Clinical Trials Research

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Observational and interventional medical research programs that are currently looking for patients with specific diseases or conditions or related health profiles who are willing to volunteer to help determine the safety, effectiveness, dosage requirements and side effects of new drugs, medical products or techniques. (AIRS LT-1530.1550)

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Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

RI (1)

East Providence (1)

Nationwide (5)

RI

East Providence, RI

RI-CART RI Consortium for Autism Research & Treatment

Bradley Hospital
1011 Veterans Memorial Parkway
East Providence, RI 02915
Phone: 401-432-1200

Service Categories:

www.autismri.org

Address: Bradley Hospital
1011 Veterans Memorial Parkway
East Providence, RI 02915

Phone: 401-432-1200

Service Categories:

Email: RICART@Lifespan.org

URL: http://www.autismri.org

Eligibility: Children and adults

Services Provided: Please note that RI-CART does not make formal diagnoses. However, participants can request a summary of the results from the ADOS assessment to share with their physicians, schools and other providers.

When you participate you’ll receive:

• The Autism Diagnostic Observation Schedule (ADOS) — the “gold standard” autism assessment.

• A one-on-one call with a parent resource specialist from The Autism Project, a Rhode Island support organization, to help answer questions and learn about local resources.

• Our resource guide that helps individuals and families of children with ASD navigate the medical, educational, and transitional supports available throughout the state.

• Regular updates from RI-CART on upcoming studies and programs in which you can participate, as well as information on findings, resources and interventions from leading autism groups nationwide

Provider Profiles: We are working to improve the lives of Rhode Islanders with autism spectrum disorder and related neurodevelopmental disorders by promoting collaborative, cutting-edge research, improving health care and support services, and providing data-driven education and advocacy. We’re a community of families and individuals, researchers, clinicians, educators, and local agencies focused on both today’s and future generations.

We’re accelerating and advancing research and building a community of support. By connecting and coming together as a community, we are able to help advance science while at the same time bringing a new voice to the thousands of Rhode Islanders affected by ASD.

The need is real. There are enough people with ASD and related disorders in Rhode Island to fill the PawSox’s McCoy Stadium. That’s some 10,000 people.

Original Source:	Rhode Island Dept of Health, Office of Special Needs
Last Updated:	8/30/2018

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Nationwide

Cure SMA

925 Busse Road
Elk Grove Village, IL 60007
Phone: 800-886-1762

Service Categories:

www.curesma.org/

Address: 925 Busse Road
Elk Grove Village, IL 60007

Phone: 800-886-1762

Toll Free Phone: 800-886-1762

Service Categories:

Email: info@curesma.org

URL: https://www.curesma.org/

Eligibility: Individuals with spinal muscular atrophy (SMA)

Services Provided: Funds and directs comprehensive research that drives breakthroughs in treatment and care, and provides families the support they need. Local and national programs. An equipment pool loans medical equipment free of charge. Annual conference.

Web-based location finder for support in your area.

Original Source:	MHP-Nationwide
Last Updated:	9/25/2019

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National Institute of Diabetes and Digestive and Kidney Diseases

3 Information Way
Bethesda, MD 20892-3580
Phone: 800-860-8747

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www.niddk.nih.gov/

Address: 3 Information Way
Bethesda, MD 20892-3580

Phone: 800-860-8747

TDD: 866-569-1162

Service Categories:

Email: healthinfo@niddk.nih.gov

URL: https://www.niddk.nih.gov/

Eligibility: Contact for specific information.

Services Provided: NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation. Offers clinical trials, financial assistance for researchers, health information, and publications.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	7/30/2019

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Pancreatic Cancer Action Network

1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266
Phone: 310-725-0025

Service Categories:

www.pancan.org

Address: 1500 Rosecrans Avenue, Suite 200
Manhattan Beach, CA 90266

Phone: 310-725-0025

Toll Free Phone: 877-573-9971

Service Categories:

Email: info@pancan.org

URL: http://www.pancan.org

Eligibility: Cancer patients, survivors, and their families

Services Provided: Provides research, patient support, community outreach and government advocacy. Raises money for direct private funding of research. Supports individuals and communities all across the country in working together to raise awareness and funds to develop more effective treatment options for better patient outcomes. We create a sense of hope and community so no one has to face pancreatic cancer alone.

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	7/23/2019

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SPARK Autism Research, Simons Foundation

PO Box 1806
New York, NY 10159

Service Categories:

www.SPARKforautism.org/utah

Organization Name: Simons Foundation
(Show others in Organization)

Address: PO Box 1806
New York, NY 10159

Service Categories:

Email: info@SPARKforAutism.org

URL: http://www.SPARKforautism.org/utah

Services Provided: SPARK works with research partners from all over the world to engage families and adults with autism in research studies. All of the studies are evaluated for scientific merit, and a SPARK scientific committee approves them. SPARK matches participants with research studies based on characteristics such as age, diagnosis, medical history, location and more. Some of these studies are online, and some are in person.

SPARK does not share any information with researchers until participants give their permission. Participants in SPARK are always in control.

Provider Profiles: Simons Foundation Powering Autism Research for Knowledge (SPARK)

Original Source:	MHP-Nationwide
Last Updated:	10/18/2019

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The Spinal Cord Injury Project Rutgers University

604 Allison Road D-251
Piscataway, NJ 08854
Phone: 848-445-9553

Service Categories:

keck.rutgers.edu/

Address: 604 Allison Road D-251
Piscataway, NJ 08854

Phone: 848-445-9553

Service Categories:

URL: https://keck.rutgers.edu/

Services Provided: Seeks the rapid movement of therapies from laboratory to clinical trial. This includes research to test and confirm the efficacy and safety of promising therapies, training of laboratories to do spinal cord injury research and animal care, and community outreach/education. Home of Wise Young and the CareCure community.

Clinical Trials Research Projects

Original Source:	Nationwide Suggest Providers Queue
Last Updated:	8/12/2019

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