Disease/Disability Information

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Programs that provide information about the causes and origins, preventive measures, symptoms, screening/diagnostic procedures, and/or methods of treatment or management including the latest research for specific illnesses or disabling conditions. (AIRS LH-2700-1700)

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Disclaimer
Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

Service Legend
Local Service
Statewide Service: Provides online resources, telehealth, or service at a satellite office.
Nationwide Service: Provides online resources, telehealth or services at a regional/national headquarters location.
Statewide Provider
Rhode Island College
600 Mount Pleasant Avenue
Providence, RI 02908
Phone: 401-456-8072
Statewide Provider
Address:
Rhode Island College
600 Mount Pleasant Avenue
Providence, RI 02908
Phone: 401-456-8072
TDD: 800-745-5555
Fax: 401-456-8150
Languages Spoken: Spanish via RI Relay 711 or (866) 355-9241
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 3/2/2022
Statewide Provider
1516 Atwood Avenue
Johnston, RI 02919
Phone: 401-785-2666
Statewide Provider
Organization Name: The Autism Project
(Show others in Organization)
Address:
1516 Atwood Avenue
Johnston, RI 02919
Phone: 401-785-2666
Fax: 401-785-2272
Wheelchair Access: Yes
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 1/10/2023
Coro W office 2048
593 Eddy Street
Providence, RI 02903
Phone: 401-444-7563
Organization Name: Hasbro Children's Hospital
(Show others in Organization)
Address:
Coro W office 2048
593 Eddy Street
Providence, RI 02903
Phone: 401-444-7563
Fax: 401-444-7563
Email: TALCProgram@gmail.com
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 1/7/2022
Potter Building
593 Eddy Street
Providence, RI 02903
Phone: 401-444-8638
Organization Name: Hasbro Children's Hospital
(Show others in Organization)
Address:
Potter Building
593 Eddy Street
Providence, RI 02903
Phone: 401-444-8638
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 6/2/2021
Hasbro Hospital Lower Level
593 Eddy Street
Providence, RI 02903
Phone: 401-444-6540
Organization Name: Hasbro Children's Hospital
(Show others in Organization)
Address:
Hasbro Hospital Lower Level
593 Eddy Street
Providence, RI 02903
Phone: 401-444-6540
Fax: 401-444-6543
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 4/18/2022
Outpatient Services
1011 Veterans Memorial Parkway
East Providence, RI 02915
Phone: 401-432-1119
Organization Name: Bradley Hospital
(Show others in Organization)
Address:
Outpatient Services
1011 Veterans Memorial Parkway
East Providence, RI 02915
Phone: 401-432-1119
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 5/31/2022
Nationwide Provider
141 Northwest Point Blvd
Elk Grove Village, IL 60007-1098
Phone: 847-434-4000
Nationwide Provider
Address:
141 Northwest Point Blvd
Elk Grove Village, IL 60007-1098
Phone: 847-434-4000
Fax: 847-434-8000
Source: MHP-Nationwide
Last Updated: 12/30/2022
Nationwide Provider
1 Communication Avenue
Bethesda, MD 20892
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
1 Communication Avenue
Bethesda, MD 20892
TDD: 800-241-1055
Email: nidcdinfo@nidcd.nih.gov
Source: MHP-Nationwide
Last Updated: 3/1/2023
Nationwide Provider
42-40 Bell Boulevard, Suite 205
Bayside, NY 11361-2820
Phone: 718-224-2999
Nationwide Provider
Address:
42-40 Bell Boulevard, Suite 205
Bayside, NY 11361-2820
Phone: 718-224-2999
Toll Free Phone: 888-486-8738
Fax: 718-279-9596
Email: support@tourette.org
Source: MHP-Nationwide
Last Updated: 9/14/2022
Nationwide Provider
55 East Jackson Boulevard, Suite 490
Chicago, IL 60604
Phone: 800-826-3632
Nationwide Provider
Address:
55 East Jackson Boulevard, Suite 490
Chicago, IL 60604
Phone: 800-826-3632
Toll Free Phone: 800-826-3632
Fax: 312-642-7243
Source: MHP-Nationwide
Last Updated: 1/25/2023
Nationwide Provider
555 E. Wells Street, Suite 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Nationwide Provider
Address:
555 E. Wells Street, Suite 1100
Milwaukee, WI 53202
Phone: 414-918-3014
Fax: 414-276-2146
Email: info@aacpdm.org
Source: MHP-Nationwide
Last Updated: 12/30/2022
Nationwide Provider
PO Box 151
Deerfield, IL 60015
Nationwide Provider
Address:
PO Box 151
Deerfield, IL 60015
Toll Free Phone: 877-720-2192
Email: paf@pafoundation.com
Source: MHP-Nationwide
Last Updated: 1/30/2023
Nationwide Provider
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Nationwide Provider
Address:
4550 Montgomery Avenue, Suite 1100 N
Bethesda, MD 20814
Phone: 301-951-4422
Toll Free Phone: 800-344-4823
Fax: 301-951-6378
Source: MHP-Nationwide
Last Updated: 11/24/2022
Nationwide Provider
5655 South Yosemite Street, Suite 305
Greenwood Village, CO 80111
Phone: 303-794-1182
Nationwide Provider
Address:
5655 South Yosemite Street, Suite 305
Greenwood Village, CO 80111
Phone: 303-794-1182
Source: MHP-Nationwide
Last Updated: 1/30/2023
Nationwide Provider
108 NE 2nd St
PO Box 510
Concordia, MO 64020
Phone: 660-463-1355
Nationwide Provider
Address:
108 NE 2nd St
PO Box 510
Concordia, MO 64020
Phone: 660-463-1355
Toll Free Phone: 866-303-2279
Fax: 660-463-1356
Email: info@fabry.org
Source: MHP-Nationwide
Last Updated: 1/23/2023
Nationwide Provider
7240 Parkway Drive, Suite 180
Hanover, MD 21076
Phone: 410-528-1555
Nationwide Provider
Address:
7240 Parkway Drive, Suite 180
Hanover, MD 21076
Phone: 410-528-1555
Toll Free Phone: 800-421-8453
Fax: 410-528-1495
Email: admin@sicklecelldisease.org
Source: MHP-Nationwide
Last Updated: 8/29/2022
Nationwide Provider
6728 Old McClean Village Dr
Mclean, VA 22101
Phone: 703-718-6038
Nationwide Provider
Address:
6728 Old McClean Village Dr
Mclean, VA 22101
Phone: 703-718-6038
Email: info@pedsendo.org
Source: MHP-Nationwide
Last Updated: 5/9/2022
Nationwide Provider
3540 Crain Highway, Suite 675
Bowie, MD 20716
Phone: 866-748-8008
Nationwide Provider
Address:
3540 Crain Highway, Suite 675
Bowie, MD 20716
Phone: 866-748-8008
Toll Free Phone: 800-332-1000
Fax: 301-731-3868
Email: contactus@efa.org
Source: Nationwide Suggest Providers Queue
Last Updated: 11/6/2023
Nationwide Provider
PO Box 41514
Minneapolis, MN 55441
Phone: 800-328-8602
Nationwide Provider
Address:
PO Box 41514
Minneapolis, MN 55441
Phone: 800-328-8602
Toll Free Phone: 866-354-3254
Fax: 952-828-6900
Email: info@starkeyfoundation.org
Source: Nationwide Suggest Providers Queue
Last Updated: 11/30/2022
Nationwide Provider
110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Nationwide Provider
Address:
110 West Road Ste 300
Towson, MD 21204
Phone: 800-296-4433
Fax: 410-321-9165
Email: frontdesk@primaryimmune.org
Source: MHP-Nationwide
Last Updated: 2/9/2023
Nationwide Provider
1600 Clifton Road
Atlanta, GA 30329
Phone: 800-232-4636
Nationwide Provider
Address:
1600 Clifton Road
Atlanta, GA 30329
Phone: 800-232-4636
TDD: 888-232-6348
Source: MHP-Nationwide
Last Updated: 11/6/2023
Nationwide Provider
9609 Medical Center Drive
Rockville, MD 20850
Phone: 800-422-6237
Nationwide Provider
Address:
9609 Medical Center Drive
Rockville, MD 20850
Phone: 800-422-6237
Email: nciinfo@nuh.gov
Wheelchair Access: Complete
Languages Spoken: Spanish
Source: Nationwide Suggest Providers Queue
Last Updated: 2/9/2023
Nationwide Provider
PO Box 5930
Midlothian, VA 23112
Nationwide Provider
Address:
PO Box 5930
Midlothian, VA 23112
Toll Free Phone: 800-366-7741
Fax: 804-744-9388
Languages Spoken: Spanish; other language interpreters available
Source: MHP-Nationwide
Last Updated: 2/9/2023
Nationwide Provider
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747
TDD: 866-569-1162
Email: healthinfo@niddk.nih.gov
Source: Nationwide Suggest Providers Queue
Last Updated: 3/1/2023
Nationwide Provider
2121 K Street NW Ste 200
Washington, DC 20037
Phone: 202-349-1155
Nationwide Provider
Address:
2121 K Street NW Ste 200
Washington, DC 20037
Phone: 202-349-1155
Fax: 202-349-1156
Email: info@lupus.org
Languages Spoken: Spanish
Source: MHP-Nationwide
Last Updated: 2/9/2023
Nationwide Provider
7272 Greenville Avenue
Dallas, TX 75231
Phone: 800-242-8721
Nationwide Provider
Address:
7272 Greenville Avenue
Dallas, TX 75231
Phone: 800-242-8721
Toll Free Phone: 888-242-2453
Source: Nationwide Suggest Providers Queue
Last Updated: 1/23/2023
Nationwide Provider
6520 North Andrews Avenue
Fort Lauderdale, FL 33309-2132
Nationwide Provider
Address:
6520 North Andrews Avenue
Fort Lauderdale, FL 33309-2132
Toll Free Phone: 800-225-6495
Wheelchair Access: Ramps
Source: Nationwide Suggest Providers Queue
Last Updated: 9/10/2022
Nationwide Provider
250 Williams Street NW
PO Box 22478 | Oklahoma City | OK 73123
Atlanta, GA 30303
Phone: 800-227-2345
Nationwide Provider
Address:
250 Williams Street NW
PO Box 22478 | Oklahoma City | OK 73123
Atlanta, GA 30303
Phone: 800-227-2345
Toll Free Phone: 800-227-2345
Source: Nationwide Suggest Providers Queue
Last Updated: 4/7/2022
Nationwide Provider
6110 Executive Boulevard, Suite 305
Rockville, MD 20852
Phone: 301-657-0881
Nationwide Provider
Address:
6110 Executive Boulevard, Suite 305
Rockville, MD 20852
Phone: 301-657-0881
Toll Free Phone: 800-328-8476
Email: info@autism-society.org
Source: Nationwide Suggest Providers Queue
Last Updated: 4/14/2022
Nationwide Provider
375 Kings Highway North
Cherry Hill, NJ 08034
Nationwide Provider
Address:
375 Kings Highway North
Cherry Hill, NJ 08034
Toll Free Phone: 800-532-7667
Fax: 856-661-9797
Email: msaa@mymsaa.org
Source: Nationwide Suggest Providers Queue
Last Updated: 4/25/2022
Nationwide Provider
7 Penn Plaza, Suite 1204
New York, NY 10001
Phone: 212-328-3700
Nationwide Provider
Address:
7 Penn Plaza, Suite 1204
New York, NY 10001
Phone: 212-328-3700
Toll Free Phone: 800-424-2634
Fax: 212-328-3777
Email: handi@hemophilia.org
Wheelchair Access: Not Applicable
Source: Nationwide Suggest Providers Queue
Last Updated: 1/26/2023
Nationwide Provider
PO Box 659
Paoli, PA 19301
Phone: 888-999-9428
Nationwide Provider
Address:
PO Box 659
Paoli, PA 19301
Phone: 888-999-9428
Toll Free Phone: 267-338-4262
Email: helpline@genetic.org
Source: MHP-Nationwide
Last Updated: 1/25/2023
Nationwide Provider
PO Box 11749
Memphis, TN 38111
Phone: 901-761-0343
Nationwide Provider
Address:
PO Box 11749
Memphis, TN 38111
Phone: 901-761-0343
Toll Free Phone: 800-992-9392
Fax: 901-761-0484
Email: info@stutteringhelp.org
Source: Nationwide Suggest Providers Queue
Last Updated: 3/5/2023
JDRF View on Map
Nationwide Provider
200 Vesey Street, 28th Floor
New York, NY 10281
Nationwide Provider
Address:
200 Vesey Street, 28th Floor
New York, NY 10281
Toll Free Phone: 800-533-2873
Email: info@jdrf.org
Source: Nationwide Suggest Providers Queue
Last Updated: 6/30/2022
Nationwide Provider
31 Center Drive, MSC 2510
Bethesda, MD 20892-2510
Phone: 301-496-5248
Nationwide Provider
Organization Name: National Institutes of Health
(Show others in Organization)
Address:
31 Center Drive, MSC 2510
Bethesda, MD 20892-2510
Phone: 301-496-5248
Email: 2020@nei.nih.gov
Source: Nationwide Suggest Providers Queue
Last Updated: 3/1/2023
Nationwide Provider
4656 Winding Oak Drive
Delaware, OH 43015
Phone: 740-972-5619
Nationwide Provider
Address:
4656 Winding Oak Drive
Delaware, OH 43015
Phone: 740-972-5619
Source: Nationwide Suggest Providers Queue
Last Updated: 3/3/2023
Nationwide Provider
PO Box 7762
Wilmington, DE 19803
Nationwide Provider
Address:
PO Box 7762
Wilmington, DE 19803
Email: info@stopchildhoodpain.org
Source: MHP-Nationwide
Last Updated: 3/2/2023
Nationwide Provider
108 West 39th Street, Suite 805
New York, NY 10018
Phone: 212-417-9700
Nationwide Provider
Address:
108 West 39th Street, Suite 805
New York, NY 10018
Phone: 212-417-9700
Toll Free Phone: 888-762-8475
Email: customerservices@additudemag.com
Source: Nationwide Suggest Providers Queue
Last Updated: 5/9/2022
Understood View on Map
Nationwide Provider
96 Morton Street, Floor 5
New York, NY 10014
Nationwide Provider
Address:
96 Morton Street, Floor 5
New York, NY 10014
Source: Nationwide Suggest Providers Queue
Last Updated: 2/16/2023
Nationwide Provider
39252 Winchester Road, #107-135
Murrieta, CA 92563
Phone: 918-490-3055
Nationwide Provider
Address:
39252 Winchester Road, #107-135
Murrieta, CA 92563
Phone: 918-490-3055
Source: MHP-Nationwide
Last Updated: 2/2/2023
Nationwide Provider
PO Box 54
Okemos, MI 48805-0054
Phone: 517-381-1940
Nationwide Provider
Address:
PO Box 54
Okemos, MI 48805-0054
Phone: 517-381-1940
Fax: 866-290-5206
Source: MHP-Nationwide
Last Updated: 2/2/2023
Nationwide Provider
15 South Mallory Avenue
Batavia, IL 60510
Phone: 630-360-2087
Nationwide Provider
Address:
15 South Mallory Avenue
Batavia, IL 60510
Phone: 630-360-2087
Email: info@hcunetworkamerica.org
Source: MHP-Nationwide
Last Updated: 2/2/2023
Nationwide Provider
954 Lexington Avenue, #269
New York, NY 10021
Phone: 715-495-4008
Nationwide Provider
Address:
954 Lexington Avenue, #269
New York, NY 10021
Phone: 715-495-4008
Email: info@npkua.org
Source: MHP-Nationwide
Last Updated: 2/2/2023
Nationwide Provider
75 South Grand Avenue
Pasadena, CA 91105
Phone: 626-578-0833
Nationwide Provider
Address:
75 South Grand Avenue
Pasadena, CA 91105
Phone: 626-578-0833
Toll Free Phone: 800-386-8233
Fax: 626-578-0823
Email: info@nucdf.org
Source: MHP-Nationwide
Last Updated: 2/14/2023
Nationwide Provider
P.O. Box 424049
Washington, DC 20042-4049
Phone: 800-634-8978
Nationwide Provider
Address:
P.O. Box 424049
Washington, DC 20042-4049
Phone: 800-634-8978
Toll Free Phone: 800-634-8978
Source: Nationwide Suggest Providers Queue
Last Updated: 8/30/2022
Nationwide Provider
P.O. Box 961029
Boston, MA 02196
Phone: 617-973-5801
Nationwide Provider
Address:
P.O. Box 961029
Boston, MA 02196
Phone: 617-973-5801
Source: MHP-Nationwide
Last Updated: 4/22/2022
Nationwide Provider
Organization Name: Center for Disease Control and Prevention
(Show others in Organization)
Address:
1600 Clifton Road
Atlanta, GA 30329
Toll Free Phone: 800-232-4636
Source: Nationwide Suggest Providers Queue
Last Updated: 12/29/2022
Nationwide Provider
198 Madison Avenue
New York, NY 10016
Nationwide Provider
Address:
198 Madison Avenue
New York, NY 10016
Email: info@rubinetwork.org
Source: MHP-Nationwide
Last Updated: 3/5/2023
Nationwide Provider
408 W Sussex Avenue
Missoula, MT 59801
Phone: 406-546-7380
Nationwide Provider
Address:
408 W Sussex Avenue
Missoula, MT 59801
Phone: 406-546-7380
Email: info@posture24-7.org
Source: Nationwide Suggest Providers Queue
Last Updated: 9/25/2022