Specialized Information Resources

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Programs that maintain information about community resources that are appropriate for a specific target group or human services sector (for example, youth programs or addiction services) and which link individuals who are in need of specialized services with appropriate resources and/or which provide information about community agencies and organizations that offer specialized services. (AIRS TJ-3000.8000)

Service Legend
Local Service
Statewide Service: Provides online resources, telehealth, or service at a satellite office.
Nationwide Service: Provides online resources, telehealth or services at a regional/national headquarters location.
Statewide Provider
Rhode Island College
600 Mount Pleasant Avenue
Providence, RI 02908
Phone: 401-456-8072
Statewide Provider
Address:
Rhode Island College
600 Mount Pleasant Avenue
Providence, RI 02908
Phone: 401-456-8072
TDD: 800-745-5555
Fax: 401-456-8150
Languages Spoken: Spanish via RI Relay 711 or (866) 355-9241
Eligibility:

Statewide

Services Provided:

Services Provided:


• Technical assistance and training in the areas of Early Intervention Early Intervention, infant mental health and trauma-based care practices, inclusive practices in schools, Positive Behavioral Interventions and Supports and Multi-Tiered Systems of Supports in schools, learners with low incidence disabilities (vision, hearing, deaf-blindness) Dual Sensory, transition from high school , and community-based employment strategies for youth and adults.
• Services include:
o Instruction and mobility services to children who are blind or visually impaired.
o Educational Advocates for students with disabilities who are in state care.
o Benefits counseling and assistance for Social Security beneficiaries.
o Family support and navigation of services.
o Support group for self-directed support users (DDD)
o Plan writing for self-directed support users (DDD).
o Support for parents with intellectual disabilities.
o Support to students in post-secondary education.

Provider Profiles:

Paul V. Sherlock Center on Disabilities, founded at Rhode Island College in 1993, is a University Center for Excellence in Developmental Disabilities (UCEDD). UCEDDs are evidence driven and designed to advance policies, practices, and research that improve the health, education, social, and economic well-being of people with disabilities, their families, and their communities. There are 67 UCEDD programs in the United States. This national network is administered through the United States Department of Health and Human Services Administration on Developmental Disabilities.
The Sherlock Center partners with state and national agencies, schools, institutions of higher education and community providers to implement its core functions: preservice preparation, services (including technical assistance, community education, and direct services), research, and information dissemination. As of 2016, the Sherlock Center is a LEND (Leadership Education in Neurodevelopmental and Related Disabilities) Program.
Areas of Emphasis:
Early Childhood and Education
Inclusion and Community Membership
Low Incidence Disabilities
Self-Determination
Transition, Employment and Adult Life
Workforce and Professional Development

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 3/2/2022
Statewide Provider
600 Mt.Pleasant Avenue
Building #9
Providence, RI 02908
Statewide Provider
Address:
600 Mt.Pleasant Avenue
Building #9
Providence, RI 02908
Fax: 401-456-9550
Services Provided: A Comprehensive and current Guide to Assistance
[http://economicprogressri.org/index.php/guide-to-assistance-5/]
A Full listing of programs are available .
Targeted guides are available for specific populations including the following:
Programs for Adults without children living with them
Families with children under 18 living with them
Help for Youth age 18-26
Programs listed by income limits
Immigrant Eligibility for Government programs
Webinars
Provider Profiles: The Economic Progress Institute is a nonpartisan research and policy organization dedicated to improving the economic well-being of low- and modest-income Rhode Islanders. The Assistance Guides provide information about government assistance programs and community-based resources that help low- and modest-income Rhode Islanders meet basic needs. The Assistance Guides provides a general overview, eligibility rules and application information for each program in the areas of Income Supports, Food Assistance, Health Care, Child Care, Housing, Utilities and Tax Credits.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/31/2019
Statewide Provider
P.O. Box 20185
Cranston, RI 02950
Phone: 401-383-8878
Statewide Provider
Organization Name: MS Dream Center
(Show others in Organization)
Address:
P.O. Box 20185
Cranston, RI 02950
Phone: 401-383-8878
Email: info@access-ri.org
Services Provided: Accessible Rhode Island is a website that lists restaurants, museums, cinemas and cultural sites in Rhode Island that have been surveyed according to the guidelines for identifying accessibility outlined in the Americans with Disabilities Act of 1990.
Provider Profiles: The purpose of Accessible Rhode Island is to inform and inspire those persons living with disabilities, and to enlighten the rest of us to their needs. A project of the MS Dream Center.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/31/2019
650 Suffolk Street
450
Lowell, MA 01854
Phone: 617-506-6041
Organization Name: Epilepsy Foundation of New England
(Show others in Organization)
Address:
650 Suffolk Street
450
Lowell, MA 01854
Phone: 617-506-6041
Fax: 617-506-6047
Email: info@epilepsynewengland.org
Wheelchair Access: Yes
Services Provided:
  • Resource Center
  • Education and Training
  • Family Programs and Support
  • Peer Support Groups
  • Camps link
  • Camp Matty RI link
Provider Profiles:

Epilepsy Foundation New England is a 501 c 3 nonprofit organization whose mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. Epilepsy Foundation New England is an independent affiliate of Epilepsy Foundation of America; we serve the approximately 100,000 people in Maine, Massachusetts, New Hampshire, and Rhode Island affected by epilepsy and the people who care for them. Our vision statement is Help for Today, Hope for Tomorrow.

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 4/8/2022
Statewide Provider
50 Valley Street
RI
Phone: 401-444-0600
Statewide Provider
Organization Name: United Way of Rhode Island
(Show others in Organization)
Address:
50 Valley Street
RI
Phone: 401-444-0600
Toll Free Phone: 2-1-1
Languages Spoken: Spanish or Portuguese
Services Provided:

Call 2-1-1
2-1-1 Rhode Island is a repository of information about services available in Rhode Island including child care, basic needs, care for elderly and help for a gambling addiction.

Outreach van 2-1-1 will connect you and your community with the help and human services you need.

Individuals can ask for help by phone, searching the website or chatting.

Provider Profiles:

Get help with 2-1-1, your free and confidential resource for assistance with housing, food, childcare—and needs well beyond. Call or chat now to get connected right away. Our specialists are available for you 24-hours a day, 365 days a year.

Because 90,000 households in Rhode Island are struggling to meet basic needs, we help families with the essentials.

We believe not only in helping people through an immediate crisis, but also in funding programs that help people develop the tools they need to provide for themselves and their families. And we provide one place for everyone to call when they need help.

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 7/8/2021
Yawkey Building
6th Floor, Suite 6B
Boston, MA 02114
Phone: 617-726-0241
Organization Name: Massachusetts General Hospital
(Show others in Organization)
Address:
Yawkey Building
6th Floor, Suite 6B
Boston, MA 02114
Phone: 617-726-0241
Services Provided:

HERSCOT CENTER
It is important for all individuals with tuberous sclerosis complex (TSC) to be monitored throughout their life for possible medical complications from the disorder. The Herscot Center offers coordinated care by providing access to a wide range of physicians who specialize in treating TSC.
Features:
Nurse Care Coordination
Social worker
Specialists in neurology, radiology, psychiatry,ophthalmology, skin,heart,lung and eyes.

Provider Profiles:

The Carol and James Herscot Center for Children and Adults with Tuberous Sclerosis Complex at Massachusetts General Hospital delivers specialized care for individuals suffering from Tuberous Sclerosis Complex.
For more information about tuberous sclerosis complex, visit the Herscot Center's Living with TSC website. [https://www.massgeneral.org/tsc/]

Source: Rhode Island Suggest Provider Queue
Last Updated: 2/22/2022
RI MomsPRN View on Map
Statewide Provider
RI
Phone: 401-430-2800
Statewide Provider
Address:
RI
Phone: 401-430-2800
Eligibility: Healthcare providers can call the referral line Monday-Friday 8:00 am-4:00 pm
Services Provided: Referral line for providers that treat pregnant and postpartum women.
401-430-2800
Provider Profiles: Referral line for healthcare for pregnant and postpartum women, the Rhode Island Department of Health(RIDOH) and Center for Women's Behavioral Health at Women & Infants Hospital. (CWBH) have partnered to create the Rhode Island Psychiatry Resource Network (RI MomsPRN)

RI MomsPRN does not provide direct treatment or prescribe medications and is not a crisis line. The program promotes universal screening, referral, and treatment for depression, anxiety and substance use disorders.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/31/2019
Statewide Provider
1017 Waterman Avenue
East Providence, RI 02914
Phone: 401-228-3319
Statewide Provider
Organization Name: The Brain Injury Association of Rhode Island, Inc.
(Show others in Organization)
Address:
1017 Waterman Avenue
East Providence, RI 02914
Phone: 401-228-3319
Email: braininjurycenter@biari.org
Services Provided:
  • Education and Training link
  • Parents link
  • Concussion Information link
  • Getting Treatment link
  • Support Groups link

On-Site Resource Center

MONDAY – FRIDAY 9:00 – 4:30
EVENINGS BY APPOINTMENT
PHONE: (401) 228-3319

Provider Profiles:

The Brain Injury Association of Rhode Island is dedicated to increasing awareness of brain injury and its consequences, providing education to prevent brain injury, and enhancing the quality of life for those affected by brain injury.

The Brain Injury Association of Rhode Island, Inc. is a public, nonprofit corporation, tax exempt under Section 501(c)(3) of the Internal Revenue Code, and is a chartered affiliate of the Brain Injury Association of America.

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 4/22/2022
10 West Edge Drive, Suite 101
Durham, NH 03284
Phone: 603-862-4320
Organization Name: New England Regional
(Show others in Organization)
Address:
10 West Edge Drive, Suite 101
Durham, NH 03284
Phone: 603-862-4320
Email: info.negenetics@unh.edu
Services Provided:

NERGN helps to find a genetic clinic near you and provides resources regarding educational and health care transitions as they move from pediatric to adult services. 

Provider Profiles:

NERGN aims to improve health equity and health outcomes in individuals with genetic conditions, reduce morbidity and mortality caused by genetic conditions, and to improve the quality of coordinated and comprehensive genetic services to children and their families. 

Source: Rhode Island Suggest Provider Queue
Last Updated: 4/22/2022
Statewide Provider
120 North Main Street, Suite 202
Attleboro, MA 02703
Phone: 508-699-4035
Statewide Provider
Address:
120 North Main Street, Suite 202
Attleboro, MA 02703
Phone: 508-699-4035
Email: info@rarenewengland.org
Services Provided:

Rare Connections Support groups link

 Virtual Patient & Caregiver Support Groups to provide opportunities for adult patients and for caregivers to come together and share their experiences with others facing similar challenges. 

Provider Profiles:

Rare New England's mission is to bring together New England patients, families and providers touched by rare and complex disorders. We offer educational opportunities, create awareness of available resources,
and build foundations for support to improve patient quality of life. 

Source: Rhode Island Suggest Provider Queue
Last Updated: 5/2/2022
Nationwide Provider
Office of Public Inquiries, Windsor Park Building
6401 Security Blvd.
Baltimore, MD 21235
Nationwide Provider
Organization Name: Social Security Administration
(Show others in Organization)
Address:
Office of Public Inquiries, Windsor Park Building
6401 Security Blvd.
Baltimore, MD 21235
TDD: 800-325-0778
Toll Free Phone: 800-772-1213
Services Provided: This site provides information for people with disabilities who are SSI or SSDI recipients and want to work.
Provider Profiles: (SSI)
Source: MHP-Nationwide
Last Updated: 1/7/2020
Nationwide Provider
Washington, DC
Nationwide Provider
Address:
Washington, DC
Services Provided:

Govbenefits.com is a free confidential prescreening tool for state and federal government programs. Search for benefits you may be able to receive.

Provider Profiles:

Internet resource, State and Federal resources
Partners with USA.gov

Source: MHP-Nationwide
Last Updated: 6/22/2020
Nationwide Provider
30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010
Nationwide Provider
Address:
30 East 33rd Street
New York, NY 10016
Phone: 800-622-9010
Toll Free Phone: 855-653-2273
Fax: 212-689-9261
Email: info@kidney.org
Services Provided:

The National Kidney Foundation is the leading organization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease.

Services Include:

  • Information and resources about kidney disease
  • Patient Information Help Line
  • Peer mentor support program
  • Self management app for food choices
Source: MHP-Nationwide
Last Updated: 5/7/2022
Nationwide Provider
1433 N 1075 West, Suite 110
Farmilngton, UT 84025
Phone: 801-447-9360
Nationwide Provider
Address:
1433 N 1075 West, Suite 110
Farmilngton, UT 84025
Phone: 801-447-9360
Fax: 801-447-9364
Email: mail@dontshake.org
Wheelchair Access: Complete
Services Provided: A nonprofit 501(c)3 public charity with a mission to “Prevent shaken baby syndrome and promote the well-being of infants generally through the development and implementation of programs, policy and research; and to support and educate families, caregivers and professionals.”
Source: MHP-Nationwide
Last Updated: 1/7/2020
Nationwide Provider
302 Jefferson Street, Ste. 110
PO Box 17646
Raleigh, NC 27605
Phone: 919-715-4092
Nationwide Provider
Address:
302 Jefferson Street, Ste. 110
PO Box 17646
Raleigh, NC 27605
Phone: 919-715-4092
TDD: 919-715-4092
Fax: 919-715-4093
Eligibility: Parents of children who are deaf or hard of hearing
Services Provided: Information on communication options, placement, and educational programs for parents of children who are deaf or hard-of-hearing.
Source: MHP-Nationwide
Last Updated: 1/6/2020
Nationwide Provider
8630 Fenton Street, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
Nationwide Provider
Address:
8630 Fenton Street, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
TDD: 301-810-3182
Fax: 301-587-1791
Email: nad.info@nad.org
Eligibility:

deaf and hard of hearing

Services Provided:

Safeguards the civil rights of deaf and hard of hearing Americans. As a national federation of state associations, individual members, and organizational and corporate affiliates, the advocacy work includes accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications, and transportation. Website features advocacy information and resources.

Provider Profiles:

NAD Youth Leadership Camp (YLC) is a four-week intensive educational program for high school students. Camp Taloali, Stayton, Oregon.

Source: MHP-Nationwide
Last Updated: 2/24/2022
Nationwide Provider
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
Nationwide Provider
Organization Name: Gallaudet University
(Show others in Organization)
Address:
KDES PAS-6, 800 Florida Ave, NE
Washington, DC 20002-3695
Phone: 202-651-5051
TDD: 202-651-5052
Fax: 202-651-5054
Services Provided:

Responds to inquiries about a diverse range of topics related to deaf and hard-of-hearing children from infancy to age 21.

Source: MHP-Nationwide
Last Updated: 3/18/2021
Nationwide Provider
6001 Executive Boulevard, Room 6200, MSC 9663
Bethesda, MD 20892-9663
Phone: 866-615-6464
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
6001 Executive Boulevard, Room 6200, MSC 9663
Bethesda, MD 20892-9663
Phone: 866-615-6464
TDD: 301-443-8431
Toll Free Phone: 866-615-6464
Fax: 301-443-4279
Email: nimhinfo@nih.gov
Languages Spoken: Spanish
Services Provided:

Provides mental health information on the following topics: getting help, statistics, clinical trials, outreach, research, opportunities for funding, and labs at NIMH.

Source: MHP-Nationwide
Last Updated: 9/1/2021
The Arc View on Map
Nationwide Provider
1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Nationwide Provider
Address:
1825 K Street NW, Suite 1200
Washington, DC 20006
Phone: 301-565-3842
Toll Free Phone: 800-433-5255
Fax: 301-565-3843
Services Provided:

A national organization of and for people with developmental disabilities and their families. Website provides information about public policy; insurance products information; publications; discussion groups; employment registry; and links to local chapters and related organizations.

Source: MHP-Nationwide
Last Updated: 3/1/2022
Care.com View on Map
Nationwide Provider
201 Jones Road, Suite 500
Waltham, MA 02451
Nationwide Provider
Address:
201 Jones Road, Suite 500
Waltham, MA 02451
Services Provided: A commercial web-based resource to find private childcare, special needs care, tutors, and other types of care providers. Create an account in order to browse.
Source: MHP-Nationwide
Last Updated: 1/6/2020
Nationwide Provider
957 N Plum Grove Road
Schaumburg, IL 60173
Phone: 919-459-2167
Nationwide Provider
Address:
957 N Plum Grove Road
Schaumburg, IL 60173
Phone: 919-459-2167
Toll Free Phone: 800-525-3243
Fax: 847-969-0460
Email: info@llli.org
Eligibility: Breastfeeding & pregnant women
Services Provided: Helping mothers worldwide to breastfeed through mother-to-mother support, encouragement, information, and education, and to promote a better understanding of breastfeeding as an important element in the healthy development of the baby and mother.
Source: MHP-Nationwide
Last Updated: 4/9/2020
Nationwide Provider
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Nationwide Provider
Address:
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Toll Free Phone: 800-344-4823
Fax: 301-951-6378
Services Provided: The mission of the Cystic Fibrosis (CF) Foundation is to cure cystic fibrosis and provie all people with CF the opportunity to lead long, fulfilling lives.

The CF Foundation funds research and drug development and provides CF-related resources for families and medical providers.

[https://www.cff.org/Assistance-Services/About-Compass/What-Is-Compass/ Compass] is a personalized one-on-one service to help with the insurance, financial, legal, and other issues faced by people living with CF, their families, and their care teams.

The [https://www.cff.org/ccd/ CF Care Center] finder is a web-based location finder for cystic fibrosis accredited care centers nationwide. The Cystic Fibrosis Foundation provides funding for and accredits more than 110 cystic fibrosis care centers and 55 affiliate programs nationwide, including 96 programs for treating adults with CF.
Source: MHP-Nationwide
Last Updated: 2/7/2020
Virtual VRI View on Map
Nationwide Provider
PO Box 25268
Colorado Springs, CO 80936
Phone: 719-344-2274
Nationwide Provider
Address:
PO Box 25268
Colorado Springs, CO 80936
Phone: 719-344-2274
Toll Free Phone: 866-440-9140 xe
Eligibility: Deaf and hard of hearing individuals
Services Provided: Video Remote Interpreting is a cutting edge “green” way of providing Sign Language interpreting. All that is required is a computer/webcam, access to high speed internet and to download free webconferencing software. The hearing employer, doctor, counselor, school etc., pays for the service to be in compliance with the Americans with Disabilities Act.
Provider Profiles: computer/webcam based service
Source: MHP-Nationwide
Last Updated: 1/6/2020
Nationwide Provider
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
Phone: 505-872-4774
Nationwide Provider
Organization Name: Family Voices
(Show others in Organization)
Address:
3701 San Mateo Blvd. NE, Suite 103
Albuquerque, NM 87110
Phone: 505-872-4774
Toll Free Phone: 888-835-5669
Fax: 505-872-4780
Services Provided:

IMPACT provides a variety of educational resources and tools for understanding aspects of raising a health family.

Provider Profiles:

IMPACT stands for Improving Maternal Child Health Programs and Policies so All Children Thrive. IMPACT is a project of national Family Voices.

IMPACT promotes a holistic approach to health and wellness for all families and children including those with special healthcare needs and disabilities.

IMPACT elevates and expands the capacity of family organizations – those that serve all children as well as those that serve children with special needs and disabilities  –  to educate and inform families about lifestyle strategies and choices that positively impact the long-term good health of children. 

IMPACT promotes health and wellness by developing materials and tools and sharing other resources that help families learn skills to build healthy relationships, healthy families, and healthy communities.

Source: MHP-Nationwide
Last Updated: 6/8/2020
Nationwide Provider
8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000
Nationwide Provider
Address:
8161 Normandale Blvd.
Bloomington, MN 55437
Phone: 952-838-9000
Toll Free Phone: 800-537-2237
Services Provided: Champions for children with disabilities, Parent Advocacy Coalition for Educational Rights, PACER Center expands opportunities and enhances the quality of life of children and young adults with disabilities and their families. PACER is staffed primarily by parents of children with disabilities and works in coalition with 18 disability organizations. A significant Learning Center, Resources, and specifically for Students and Young Adults.
Source: MHP-Nationwide
Last Updated: 1/7/2020
Nationwide Provider
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Nationwide Provider
Address:
400 Hamilton Ave. Suite 340
Palo Alto, CA 94301
Phone: 650-497-8365
Services Provided: Dedicated exclusively to the promotion and protection of children's health through fundraising, grantmaking and providing an informed perspective. Packard Children’s Hospital and Stanford School of Medicine supports clinical care, research, and education to improve the health of children and expectant mothers, locally and worldwide. Programs include Improving Systems of Care for Children with Special Health Care Needs and Elevating the Societal Priority of Children, providing wide-ranging, up-to-date data and research by tracking the status of California's children over time through its website, www.kidsdata.org.
Source: MHP-Nationwide
Last Updated: 1/7/2020
Nationwide Provider
161 North Clark Street Ste 3550
Chicago, IL 60601
Nationwide Provider
Address:
161 North Clark Street Ste 3550
Chicago, IL 60601
Toll Free Phone: 800-572-1717
Email: mda@mdausa.org
Services Provided:

A voluntary health agency that works to combat muscular dystrophy, amyotrophic lateral sclerosis (ALS), and related muscle-debilitating diseases. The organization is committed to finding treatments and cures while providing a comprehensive program to empower families with support to help them thrive and stay independent including summer camps for kids, peer support, equipment resources and more. Related volunteer opportunities available.COVID-19 Update: following all CDC and state guidelines.

  • Voluntary Health Organizations
  • Assistive Technology Expense Assistance
  • Health/Disabilities Related Volunteer Opportunities
  • Therapeutic Camps
  • Health/Disability Related Support Groups
Source: MHP-Nationwide
Last Updated: 4/22/2022
Nationwide Provider
1615 M Street NW, Suite 290
Washington, DC 20036
Phone: 202-223-1500
Nationwide Provider
Address:
1615 M Street NW, Suite 290
Washington, DC 20036
Phone: 202-223-1500
Email: info@GotTransition.org
Services Provided: Dedicated to improving health care transition supports for youth moving into the adult health care system, offers education, resources, tools, and state policy advocacy for youth, families, providers, and states. The Six Core Elements of Health Care Transition 2.0 define the basic components of health care transition support.
Provider Profiles: See resources on http://gottransition.org
Source: MHP-Nationwide
Last Updated: 1/7/2020
Nationwide Provider
115 E. 23rd St., 9th Floor
New York, NY 10010
Nationwide Provider
Organization Name: Psychology Today
(Show others in Organization)
Address:
115 E. 23rd St., 9th Floor
New York, NY 10010
Services Provided:

National state-based database of mental health professionals. Detailed professional listings for Psychologists, Psychiatrists, Therapists, Counselors, Group Therapy and Treatment Centers in the United States and Canada.

Search by city, insurance, issues, sexuality, gender, age, language, faith, types of therapy, online therapy, psychiatrists, treatment centers, and support groups.

Provider Profiles:

Psychology Today's Therapy Directory is run here Sussex Directories.

Source: MHP-Nationwide
Last Updated: 8/31/2020
Nationwide Provider
107 Commerce Centre Drive, Suite 204
Huntersville, NC 28078
Phone: 704-947-7779
Nationwide Provider
Address:
107 Commerce Centre Drive, Suite 204
Huntersville, NC 28078
Phone: 704-947-7779
Fax: 704-948-7779
Services Provided:

Committed to full participation of persons with disabilities in post-secondary education. Website resources include civil rights, legal resources, DSS professionals.

Provider Profiles:

Affiliate programs Utah AHEAD, New Mexico AHEAD

Source: MHP-Nationwide
Last Updated: 12/11/2020
Nationwide Provider
Sparta, NJ 07871
Nationwide Provider
Address:
Sparta, NJ 07871
Services Provided:

Provides practical advice, emotional support and the most up-to-date educational information for families of children and adults with disabilities and special healthcare needs as well as to the physicians, allied health care professionals, and educational professionals. Available for free, as a monthly email. 

Source: MHP-Nationwide
Last Updated: 7/30/2021
Nationwide Provider
800 Eastown Drive, Suite 105
Chapel Hill, NC 27514
Phone: 706-256-2084
Nationwide Provider
Organization Name: National Respite Locator Service
(Show others in Organization)
Address:
800 Eastown Drive, Suite 105
Chapel Hill, NC 27514
Phone: 706-256-2084
Services Provided:

The ARCH National Respite Network includes the National Respite Locator, a service to help caregivers and professionals locate respite services in their community, the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels, and the Lifespan Respite Technical Assistance Center.

Provider Profiles:

The ARCH National Respite Network includes summer camps for both children and adults with special needs.

A cooperative agreement with the US Administration for Community Living/ Administration on Aging

Source: MHP-Nationwide
Last Updated: 3/2/2022
Nationwide Provider
Nationwide Provider
Organization Name: Childhood Anxiety Network
(Show others in Organization)
Address:
Email: info@selectivemutism.org
Services Provided:

SMA, part of the Childhood Anxiety Network, is a nonprofit organization dedicated to providing information, resources and support to those impacted by a child with the anxiety disorder known as Selective Mutism (SM).

SMA is the nation’s premier resource for information on SM. Provides a network of professionals, families and affected individuals across the world who understand the struggle of living in silence.

SMA Support Groups by State: list of SMA support groups.

Find a Treating Professional: Directory of professionals that have joined the SMA community.

Source: MHP-Nationwide
Last Updated: 8/24/2020
Nationwide Provider
101 Montgomery Street, Suite 2150
San Francisco, CA 94104
Nationwide Provider
Organization Name: National Center on Caregiving
(Show others in Organization)
Address:
101 Montgomery Street, Suite 2150
San Francisco, CA 94104
Toll Free Phone: 800-445-8106
Services Provided:

Provides information on caregiver services, policy and research. Search for state-based resources using the Services by State tool.

Source: MHP-Nationwide
Last Updated: 12/20/2021
Nationwide Provider
530 Fifth Avenue, 18th Floor
New York, NY 10036
Phone: 855-566-5871
Nationwide Provider
Address:
530 Fifth Avenue, 18th Floor
New York, NY 10036
Phone: 855-566-5871
Services Provided:

Get essential information on costs for thousands of procedures and learn insurance basics. A national independent, nonprofit corporation whose mission is to bring transparency to healthcare costs and health insurance information through comprehensive data products and consumer resources. Search for medical and dental costs.

Provider Profiles:

Internet-based service

Source: MHP-Nationwide
Last Updated: 6/22/2020
Nationwide Provider
110 Magnolia Circle
230 Appleton Place Nashville, TN 37203-5721
Nashville, TN 37203
Phone: 615-322-8240
Nationwide Provider
Address:
110 Magnolia Circle
230 Appleton Place Nashville, TN 37203-5721
Nashville, TN 37203
Phone: 615-322-8240
Email: kc@vumc.org
Eligibility: Individuals with disabilities
Services Provided:

Resources for individuals with disabilities: Topical List, Printable Resources, Web Resources, Tip Sheets, Video Resources and Toolkit for IDD at Tip Sheets and Resources with Health Watch Tables.

Source: MHP-Nationwide
Last Updated: 10/13/2020
Nationwide Provider
Baltimore, MD
Nationwide Provider
Organization Name: Social Security Administration
(Show others in Organization)
Address:
Baltimore, MD
TDD: 800-325-0778
Toll Free Phone: 800-772-1213
Eligibility:

SSI denied for medical reasons

Services Provided:

For recent applications for Social Security disability benefits or Supplemental Security Income (SSI) that were denied for medical reasons,
request an appeal online and provide documents to support appeal electronically. Individuals may also continue an appeal already started.

Provider Profiles:

Internet resource
TDD Phone for Salt Lake City area 800 325 0778

Source: MHP-Nationwide
Last Updated: 2/9/2022
Nationwide Provider
4600 Devitt Drive
Cincinnati, OH 45246
Phone: 800-818-7388
Nationwide Provider
Address:
4600 Devitt Drive
Cincinnati, OH 45246
Phone: 800-818-7388
Toll Free Phone: 800-818-7388
Email: admin@rettsyndrome.org
Services Provided: An organization comprised of parents and friends of those diagnosed with Rett syndrome, providing the latest medical information, aggressively funding the most promising research, offering meaningful support, raising public awareness and advocating for all living with Rett syndrome. Lists resources and clinics by state, national resources, and clinical trials. Resources include: Care Guides, Communication, Adaptive Equipment and Funding, School and Day Programs, Adolescence, Planning for the Future.
Source: MHP-Nationwide
Last Updated: 1/7/2020
Nationwide Provider
201 Chicago Avenue, Unit 200
Minneapolis, MN 55415
Nationwide Provider
Address:
201 Chicago Avenue, Unit 200
Minneapolis, MN 55415
Eligibility: For patients or caregivers, advocacy groups, health care providers, and supporters.
Services Provided: CNF Family Support and Empowerment Program (FSEP) offers families a direct connection with an experienced, compassionate Peer Support Specialist to help navigate the journey of disease diagnosis, treatment, and management for a child living with a neurologic condition. Includes: Transition of Care, Infantile Spasms Awareness, Respite Care, Sudden Unexpected Death in Epilepsy, Grants and Scholarships, Webinars
Provider Profiles: National, web-based locator for services
Source: MHP-Nationwide
Last Updated: 1/7/2020
Nationwide Provider
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Nationwide Provider
Address:
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Toll Free Phone: 800-342-2383
Services Provided:

Provides objective and credible information, advocacy and research for diabetes. Website offers education, legal rights, health insurance, tips for caregivers, etc. Provides camps for children with Type I diabetes and with or at risk of developing Type II diabetes.

Source: MHP-Nationwide
Last Updated: 5/9/2022
Nationwide Provider
1004 A O'Reilly Avenue
San Francisco, CA 94129
Phone: 415-800-7777
Nationwide Provider
Address:
1004 A O'Reilly Avenue
San Francisco, CA 94129
Phone: 415-800-7777
Toll Free Phone: 866-968-6642
Email: info@myotonic.org
Services Provided:

Delivering comprehensive support resources, and driving research to accelerate the discovery of DM therapies. A digital library of educational videos. Find a doctor nationwide locator. Find a support group, including a virtual group. Anesthesia guidelines. Founded by families with DM seeking to help one another.

Provider Profiles:

AKA Myotonic Dystrophy Foundation

Source: MHP-Nationwide
Last Updated: 11/4/2020
Nationwide Provider
1200 Eton Court, NW, Third Floor
Washington, DC 20007
Phone: 202-785-4585
Nationwide Provider
Address:
1200 Eton Court, NW, Third Floor
Washington, DC 20007
Phone: 202-785-4585
Toll Free Phone: 800-666-6327
Services Provided:

The leading voice and resource of the Fetal Alcohol Spectrum Disorders (FASD) community, and committed to the prevention of prenatal exposure to alcohol, drugs, and other substances known to harm fetal development, and to supporting individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs) and other preventable intellectual/ developmental disabilities.

Source: MHP-Nationwide
Last Updated: 2/2/2021
Nationwide Provider
4068 Mount Royal Boulevard, Suite 224B
Allison Park, PA 15101
Phone: 412-341-1515
Nationwide Provider
Address:
4068 Mount Royal Boulevard, Suite 224B
Allison Park, PA 15101
Phone: 412-341-1515
Fax: 412-344-0224
Email: info@LDAAmerica.org
Eligibility:

People with disabilities, their parents, teachers, and other professionals

Services Provided:

Provides support to people with learning disabilities, their parents, teachers and other professionals with cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources.

Source: MHP-Nationwide
Last Updated: 4/26/2022
Nationwide Provider
Phone: 925-290-8950
Nationwide Provider
Address:
Phone: 925-290-8950
Email: info@allianceforfertilitypreservation.org
Eligibility: Cancer patients in search of fertility preservation
Services Provided:

A locator tool allows cancer patients and oncology professionals to search for fertility preservation services in their area, and to submit referrals or request appointments through a secure online system.

Source: MHP-Nationwide
Last Updated: 8/11/2020
Nationwide Provider
345 Park Boulevard
Itasca, IL 60143
Nationwide Provider
Organization Name: American Academy of Pediatrics (AAP) Specialist Locator
(Show others in Organization)
Address:
345 Park Boulevard
Itasca, IL 60143
Email: info@healthychildren.org
Services Provided:

A website that provides resources to parents from the American Academy of Pediatrics. Includes tools to locate pediatricians and pediatric specialists throughout the US.

Source: MHP-Nationwide
Last Updated: 12/22/2021
Nationwide Provider
1504 East Franklin Street
Chapel Hill, NC 27514
Phone: 919-933-9044
Nationwide Provider
Organization Name: American Cleft Palate Craniofacial Association
(Show others in Organization)
Address:
1504 East Franklin Street
Chapel Hill, NC 27514
Phone: 919-933-9044
Fax: 919-933-9604
Email: admin@cleftline.org
Eligibility:

Open to all.

Services Provided:

Connects individuals and families affected by cleft lip/palate and other craniofacial to team care, providing education, and offerings personal support. Awards College scholarships, research grants, and silent auction. Provides patient/family Connections Conferences and 24 hour Cleftline.

Source: MHP-Nationwide
Last Updated: 6/3/2021
Nationwide Provider
11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Nationwide Provider
Address:
11130 Sunrise Valley Drive Ste 350
Reston, VA 20191
Phone: 703-234-4079
Fax: 703-832-4545
Email: info@aedweb.org
Services Provided: Provides research, educational forums, publications, subject matter experts, and current information on treatment and prevention of eating disorders via internet.COVID-19 UPDATE: Following all CDC and State guidelines.

  • Specialized Information and Referral
  • Internet Information Resources
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
11921 Rockville Pike Ste 300
Rockville, MD 20852
Phone: 800-638-8299
Nationwide Provider
Address:
11921 Rockville Pike Ste 300
Rockville, MD 20852
Phone: 800-638-8299
Email: helpline@kidneyfund.org
Languages Spoken: Spanish
Eligibility:

Kidney patients and health care professionals.

Services Provided: Provides health information, education, financial assistance, advocacy, and resources for kidney patients and health care professionals in English and Spanish. Programs for children include the Summer Enrichment Program and the annual Calendar Kids Art Contest.COVID-19 Update: following all CDC and state guidelines.

  • Medical Care Expense Assistance
  • Internet Information Resources
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
PO Box 105283
Atlanta, GA 30348
Phone: 877-322-8228
Nationwide Provider
Address:
PO Box 105283
Atlanta, GA 30348
Phone: 877-322-8228
Eligibility:

Free credit reports available to everyone yearly.

Services Provided: Federal law requires each of the three nationwide consumer credit reporting companies, Equifax, Experian, and TransUnion, provide consumers a free credit report every 12 months if interested. This website allows users to request a credit report from any or all of the companies annually.COVID-19 UPDATE: Continues to offer free online reports.

  • Credit Reporting Agencies
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
PO Box 103
Denver, PA 17517
Phone: 800-939-1019
Nationwide Provider
Address:
PO Box 103
Denver, PA 17517
Phone: 800-939-1019
Email: info@add.org
Eligibility:

Individuals with ADHD and their families

Services Provided: An international non-profit organization founded twenty-five years ago to help adults with Attention Deficit/Hyperactivity Disorder (ADHD) lead better lives. This volunteer-run organization provides information and resources exclusively for and about adult ADHD.

  • Specialized Information and Referral
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
Autism Speaks View on Map
Nationwide Provider
1 East 33rd Street, 4th Floor
New York, NY 10016
Phone: 888-772-9050
Nationwide Provider
Address:
1 East 33rd Street, 4th Floor
New York, NY 10016
Phone: 888-772-9050
Toll Free Phone: 888-288-4762
Email: familyservices@autismspeaks.org
Languages Spoken: Spanish
Services Provided: Provides the latest autism science and information, funding research into the causes, prevention, treatments and cures for autism, awareness of autism spectrum disorders, advocacy for the needs of individuals with autism and their families and an online store.COVID-19 UPDATE: Offering 30+ hours of free online video learning resources; visit website for programming.

  • Specialized Information and Referral
  • Disease/Disability Information
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
One Park Avenue, Suite 1
Portsmouth, RI 02871
Phone: 877-622-2884
Nationwide Provider
Organization Name: National Autism Association
(Show others in Organization)
Address:
One Park Avenue, Suite 1
Portsmouth, RI 02871
Phone: 877-622-2884
Email: naa@nationalautism.org
Eligibility: No restrictions
Services Provided:

An online resource of six national non-profit autism organizations whose mission is to reduce autism-related wandering incidents and deaths. Provides an online Family Wandering Emergency Plan, Big Red Safety Box program, and Toolkits for caregivers, first-responders and teachers.

  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
Nationwide Provider
10400 Connecticut Ave Ste 500
Kensington, MD 20895-3944
Phone: 800-896-3650
Nationwide Provider
Address:
10400 Connecticut Ave Ste 500
Kensington, MD 20895-3944
Phone: 800-896-3650
Services Provided: A nonprofit providing resources and information to assist caregivers.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
Nationwide Provider
733 Third Avenue Ste 510
New York, NY 10017
Phone: 800-932-2423
Nationwide Provider
Address:
733 Third Avenue Ste 510
New York, NY 10017
Phone: 800-932-2423
Toll Free Phone: 888-694-8872
Email: info@crohnscolitisfoundation.org
Eligibility:

Crohn's and Colitis patients, their families and medical professionals.

Services Provided:

The Crohn's & Colitis Foundation is a non-profit, volunteer-driven organization dedicated to finding the cures for Crohn's Disease and ulcerative colitis. Provides online and telephone access to disease educational materials, support groups, physician referrals and other resources.

COVID-19 UPDATE: Following all CDC and State guidelines. Please contact to verify if support group is meeting online or in person.

  • Specialized Information and Referral
  • Disease/Disability Information
  • Research Funds
  • Internet Information Resources
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
8301 Professional Place West, Ste 230
Hyattsville, MD 20785
Phone: 301-459-3700
Nationwide Provider
Address:
8301 Professional Place West, Ste 230
Hyattsville, MD 20785
Phone: 301-459-3700
Toll Free Phone: 800-332-1000
Email: ContactUs@efa.org
Wheelchair Access: Full Wheelchair Access
Eligibility:

Individuals with epilepsy, their families and friends.

Services Provided:

Provides information, advocacy, and assistance finding doctors, legal assistance, support groups and transportation reimbursement. Learn about epilepsy, types of seizures, triggers, diagnosis, treatment, etc. Offers a seizure diary app self-management tool.  Offers support groups for people with epilepsy.

Spanish-language line: 866-748-8008

Source: Nationwide Suggest Providers Queue
Last Updated: 6/17/2021
Nationwide Provider
465 Industrial Boulevard
London, KY 40750-0001
Phone: 800-318-2596
Nationwide Provider
Organization Name: Centers for Medicare and Medicaid Services
(Show others in Organization)
Address:
465 Industrial Boulevard
London, KY 40750-0001
Phone: 800-318-2596
TDD: 855-889-4325
Toll Free Phone: 800-318-2596
Eligibility:

Anyone looking for health insurance under the Affordable Care Act (ACA). Specifically for those who currently don't have health coverage or looking to change plans.

Services Provided: The Marketplace is a new way to find health coverage that fits the individual's budget and needs. With one application, the individual can see all options and enroll. Open enrollment runs from November to December; please see the website for specific dates.COVID-19 UPDATE: Check with health insurance company for specific benefits and coverage for COVID-19. Login to update marketplace application if COVID-19 impacts income or household. May be able to change plan if certain situations apply.

  • General Health Insurance Information/Counseling
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Nationwide Provider
Address:
110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Fax: 410-321-9165
Email: frontdesk@primaryimmune.org
Services Provided: A national patient organization dedicated to improving the diagnosis, treatment, and quality of life of persons with primary immunodeficiency diseases through advocacy, education, support groups, research, and information sharing.COVID-19 HOURS: Following all CDC and State guidelines.

  • Disease/Disability Information
  • Health/Disability Related Support Groups
Source: MHP-Nationwide
Last Updated: 4/7/2022
Joe's House View on Map
Nationwide Provider
505 East 79th Street Ste 17E
New York, NY 10075
Nationwide Provider
Address:
505 East 79th Street Ste 17E
New York, NY 10075
Toll Free Phone: 877-563-7468
Email: info@joeshouse.org
Services Provided: Not an actual house, but a website that lists thousands of places to stay across the country near hospitals and treatment centers that offer a discount for traveling cancer patients and their loved ones. Although Joe's House caters to cancer patients, any patient regardless of diagnosis, may use the lodging facilities listed.COVID-19 UPDATE: Many lodging facilities are closed or have limited services. Please call for the most up to date status.

  • Patient/Family Housing
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
623 West 38th Street Ste 300
Austin, TX 78705
Phone: 877-236-8820
Nationwide Provider
Address:
623 West 38th Street Ste 300
Austin, TX 78705
Phone: 877-236-8820
Email: livestrong@livestrong.org
Languages Spoken: Spanish
Eligibility:

Cancer patients

Services Provided: Provides resources for the cancer community to address the unmet needs of cancer survivors and develops evidence-based solutions to address both the common and unique problems survivors are facing around the world. Offers a free prescription drug discount card.COVID-19 Update: following all CDC and state guidelines.

  • Specialized Information and Referral
  • Prescription Drug Discount Cards
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
220 North Green Street
Chicago, IL 60607
Phone: 312-262-6897
Nationwide Provider
Address:
220 North Green Street
Chicago, IL 60607
Phone: 312-262-6897
Toll Free Phone: 888-375-7767
Email: hello@anad.org
Services Provided: A non-profit organization working in the areas of support, awareness, advocacy, referral, education, and prevention for people, their families and friends struggling with eating disorders. Also provides resources for families, schools and the eating disorder community. Services include recovery mentorship, support groups, an annual conference and a YouTube recovery channel.

  • Internet Information Resources
  • Disease/Disability Information
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
55 Chapel Street Ste 200
Newton, MA 02458
Phone: 617-924-9997
Nationwide Provider
Address:
55 Chapel Street Ste 200
Newton, MA 02458
Phone: 617-924-9997
Fax: 617-924-9998
Email: questions@braintumor.org
Services Provided: Provides information, education, advocacy and resources for finding better treatments, and ultimately, a cure for people living with a brain tumor and anyone who will be diagnosed in the future.

  • Disease/Disability Information
  • Internet Information Resources
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
9609 Medical Center Drive
Rockville, MD 20850
Phone: 800-422-6237
Nationwide Provider
Address:
9609 Medical Center Drive
Rockville, MD 20850
Phone: 800-422-6237
Email: nciinfo@nuh.gov
Wheelchair Access: Complete
Eligibility:

None

Services Provided: A free public service providing easy to understand, accurate, up-to-date, and reliable medical information services to answer cancer-related questions to patients, friends and family, healthcare providers, or researchers. Includes disease/disability information and answers clinical trial questions, internet information resources on how to find treatment, specialized information and referral, risk factors, symptoms, diagnostics, and treatments. Leads, conducts, and supports cancer research across the nation to help all people live longer, healthier lives.COVID-19 UPDATE: Following all CDC and State guidelines.

  • Internet Information Resources
  • Disease/Disability Information
  • Specialized Information and Referral
  • Medical Information Services
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
4221 Forbes Blvd Suite 270
Lanham, MD 20706
Phone: 301-306-7070
Nationwide Provider
Organization Name: CHADD
(Show others in Organization)
Address:
4221 Forbes Blvd Suite 270
Lanham, MD 20706
Phone: 301-306-7070
Toll Free Phone: 866-200-8098
Fax: 301-306-7090
Email: nrc@chadd.org
Eligibility:

Open to the public, children and adults with attention-deficit/hyperactivity disorder, ADHD.

Services Provided: A program of CHADD providing an online clearinghouse for the latest evidence-based information and resources on ADHD through support groups and specialized information and referral.

  • Health/Disability Related Support Groups
  • Specialized Information and Referral
Provider Profiles:

Internet based resource

Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
1500 Rosecrans Avenue Ste 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Nationwide Provider
Address:
1500 Rosecrans Avenue Ste 200
Manhattan Beach, CA 90266
Phone: 310-725-0025
Toll Free Phone: 877-272-6226
Fax: 310-725-0029
Email: info@pancan.org
Services Provided: Provides research, patient support, community outreach, and government advocacy. Raises money for direct private funding of research. Supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. The programs aims to create a sense of hope and community so no one has to face pancreatic cancer alone.COVID-19 Update: following all CDC and state guidelines.

  • Clinical Trials
  • Disease/Disability Information
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
3104 E Boundary Ct
Midlothian, VA 23112
Phone: 800-366-7741
Nationwide Provider
Address:
3104 E Boundary Ct
Midlothian, VA 23112
Phone: 800-366-7741
Toll Free Phone: 800-366-7741
Fax: 804-744-9388
Email: psiops@uneedpsi.org
Eligibility:

Financial assistance for insured and uninsured patients with chronic illnesses.

Services Provided: Provides online disease and treatment information as well as financial assistance for patients with chronic illnesses who are struggling to keep up with expensive premiums and co-payments. Financial support and guidance available for qualified patients with specific, rare, chronic diseases.COVID-19 UPDATE: Following all CDC and State guidelines.

  • Specialized Information and Referral
  • Medical Care Expense Assistance
Source: MHP-Nationwide
Last Updated: 4/7/2022
Nationwide Provider
155 Second Street
Cambridge, MA 02141
Nationwide Provider
Address:
155 Second Street
Cambridge, MA 02141
Email: support@patientslikeme.com
Services Provided: Patients Like Me is a free health information sharing website for patients. Participants have the opportunity to share both personal stories and health data about their conditions; a network of 500,000 patients.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
Nationwide Provider
7304 Mentor Avenue Ste F
Mentor, OH 44060
Phone: 440-951-5357
Nationwide Provider
Address:
7304 Mentor Avenue Ste F
Mentor, OH 44060
Phone: 440-951-5357
Toll Free Phone: 866-951-5357
Fax: 440-951-5358
Email: information@smartrecovery.org
Services Provided: Self-Management and Recovery Training (SMART) sponsors face-to-face and daily online meetings for addiction recovery. Online message boards and 24/7 chat rooms are excellent forums to learn about SMART Recovery. Offers a variety of support groups for Alcohol and drug use also support groups for friends and family members of individuals with alcohol and drug use disorders.COVID-19 UPDATE: Fully operational throughout. Please check website often for updates.

  • Drug Use Disorder Support Groups
  • Alcohol Use Disorder Support Groups
  • Families/Friends of Individuals With a Drug Use Disorder Support Groups
  • Families/Friends of Individuals With an Alcohol Use Disorder Support Groups
Source: MHP-Nationwide
Last Updated: 4/7/2022
Nationwide Provider
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
Phone: 973-379-2690
Nationwide Provider
Organization Name: Christopher and Dana Reeve Foundation
(Show others in Organization)
Address:
636 Morris Turnpike, Suite 3A
Short Hills, NJ 07078
Phone: 973-379-2690
Toll Free Phone: 800-539-7309
Email: beisenbud@christopherreeve.org
Eligibility:

No restrictions

Services Provided:

Non-profit foundation which promotes the health and well-being of people living with a spinal cord injury, mobility impairment, and paralysis. The Paralysis Resource Center (PRC) is staffed with information specialists who can provide individualized support via phone/email on any topic related to paralysis, such as what to expect in rehab, the best equipment exchange programs, peer mentoring, educational materials, etc.

  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 2/23/2022
Nationwide Provider
1703 North Beauregard Street
Suite 420
Alexandria, VA 22311
Phone: 202-467-5081
Nationwide Provider
Address:
1703 North Beauregard Street
Suite 420
Alexandria, VA 22311
Phone: 202-467-5081
Fax: 703-465-5085
Email: info@acb.org
Wheelchair Access: Yes
Eligibility:

Those who are blind or visually impaired, their families, friends, doctors, caregivers, and anyone who works with blind or visually impaired people

Services Provided:

Non-medical information on blindness, and referrals to various sources of help, state services for the blind, and state libraries for the blind.

Resources: Offers a variety of resources, including Job Connection, Blind/Low Vision resources, peer support, and more

Scholarships: Scholarships for freshman, undergraduate, and graduate students. To be eligible for a scholarship, applicants need to be legally blind, maintain a 3.0 GPA to be eligible for most scholarships, be a full-time student (as well as students who work 32 or more hours per week and attend college part time), and be involved in their school/local community.

Programs and Services: Audio Description Project, Advocacy and Governmental Affairs, Radio, and more.

Source: Nationwide Suggest Providers Queue
Last Updated: 6/17/2021
Nationwide Provider
PO Box 14686
Durham, NC 27709-4686
Phone: 919-806-0101
Nationwide Provider
Address:
PO Box 14686
Durham, NC 27709-4686
Phone: 919-806-0101
Toll Free Phone: 877-MPS-1001
Services Provided:

Provides support to families of children with mucopolysaccharidoses (MPS) and mucolipidosis (ML) diseases through education, fundraising assistance for medical expense assistance, resource guides, and advocacy.

Source: Nationwide Suggest Providers Queue
Last Updated: 2/1/2022
Nationwide Provider
Crisis Line: 866-331-9474
PO Box 90247
Austin, TX 78709
Nationwide Provider
Crisis Line: 866-331-9474
Address:
PO Box 90247
Austin, TX 78709
Services Provided:

Engages, educates, and empowers young people to prevent and end abusive relationships by offering support through 24/7 hotlines and specialized information/ referral. COVID-19 UPDATE: Following all CDC and State guidelines.

  • Dating Abuse Hotlines
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 6/13/2022
Nationwide Provider
8600 Rockville Pike
Bethesda, MD 20894
Phone: 301-594-5983
Nationwide Provider
Organization Name: U.S. National Library of Medicine
(Show others in Organization)
Address:
8600 Rockville Pike
Bethesda, MD 20894
Phone: 301-594-5983
Fax: 301-402-1384
Email: custserv@nlm.nih.gov
Services Provided:

Online medical information resource directs to information to help answer health questions. Information on drugs displays an illustrated medical encyclopedia, interactive patient tutorials, and latest health news.

Source: Nationwide Suggest Providers Queue
Last Updated: 8/18/2021
Nationwide Provider
1500 Broadway, Suite 1101
New York, NY 10036
Phone: 212-575-6200
Nationwide Provider
Address:
1500 Broadway, Suite 1101
New York, NY 10036
Phone: 212-575-6200
Text: 741741
Toll Free Phone: 800-931-2237
Fax: 212-575-1650
Email: info@nationaleatingdisorders.org
Wheelchair Access: Yes
Eligibility:

Individuals and families affected by eating disorders.

Services Provided:

Provides information and treatment options for eating disorders.

Confidential Helpline Monday-Thursday (800-931-2237) from 9am to 9pm ET and Friday from 9am to 5pm ET.

24/7 crisis support: text 'NEDA' to 741741

Source: MHP-Nationwide
Last Updated: 6/17/2021
Nationwide Provider
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
TDD: 866-569-1162
Email: healthinfo@niddk.nih.gov
Eligibility: Contact for specific information.
Services Provided:

NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.

Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
Nationwide Provider
2121 K Street NW Ste 200
Washington, DC 20037
Phone: 202-349-1155
Nationwide Provider
Address:
2121 K Street NW Ste 200
Washington, DC 20037
Phone: 202-349-1155
Toll Free Phone: 800-657-6398
Fax: 202-349-1156
Email: info@lupus.org
Services Provided:

Improves the quality of life for all people affected by lupus through programs of research, education, support, and advocacy.

  • Health/Disability Related Support Groups
  • Disease/Disability Information
  • Voluntary Health Organizations

Chapter Finder: Find support and connection in your community.

Source: MHP-Nationwide
Last Updated: 4/22/2022
Nationwide Provider
1000 Vermont Avenue, NW, Suite 200
Washington, DC 20005-4903
Phone: 202-815-3129
Nationwide Provider
Address:
1000 Vermont Avenue, NW, Suite 200
Washington, DC 20005-4903
Phone: 202-815-3129
Email: communications@nmac.org
Eligibility: Contact for specific information.
Services Provided:

Information on HIV/AIDS conferences, news and events, public policy, resources, technical assistance, treatment information and hotlines.

AKA National Minority AIDS Council

Source: Nationwide Suggest Providers Queue
Last Updated: 8/25/2020
Nationwide Provider
7272 Greenville Avenue
Dallas, TX 75231
Phone: 214-373-6300
Nationwide Provider
Address:
7272 Greenville Avenue
Dallas, TX 75231
Phone: 214-373-6300
Toll Free Phone: 888-242-2453
Services Provided: Information for individuals, families, and professionals regarding heart-related concerns. Includes general health information, information regarding specific conditions, and information about CPR and First Aid training.

The [https://www.heart.org/en/ American Stroke Association] is a division of the American Heart Association focused on stroke prevention and treatment.
Source: Nationwide Suggest Providers Queue
Last Updated: 2/7/2020
Nationwide Provider
700 North 4th Street
Richmond, VA 23219
Phone: 888-894-6361
Nationwide Provider
Address:
700 North 4th Street
Richmond, VA 23219
Phone: 888-894-6361
Toll Free Phone: 888-894-6361
Fax: 804-782-4817
Eligibility: Contact for specific information.
Services Provided: National patient hotline for organ transplantation information. Donor cards, booklets, brochures and lists of transplant centers are available. Patient information packets on specific organs are available.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/7/2020
Nationwide Provider
4000 Ridgeway Drive
Birmingham, AL 35209
Nationwide Provider
Address:
4000 Ridgeway Drive
Birmingham, AL 35209
TDD: 800-900-8086
Toll Free Phone: 800-900-8086
Fax: 205-313-7474
Email: email@nchpad.org
Services Provided:

NCHPAD is the premier resource for information on physical activity, health promotion, and disability, serving persons with physical, sensory and cognitive disability across the lifespan. website features a variety of resources and services which can benefit all ages and populations.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/13/2022
Nationwide Provider
PO Box 299
West Orange, NJ 07052
Nationwide Provider
Address:
PO Box 299
West Orange, NJ 07052
Toll Free Phone: 1-800-465-4837
Services Provided:

Provides advocacy, education, support and research for the prevention, treatment and cure of liver disease. The Desert Southwest Division serves Arizona, New Mexico, Texas and Utah.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/14/2022
Nationwide Provider
1861 International Drive Suite 200
McLean, VA 22102
Phone: 202-747-6210
Nationwide Provider
Address:
1861 International Drive Suite 200
McLean, VA 22102
Phone: 202-747-6210
Toll Free Phone: 800-688-8765
Fax: 202-747-6208
Services Provided:

Provides awareness, education, and research to support families living with Fragile X. 

Source: Nationwide Suggest Providers Queue
Last Updated: 4/14/2022
Nationwide Provider
2134 G Street NW
Washington, DC 20052
Phone: 202-454-1220
Nationwide Provider
Address:
2134 G Street NW
Washington, DC 20052
Phone: 202-454-1220
Email: askheath@gwu.edu
Services Provided:

A national web-based clearinghouse on post-secondary education for individuals with disabilities. Provides national conferences, training sessions, and workshops, develops training modules, publishes resource papers, fact sheets, directories, and website information, and fosters a network of professionals.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/14/2022
Nationwide Provider
1090 Vermont Avenue NW, Suite 220
Washington, DC 20005
Phone: 202-467-5730
Nationwide Provider
Address:
1090 Vermont Avenue NW, Suite 220
Washington, DC 20005
Phone: 202-467-5730
Toll Free Phone: 202-467-4232
Fax: 202-223-0409
Email: communications@bazelon.org
Services Provided:

Advocates for the rights of adults and children who have mental disabilities. The Bazelon Center envisions an America where people who have mental illnesses or developmental disabilities exercise their own life choices and have access to the resources that enable them to participate fully in their communities.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/14/2022
Nationwide Provider
1275 K Street NW Suite 250
Washington, DC 20005
Phone: 202-407-8580
Nationwide Provider
Address:
1275 K Street NW Suite 250
Washington, DC 20005
Phone: 202-407-8580
Toll Free Phone: 800-782-4747
Fax: 202-289-6801
Services Provided: Leading the way in global research, providing assistance for people with ALS through a nationwide network of chapters, coordinating multidisciplinary care through certified clinical care centers, and fostering government partnerships.

Find a local chapter, Certified Treatment Centers of Excellence, or support group: [http://www.alsa.org/community/ ALS Association In Your Community]
Source: Nationwide Suggest Providers Queue
Last Updated: 2/7/2020
Nationwide Provider
1220 L Street, NW Ste. Box 168
Washington, DC 20005
Phone: 301-966-2234
Nationwide Provider
Address:
1220 L Street, NW Ste. Box 168
Washington, DC 20005
Phone: 301-966-2234
Toll Free Phone: 888-575-7373
Email: info@ncld.org
Services Provided:

Aims to ensure success for all individuals with learning disabilities in school, at work and in life.

Services Include:

  • Information and Referral Resources
  • Library Services
  • Special Education Assessment
  • Speech and Language Evaluations
  • System Advocacy
  • Scholarships for two graduating high school seniors with documented learning disabilities and/or ADHD who are pursuing post-secondary education.
Source: Nationwide Suggest Providers Queue
Last Updated: 4/26/2022
Nationwide Provider
1255 23rd Street, NW, Suite 400
Washington, DC 20037-1151
Phone: 202-662-0600
Nationwide Provider
Address:
1255 23rd Street, NW, Suite 400
Washington, DC 20037-1151
Phone: 202-662-0600
Fax: 202-393-2072
Email: info@safekids.org
Services Provided:

Provides general information on child safety and injury prevention. Education materials are available on such topics as car seats inspections, seat belt safety and helmet safety for bicyclists.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/26/2022
Nationwide Provider
350 North Glendale Avenue, Suite B368
Glendale, CA 91206
Phone: 704-364-0016
Nationwide Provider
Address:
350 North Glendale Avenue, Suite B368
Glendale, CA 91206
Phone: 704-364-0016
Email: SolveCFS@SolveCFS.org
Services Provided:

Provides critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid and other post-infection diseases.

Source: Nationwide Suggest Providers Queue
Last Updated: 4/26/2022
Nationwide Provider
976 Lake Baldwin Lane, Suite 104
Orlando, FL 32814
Phone: 407-895-0802
Nationwide Provider
Address:
976 Lake Baldwin Lane, Suite 104
Orlando, FL 32814
Phone: 407-895-0802
Email: staff@birthdefects.org
Services Provided:

Provides parents and expectant parents with information about birth defects and support services for their children; a parent-matching program that links families who have children with similar birth defects; sponsors the National Birth Defect Registry, a research project that studies associations between birth defects and exposures to radiation, medication, alcohol, smoking, chemicals, pesticides, lead, mercury, dioxin and other environmental toxins.

Source: Nationwide Suggest Providers Queue
Last Updated: 5/7/2022
Nationwide Provider
300 Mansell Court Suite 108
Roswell, GA 30076
Phone: 770-604-9500
Nationwide Provider
Address:
300 Mansell Court Suite 108
Roswell, GA 30076
Phone: 770-604-9500
Toll Free Phone: 800-232-6372
Fax: 770-604-9898
Services Provided: The oldest national organization for people with Down syndrome, their families, and the professionals who work with them. We provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome, and work to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.

Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
Nationwide Provider
141 West Jackson Boulevard, Suite 1400A
Chicago, IL 60604
Phone: 800-221-6827
Nationwide Provider
Address:
141 West Jackson Boulevard, Suite 1400A
Chicago, IL 60604
Phone: 800-221-6827
Toll Free Phone: 800-221-6827
Fax: 312-726-1494
Eligibility: Autism and other disabilities
Services Provided:

Provides exceptional services, education, outreach, and advocacy so that people living with autism and other disabilities can live, learn, work and play in our communities.

Information and Referral
Library Services

Source: Nationwide Suggest Providers Queue
Last Updated: 8/14/2020
Nationwide Provider
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484
TDD: 301-565-2966
Toll Free Phone: 877-226-4267
Fax: 301-718-6366
Email: NIAMSinfo@mail.nih.gov
Wheelchair Access: No Access
Services Provided:

Support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases

Information and Referral

Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
Nationwide Provider
6001 Executive Boulevard Suite 3309
Bethesda, MD 20892
Phone: 301-496-5751
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
6001 Executive Boulevard Suite 3309
Bethesda, MD 20892
Phone: 301-496-5751
Email: sofrankm@mail.nih.gov
Services Provided:

Conducts, fosters, coordinates, and guides research on the causes, prevention, diagnosis, and treatment of neurological disorders and stroke, and supports basic research in related scientific areas. Collects and disseminates research information related to neurological disorders.

Information and Referral
Library Services

Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
Nationwide Provider
2600 Fernbrook Lane Suite 119
Minneapolis, MN 554474752
Phone: 763-553-0020
Nationwide Provider
Address:
2600 Fernbrook Lane Suite 119
Minneapolis, MN 554474752
Phone: 763-553-0020
Fax: 763-553-0167
Email: naf@ataxia.org
Wheelchair Access: Access w/o Special Facilities
Services Provided: The National Ataxia Foundation facilitates support groups for those with hereditary and sporadic ataxia. The Foundation also provides information about ataxia, current research activities and
a listing of neurologists in the United States who see patients with ataxia.

Family Support Centers/Outreach
Information and Referral
Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 1/6/2020
Nationwide Provider
200 First Ave NW Suite 505
Hickory, NC 28601
Phone: 828-855-1623
Nationwide Provider
Address:
200 First Ave NW Suite 505
Hickory, NC 28601
Phone: 828-855-1623
Toll Free Phone: 866-672-9466
Fax: 828-855-1672
Email: elizabeth.green@driver-ed.org
Services Provided:

The primary professional organization in this specialized area, encouraging equipment development to maximize the transportation options for persons with disabilities. To find a driver rehabilitation specialist in or near your area, please visit our website.

Driving Safety Education

Source: Nationwide Suggest Providers Queue
Last Updated: 1/19/2021
Nationwide Provider
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100
Nationwide Provider
Address:
1275 Mamaroneck Avenue
White Plains, NY 10605
Phone: 914-428-7100
Fax: 914-428-8203
Services Provided:

Seeks to improve the health of babies by preventing birth defects and reducing infant mortality. Campaigns for Healthier Babies, which includes programs of research, community service, education and advocacy.

Information and Referral
Library Services

Source: Nationwide Suggest Providers Queue
Last Updated: 10/30/2020
Nationwide Provider
505 Eighth Avenue, Suite 902
New York, NY 10018
Phone: 212-242-1968
Nationwide Provider
Address:
505 Eighth Avenue, Suite 902
New York, NY 10018
Phone: 212-242-1968
Toll Free Phone: 800-345-4372
Email: HDSAinfo@hdsa.org
Services Provided:

Dedicated to improving the lives of everyone affected by Huntington's disease. From community services and education to advocacy and research.

Services Include:

  • Information and Referral
  • Library Services
  • Peer Counseling
Source: Nationwide Suggest Providers Queue
Last Updated: 5/7/2022
Nationwide Provider
315 West 39th Street, Suite 701
New York, NY 10018
Phone: 212-279-1066
Nationwide Provider
Address:
315 West 39th Street, Suite 701
New York, NY 10018
Phone: 212-279-1066
Fax: 212-279-2066
Email: info@famdys.org
Services Provided:

Supporting treatment and research for familial dysautonomia. FD is a hereditary disease of the sensory and autonomic nervous systems.

Information and Referral
Library Services

Source: Nationwide Suggest Providers Queue
Last Updated: 11/4/2020
Male Survivor View on Map
Nationwide Provider
350 Central Park West, Suite 1H
P.O. Box 276, Long Valley, NJ 07853
New York, NY 10025
Nationwide Provider
Address:
350 Central Park West, Suite 1H
P.O. Box 276, Long Valley, NJ 07853
New York, NY 10025
Eligibility: Males 14 and up, overcoming sexual victimization.
Services Provided:

MaleSurvivor fosters a healing community where tens of thousands of men from more than 200 countries come together to find support, information and — most importantly — hope. Services include online forum, support groups, find a therapist, and resources for family members and loved ones of victims.

Support Groups: Find support groups, events, and reading recommendations.

Find a Therapist: Search clinics and clinicians by name or location.

For parents: Resources for parents of sexual abuse survivors.

Source: MHP-Nationwide
Last Updated: 10/5/2020
Nationwide Provider
1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680
Nationwide Provider
Address:
1500 Dawson Road
Merry Acres Executive Building
Albany, GA 31707
Phone: 229-518-2680
Toll Free Phone: 888-432-7899
Fax: 229-518-3879
Email: info@mendedhearts.org
Eligibility:

Patients and families of children with congenital heart disease.

Services Provided:

Provides ongoing peer-to-peer support, education, and advocacy to heart patients and their families. Local chapter locator available on website.

Services Include:

  • peer support and education
  • education resources
  • hospital outreach
  • CHD awareness
  • community health education
  • online community
  • advocacy
Source: Nationwide Suggest Providers Queue
Last Updated: 5/7/2022
Nationwide Provider
733 Third Avenue
New York, NY 10017
Nationwide Provider
Address:
733 Third Avenue
New York, NY 10017
Toll Free Phone: 800-344-4867
Services Provided:

Provides information, advocacy, research, and referrals for individuals with multiple sclerosis and their families. Website includes a locator for local chapters, doctors, resources, and events.

Source: Nationwide Suggest Providers Queue
Last Updated: 5/7/2022
Nationwide Provider
PO Box 8126
Gaithersburg, MD 20898-8126
Phone: 301-251-4925
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
PO Box 8126
Gaithersburg, MD 20898-8126
Phone: 301-251-4925
TDD: 888-205-3223
Toll Free Phone: 888-205-2311
Fax: 301-251-4911
Languages Spoken: Spanish
Services Provided:

GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic disease. In addition to website-based information you may contact a GARD Information Specialist. Also, GARD develops guides with tips on general topics, important resources, and answers to questions that patients, their families, and friends often ask us.

Provider Profiles:

GARD is a program of the National Center for Advancing Translational Sciences (NCATS) and is funded by two parts of the National Institutes of Health (NIH): NCATS and the National Human Genome Research Institute (NHGRI).

Source: Nationwide Suggest Providers Queue
Last Updated: 9/18/2020
Nationwide Provider
16360 Roscoe Blvd Suite 100
Van Nuys, CA 91406
Phone: 818-892-1616
Nationwide Provider
Address:
16360 Roscoe Blvd Suite 100
Van Nuys, CA 91406
Phone: 818-892-1616
Toll Free Phone: 800-777-8189
Fax: 818-892-1611
Email: info@spondylitis.org
Services Provided:

An exhaustive library of informational materials on worldwide developments in spondylitis,
A state by state locator to search for a rheumatologist.
Accessibility Information
Specialized Information and Referral
Support Groups

Source: Nationwide Suggest Providers Queue
Last Updated: 8/31/2020
Nationwide Provider
PO Box 1102
Olney, MD 20830
Nationwide Provider
Address:
PO Box 1102
Olney, MD 20830
Toll Free Phone: 877-588-7904
Fax: 630-604-6078
Email: thyca@thyca.org
Languages Spoken: Spanish
Eligibility:

Thyroid cancer patients, survivors, caregivers and medical professionals.

Services Provided:

Provides current information about thyroid cancer and support services available to people at any stage of testing, treatment, or lifelong monitoring for thyroid cancer, as well as their caregivers. Receives ongoing input and review from numerous thyroid cancer specialists.

COVID-19 UPDATE: Some groups are being held virtually; please call or visit website to verify.

  • Internet Information Resources
  • Specialized Information and Referral
  • Health/Disability Related Support Groups
Source: Nationwide Suggest Providers Queue
Last Updated: 6/3/2021
Nationwide Provider
300 Rosewood Drive Suite 105
Danvers, MA 01923
Phone: 978-463-5843
Nationwide Provider
Address:
300 Rosewood Drive Suite 105
Danvers, MA 01923
Phone: 978-463-5843
Fax: 978-463-5809
Eligibility: Those affected by scleroderma and their families.
Services Provided: Raise funds and awareness for support, education and research.
Provides educational and emotional support, stimulates and support research designed to identify the cause and cure for scleroderma, and improve methods of treatment; and enhances the public's awareness of this disease.
Chapters and Support Groups may be located in Resources.
Source: Nationwide Suggest Providers Queue
Last Updated: 1/9/2020
Nationwide Provider
7918 Jones Branch Drive Ste 300
Mc Lean, VA 22102
Phone: 703-556-7172
Nationwide Provider
Address:
7918 Jones Branch Drive Ste 300
Mc Lean, VA 22102
Phone: 703-556-7172
Toll Free Phone: 866-668-2566
Fax: 703-506-3266
Email: info@resolve.org
Languages Spoken: Translation services available
Services Provided: Improving the lives of women and men living with the disease of infertility by providing free support to anyone in need, advocating for increased access to all family building options, and reducing the stigma of this disease through information, public education and advocacy.COVID-19 Update: Until further notice, support groups will not meet in person. Support Group hosts will use virtual options like Google Hangout or Zoom. Visit website for more information.

  • Infertility Support Groups
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
MA
Nationwide Provider
Organization Name: Boston Children's Hospital
(Show others in Organization)
Address:
MA
Email: vaccine@healthmap.org
Services Provided:

General vaccine information and finder.

FAQs about vaccines, including general vaccine safety, and specific vaccines.

Find Vaccine: Locate vaccines by type and location. Call first to schedule an appointment and verify vaccine supplies.

Provider Profiles:

Project of:

  • Boston Children's Hospital
  • Centers for Disease Control and Prevention (CDC)
  • Harvard Medical School
  • HealthMap
Source: MHP-Nationwide
Last Updated: 11/16/2020
Nationwide Provider
716 Soquel Avenue, Suite A
Santa Cruz, CA 95062
Phone: 831-457-1004
Nationwide Provider
Address:
716 Soquel Avenue, Suite A
Santa Cruz, CA 95062
Phone: 831-457-1004
Fax: 831-427-5541
Email: info@bfrb.org
Services Provided:

Provides and online resources for coping with body-focused repetitive behaviors (like hair pulling and skin picking). Website is designed for those with these behaviors, family members, medical and mental health professionals, and others interested in learning about this often-misunderstood disorder.

Services Include:

  • Specialized Information and Referral
  • Therapist Directory
  • Support Group
Source: Nationwide Suggest Providers Queue
Last Updated: 2/19/2021
Nationwide Provider
PO Box 524
Crown Point, IN 46308
Phone: 219-789-9874
Nationwide Provider
Address:
PO Box 524
Crown Point, IN 46308
Phone: 219-789-9874
Toll Free Phone: 800-328-8476
Email: info@aspergersyndrome.org
Services Provided:

An online-only resource for families and medical professionals who deal with the challenges of Asperger Syndrome, Autism, and Pervasive Developmental Disorder / Not Otherwise Specified. (PDD/NOS)

  • Health/Disability Related Support Groups
  • Specialized Information and Referral
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
901 Moorefield Park Drive, Suite 100
Richmond, VA 23236
Phone: 804-327-1111
Nationwide Provider
Address:
901 Moorefield Park Drive, Suite 100
Richmond, VA 23236
Phone: 804-327-1111
Email: info@caregiverslibrary.com
Eligibility:

Caregivers, seniors and employers

Services Provided:

The National Caregivers Library contains online information and resources to assist caregivers and seniors with useful forms, checklists, and topic-specific external resources. The resources are made available at no cost through alliances with professionals, businesses, and other agencies serving seniors and their caregivers with a variety of services.

  • Specialized Information and Referral
Provider Profiles:

Internet resource

Source: Nationwide Suggest Providers Queue
Last Updated: 6/2/2021
Nationwide Provider
Organization Name: American Bar Association
(Show others in Organization)
Address:
321 North Clark Street
Chicago, IL 60654
Toll Free Phone: 800-285-2221
Email: Service@americanbar.org
Services Provided:

Improves the health and well-being of vulnerable populations in partnership with the medical community through the work of volunteer attorneys.

Local programs can be identified using Directory of Programs.

Source: MHP-Nationwide
Last Updated: 4/22/2022
Nationwide Provider
Phone: 800-273-8255
Nationwide Provider
Address:
Phone: 800-273-8255
Toll Free Phone: 800-273-8255
Email: infonrd.osd@mail.mil
Services Provided: The National Resource Directory (NRD) is a web portal that connects wounded warriors, current service members, veterans, their families and caregivers to programs and support services. The website provides access and information to resources at the national, state, and local levels to support recovery, rehabilitation, and community reintegration, including the National Call Center for Homeless Veterans, Military Crisis Line, Wounded Warrior Resource Center, VA Benefits, and the VA Caregiver Support Line.COVID-19 Update: following all CDC and state guidelines.

  • Veteran Benefits Assistance
  • Specialized Information and Referral
  • Veteran Reintegration Counseling
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022