Local Support Groups, Disability/Diag

Description: Mutual support groups whose members are people who have specific disabilities, illnesses or other health conditions, their families and friends. The groups meet in-person, by telephone or via the Internet; and provide an opportunity for participants to share information, resources, practical tips for daily living and encouragement about issues related to the disability or health problem. (AIRS PN-8100.3000)

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Disclaimer...
Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

RI

Statewide

Address: RI
Phone: 401-369-0045
Email: rhode-island@chadd.net
Services Provided: The Rhode Island Chapter of CHADD (Children and Adults with Attention Deficit Hyperactivity Disorder) offers monthly programs for Adults with ADHD, Parents of Children with ADHD and professionals in the ADHD community.

CHADD of RI Support Group meets monthly the first Wednesday of the month
7:00-9:00
Bradley Hospital
The Pine Room
1011 Veterans Memorial Parkway
East Providence , RI 02915
Original Source:
Last Updated: 8/3/2018
Address: 43 Jefferson Boulevard
RI
Phone: 401-941-3322
Eligibility: Statewide all ages
Services Provided: Pediatric Low Vision Services and functional vision assessments

Summer Youth Programs that include mobility training [http://www.in-sight.org/index.php/our-solutions/youth-programs]

Mobility Training

In Sight Radio [http://www.in-sight.org/index.php/our-solutions/insight-radio]

Support groups throughout Rhode Island [http://www.in-sight.org/index.php/our-solutions/support-groups]
Provider Profiles: Location
Insight
43 Jefferson Boulevard
Warwick, RI 02888


Our mission is to inspire confidence, build skills and empower people who are blind and visually impaired to become fully integrated, equally valued members of society by providing diverse services that produce opportunities and choices.

Pediatric Low Vision Services
Children age birth to three years old are generally referred to this service through their early intervention case coordinator. Children over the age of three are generally referred to the program through their caseworker at Rhode Island State Services for the Blind.

INSIGHT Radio is a unique radio reading service that provides the daily reading of local and national newspapers, magazines, books, and other printed materials of interest to our listeners. We currently broadcast twenty-four hours per day, seven days per week.

INSIGHT Radio broadcasts on a closed signal. In order to access the service you must have a free receiver from INSIGHT.
Original Source:
Last Updated: 10/26/2017
Organization Name: Rhode Island Parent Information Network
Address: 1210 Pontiac Avenue
RI 02920
Phone: 401-270-0101
Toll Free Phone: 855-747-3224
Eligibility: Statewide
Services Provided: Rhode Island Parent Information Network (RIPIN) provides:
• Live answer call center during business hours, return calls within two business days
• Care coordination and service linkage for families with children with special health care needs
• Support for families navigating the special education process for children with special needs through our Parent Training and Information Center [http://www.parentcenterhub.org/]
• Support for families navigating transition to adult services for young adults with special needs
• Support for families with children with special health care needs through our Cedar Family Center

• Connection to Family Voices and Family-to-Family information and peer support groups [http://www.familyvoices.org/]
• Help with access to health care and health insurance including Healthsource RI, Medicaid, Medicare, and more
• Services provided in English and Spanish
Provider Profiles: Our mission is to assist individuals, parents, families, and children to achieve their goals for health, education, and socio-economic well-being by providing information, training, education, support and advocacy for person/family centered care and system change.

RIPIN’s staff are Certified Community Health Workers who have navigated health care and/or education systems for themselves or a loved one allowing for the inclusion of a peer perspective to our support to families.
Location:
RI Parent Information Network
1210 Pontiac Avenue
Cranston, RI 02920
Original Source:
Last Updated: 4/4/2017
Organization Name: The Autism Project
Address: 1516 Atwood Avenue
RI 02919
Phone: 401-785-2666
Fax: 401-785-2272
Eligibility: All are welcome.
Wheelchair Accessible: Yes
Services Provided: Professional Training
Program, classroom and individual consultation
Parent Education Series and Support
Grandparent Support Groups
Social Skill Groups
Summer Camp
Advocacy
Provider Profiles: The Autism Project is a ‘Hub of Hope’ that connects people—with a spectrum of needs—to the available resources and education that support independent and purposeful lives.
Autism Project
1516 Atwood AVenue
Johnston, RI 02919
Original Source:
Last Updated: 7/13/2018

Cranston, RI

Address: Peter Pastore Youth Center
155 Gansett Avenue
Cranston, RI 02910
Services Provided: A variety of services provided by professionals in their fields including a nutrition, Reiki provider and hair styling.
Classes including exercise and art
Support Group
1st & 3rd Wednesdays from 10:30am -12pm. These meetings focus on information that will improve the quality of life for all those with MS. This is accomplished by bringing in speakers who can avail members of latest treatments, new assistive devices on the market, and present alternative therapies. Member-centered meetings allow for sharing of individual experiences
Provider Profiles: The MS Dream Center welcomes people with Multiple Sclerosis, their care partners, family and friends. There is no fee to join. The Center is open Tuesdays, Wednesdays and Thursdays from 10 am-2 pm.
Original Source:
Last Updated: 4/25/2016

East Providence, RI

Organization Name: Bradley Hospital-A Lifespan Partner
Address: 1011 Veterans Memorial Parkway
East Providence, RI 02915
Phone: 401-432-1000
Services Provided: Bradley Hospital offers a wide range of programs, services and research for psychological, developmental and behavioral conditions in children and adolescents.

Our major programs are the Children's and Adolescent Program, Center for Autism and Developmental Disabilities, Outpatient Program and the Bradley School.
Children's Services
Bradley Hospital offers a full range of treatment options--from inpatient treatment to residential care to outpatient services--for children from infants to age 12.
Adolescent Services
Bradley Hospital offers a full range of treatment options for adolescents. Our experienced staff assesses the clinical needs of each patient and develops an individualized treatment plan for each patient and family.
The Center for Autism and Developmental Disabilities
This program is one of the only in the country that has the expertise to evaluate and treat children who experience emotional or behavioral problems in addition to mental retardation or autism.
Outpatient Services
A multidisciplinary staff provides comprehensive mental health evaluation and treatment for children, adolescents and families from Rhode Island and southern New England.
Partial Hospital Programs
Our partial programs offer practical alternatives to hospitalization and traditional outpatient services for kids with serious emotional, behavioral or relationship issues.
Inpatient Programs
Our inpatient services are for children ages 2 to 18 years who suffer from serious disorders and are in need of short-term stabilization assessment and treatment.
The Intensive Program for Obsessive-Compulsive Disorder
The Intensive Program for Obsessive-Compulsive Disorder (OCD) provides treatment to children and adolescents, ages 5 to 18, who experience significant impairment in their daily lives due to OCD and obsessive-compulsive spectrum disorders.
Bradley School
Lifespan School Solutions, a subsidiary of Bradley Hospital, is the parent corporation of the Bradley Schools, a private, school-funded, educational program for children and adolescents whose psychiatric and behavioral needs cannot be met in a public school setting.
Parenting Resources
Bradley Hospital is dedicated to patient-and family-centered mental health care. Parents, siblings and other loved ones of our young patients are participants in their care, helping Bradley staff better understand each child’s needs and supporting them during treatment.Includes Parenting classes and Support groups.
Original Source:
Last Updated: 10/15/2018

Providence, RI

Organization Name: Hasbro Children's Hospital
Address: 335R Prairie Avenue
Providence, RI 02905
Phone: 401-444-5685
Services Provided: Urology, Orthopedic and Neurosurgical care for children with Spina Bifida
Original Source:
Last Updated: 12/15/2016
Address: Rhode Island College
600 Mount Pleasant Avenue
Providence, RI 02908
Phone: 401-456-8072
TDD: 800-745-5555
Fax: 401-456-8150
Languages Spoken: Spanish via RI Relay 711 or (866) 355-9241
Eligibility: Statewide
Services Provided: Services Provided:
• Technical assistance and training in the areas of Early Intervention, infant mental health and trauma-based care practices, inclusive practices in schools, Positive Behavioral Interventions and Supports and Multi-Tiered Systems of Supports in schools, learners with low incidence disabilities (vision, hearing, deaf-blindness), transition from high school, and community-based employment strategies for youth and adults.
• Services include:
o Instruction and mobility services to children who are blind or visually impaired.
o Educational Advocates for students with disabilities who are in state care.
o Benefits counseling and assistance for Social Security beneficiaries.
o Family support and navigation of services.
o Support group for self-directed support users (DDD)
o Plan writing for self-directed support users (DDD).
o Support for parents with intellectual disabilities.
o Support to students in post-secondary education.
Provider Profiles: Paul V. Sherlock Center on Disabilities, founded at Rhode Island College in 1993, is a University Center for Excellence in Developmental Disabilities (UCEDD). UCEDDs are evidence driven and designed to advance policies, practices, and research that improve the health, education, social, and economic well-being of people with disabilities, their families, and their communities. There are 67 UCEDD programs in the United States. This national network is administered through the United States Department of Health and Human Services Administration on Developmental Disabilities.
The Sherlock Center partners with state and national agencies, schools, institutions of higher education and community providers to implement its core functions: preservice preparation, services (including technical assistance, community education, and direct services), research, and information dissemination. As of 2016, the Sherlock Center is a LEND (Leadership Education in Neurodevelopmental and Related Disabilities) Program.
Areas of Emphasis:
Early Childhood and Education
Inclusion and Community Membership
Low Incidence Disabilities
Self-Determination
Transition, Employment and Adult Life
Workforce and Professional Development
Original Source:
Last Updated: 5/5/2017

Wakefield, RI

Medical Office Building South County Hospital
70 Kenyan Avenue
Wakefield, RI 02879
Phone: 401-782-8020 x3366
Organization Name: South County Healthcare
Address: Medical Office Building South County Hospital
70 Kenyan Avenue
Wakefield, RI 02879
Phone: 401-782-8020 x3366
Services Provided: Pediatric Diabetes Support Group: Our Pediatric Diabetes Support Group meets the last Tuesday of the month at the Cardiopulmonary Suite in our Medical Office Building, 70 Kenyon Ave., Wakefield. The group meets from 6:30 p.m. to 7:45 p.m. and is facilitated by certified diabetes educators. There is no fee and no registration is required. To learn more, call 401 782-8020, ext. 3366.
Original Source:
Last Updated: 7/1/2016

Warwick, RI

Organization Name: Epilepsy Foundation of New England
Address: 250 B Centerville Road
Warwick, RI 02886
Phone: 401-921-4466
Fax: 401-921-3366
Services Provided: Resource Center and call center
Workshops
Family Programs and Support
Summer Camp Matty is a therapeutic horseback riding program designed for children with epilepsy.
Young Men and Young Women gatherings
Provider Profiles: The Matty Fund ® is now a partner of The Epilepsy Foundation New England and known as The Matty Project. They will continue to provide family resources, raise epilepsy awareness, promote patient safety and improve the quality of life for children and families living with epilepsy.
[https://www.epilepsynewengland.org/]
Original Source:
Last Updated: 3/20/2017

MA

Watertown, MA

51 Water Street
Suite 206
Watertown, MA 02472
Phone: 617-393-3824
Organization Name: Asperger's/Autism Network (AANE)
Address: 51 Water Street
Suite 206
Watertown, MA 02472
Phone: 617-393-3824
Eligibility: Support Group for parents of adults/older children with Asperger's Disorder
Services Provided: Numerous Programs for children, teens and adults
[https://www.aane.org/resources/family-and-friends/]

Rhode Island Support Group for Parents of Adults meets 2nd Monday of the month September -June
6:30-8:00 p.m.
Bradley Hospital/Pine Room
1011 Veteran's Memorial Parkway
East Providence, RI 02915
Contact to join Tobyaane@gmail.com
Provider Profiles: AANE works with individuals, families, and professionals to help people with Asperger Syndrome or similar autism spectrum profiles build meaningful, connected lives. We do this by providing information, education, community, support, and advocacy--all in an atmosphere of validation and respect.
Original Source:
Last Updated: 8/3/2018