • Parent Education Series and Support
  • Grandparent Support Groups
  • Social Skill Groups
  • Respite Information
  • Summer Camp WANNAGOAGAIN
  • Advocacy
Provider Profiles:

The Autism Project is a ‘Hub of Hope’ that connects people—with a spectrum of needs—to the available resources and education that support independent and purposeful lives.
Autism Project
1516 Atwood Avenue
Johnston, RI 02919

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 1/14/2021