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Observational and interventional medical research programs that are currently looking for patients with specific diseases or conditions or related health profiles who are willing to volunteer to help determine the safety, effectiveness, dosage requirements and side effects of new drugs, medical products or techniques. (AIRS LT-1530.1550)

RI-CART RI Consortium for Autism Research & Treatment View on Map

Bradley Hospital
1011 Veterans Memorial Parkway
East Providence, RI 02915
Phone: 401-432-1200

Service Categories:

www.autismri.org

Address:

Bradley Hospital

1011 Veterans Memorial Parkway

East Providence, RI 02915

Phone: 401-432-1200

Service Categories:

Email: RICART@Lifespan.org

URL: http://www.autismri.org

Eligibility: Children and adults

Services Provided: Please note that RI-CART does not make formal diagnoses. However, participants can request a summary of the results from the ADOS assessment to share with their physicians, schools and other providers.

When you participate you’ll receive:

• The Autism Diagnostic Observation Schedule (ADOS) — the “gold standard” autism assessment.

• A one-on-one call with a parent resource specialist from The Autism Project, a Rhode Island support organization, to help answer questions and learn about local resources.

• Our resource guide that helps individuals and families of children with ASD navigate the medical, educational, and transitional supports available throughout the state.

• Regular updates from RI-CART on upcoming studies and programs in which you can participate, as well as information on findings, resources and interventions from leading autism groups nationwide

Provider Profiles: We are working to improve the lives of Rhode Islanders with autism spectrum disorder and related neurodevelopmental disorders by promoting collaborative, cutting-edge research, improving health care and support services, and providing data-driven education and advocacy. We’re a community of families and individuals, researchers, clinicians, educators, and local agencies focused on both today’s and future generations.

We’re accelerating and advancing research and building a community of support. By connecting and coming together as a community, we are able to help advance science while at the same time bringing a new voice to the thousands of Rhode Islanders affected by ASD.

The need is real. There are enough people with ASD and related disorders in Rhode Island to fill the PawSox’s McCoy Stadium. That’s some 10,000 people.

Source:	Rhode Island Dept of Health, Office of Special Needs
Last Updated:	8/30/2018

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Pancreatic Cancer Action Network View on Map

1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
Phone: 310-725-0025

Service Categories:

www.pancan.org/

Address:

1500 Rosecrans Avenue, Suite 200

Manhattan Beach, CA 90266

Phone: 310-725-0025

Toll Free Phone: 877-573-9971

Fax: 310-725-0029

Service Categories:

Email: info@pancan.org

URL: https://www.pancan.org/

Eligibility: Cancer patients, survivors, and their families

Services Provided: Provides research, patient support, community outreach, and government advocacy. Raises money for direct private funding of research. Supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. The programs aims to create a sense of hope and community so no one has to face pancreatic cancer alone.

Specialized Information and Referral
Clinical Trials
Disease/Disability Information

Source:	Nationwide Suggest Providers Queue
Last Updated:	10/15/2020

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SPARK Autism Research, Simons Foundation View on Map

PO Box 1806
New York, NY 10159

Service Categories:

www.sparkforautism.org/

Organization Name: Simons Foundation
(Show others in Organization)

Address:

PO Box 1806

New York, NY 10159

Service Categories:

Email: info@SPARKforAutism.org

URL: https://www.sparkforautism.org/

Services Provided: SPARK works with research partners from all over the world to engage families and adults with autism in research studies. All of the studies are evaluated for scientific merit, and a SPARK scientific committee approves them. SPARK matches participants with research studies based on characteristics such as age, diagnosis, medical history, location and more. Some of these studies are online, and some are in person.

SPARK does not share any information with researchers until participants give their permission. Participants in SPARK are always in control.

Provider Profiles: Simons Foundation Powering Autism Research for Knowledge (SPARK)

Source:	MHP-Nationwide
Last Updated:	1/6/2020

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National Institute of Diabetes and Digestive and Kidney Diseases, National Institutes of Health View on Map

3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747

Service Categories:

www.niddk.nih.gov/

Organization Name: National Institutes of Health
(Show others in Organization)

Address:

3 Information Way

Bethesda, MD 20892-3580

Phone: 800-860-8747

TDD: 866-569-1162

Service Categories:

Email: healthinfo@niddk.nih.gov

URL: https://www.niddk.nih.gov/

Eligibility: Contact for specific information.

Services Provided:

NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.

Source:	Nationwide Suggest Providers Queue
Last Updated:	9/18/2020

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The Spinal Cord Injury Project Rutgers University View on Map

604 Allison Road D-251
Piscataway, NJ 08854
Phone: 848-445-9553

Service Categories:

keck.rutgers.edu/

Address:

604 Allison Road D-251

Piscataway, NJ 08854

Phone: 848-445-9553

Fax: 732-445-2063

Service Categories:

URL: https://keck.rutgers.edu/

Services Provided: Seeks the rapid movement of therapies from laboratory to clinical trial. This includes research to test and confirm the efficacy and safety of promising therapies, training of laboratories to do spinal cord injury research and animal care, and community outreach/education. Home of Wise Young and the CareCure community.

Clinical Trials Research Projects

Source:	Nationwide Suggest Providers Queue
Last Updated:	8/12/2019

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Cure SMA View on Map

925 Busse Road
Elk Grove Village, IL 60007
Phone: 800-886-1762

Service Categories:

www.curesma.org/

Address:

925 Busse Road

Elk Grove Village, IL 60007

Phone: 800-886-1762

Toll Free Phone: 800-886-1762

Service Categories:

Email: info@curesma.org

URL: https://www.curesma.org/

Eligibility: Individuals with spinal muscular atrophy (SMA)

Services Provided: Funds and directs comprehensive research that drives breakthroughs in treatment and care, and provides families the support they need. Local and national programs. An equipment pool loans medical equipment free of charge. Annual conference.

Web-based location finder for support in your area.

Source:	MHP-Nationwide
Last Updated:	9/25/2019

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