Camps for Children with Special Needs

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Residential or day camp facilities that are appropriately staffed and equipped to provide an opportunity for children or adults who have developmental disabilities, emotional disturbances or health impairments, or who have other limitations or problems which require special facilities or programming, to enjoy a cooperative indoor and/or outdoor living experience. (AIRS PL-6400.1500-850)

1516 Atwood Avenue
Johnston, RI 02919
Phone: 401-785-2666
Service Categories:
Organization Name: The Autism Project
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Address:
1516 Atwood Avenue
Johnston, RI 02919
Phone: 401-785-2666
Fax: 401-785-2272
Wheelchair Access: Yes
Eligibility:

All are welcome.

Services Provided:
  • Professional Training Program, classroom and individual consultation
  • Parent Education Series and Support
  • Grandparent Support Groups
  • Social Skill Groups
  • Respite Information
  • Summer Camp WANNAGOAGAIN
  • Advocacy
Provider Profiles:

The Autism Project is a ‘Hub of Hope’ that connects people—with a spectrum of needs—to the available resources and education that support independent and purposeful lives.
Autism Project
1516 Atwood Avenue
Johnston, RI 02919

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 4/22/2021
Administrative Office
555 Long Wharf Drive
New Haven, CT 06511
Phone: 203-772-0522
Service Categories:
Address:
Administrative Office
555 Long Wharf Drive
New Haven, CT 06511
Phone: 203-772-0522
Eligibility:

a variety of incredible camp programs for children with a serious illness and their families at no cost to the families.

Services Provided:

Tour the camp Link

Summer camp Link

Hero's Journey (teens) Link

Leader's in Training Program for former campers ages 17-19 Link

Weekend Programs

Parent Programs

Provider Profiles:

The Hole in the Wall Gang Camp is dedicated to providing “a different kind of healing” to seriously ill children and their families throughout the Northeast, free of charge. It’s a community that celebrates the fun, friendship and spirit of childhood, where every kid can “raise a little hell.”

Held at the Camp’s facility in Ashford, Connecticut, Camp’s signature summer
program consists of seven, weeklong sessions for seriously ill children aged 7-15, and one session for their siblings

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 5/17/2021
P.O. Box 1357
Vineyard Haven, MA 02568
Phone: 508-560-8450
Service Categories:
Address:
P.O. Box 1357
Vineyard Haven, MA 02568
Phone: 508-560-8450
Email: info@campjabberwocky.org
Wheelchair Access: non electric wheelchairs
Eligibility: children through adults
Services Provided: Summer Camp- Campers stay between one and four weeks during which they enjoy activities and classes on campus and out and about in the community of Martha’s Vineyard.
Family Camp-Camp Jabberwocky provides families with a child with disabilities the opportunity to participate in camp for a long weekend at our Family Camp!
Provider Profiles: At Jabberwocky, people with different abilities form the majority in the community. Their needs become priority needs; their concerns become concerns. And in this age, when cultural and individual sense of belonging is waning, a community that works is a light of hope.


The goal and purpose of Family Camp weekend is to share the love and joy of Camp Jabberwocky.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 3/13/2019
ASTRO View on Map
120 Webster Street
Pawtucket, RI 02861
Phone: 401-255-2911
Service Categories:
Address:
120 Webster Street
Pawtucket, RI 02861
Phone: 401-255-2911
Email: astrocurricular@gmail.com
Services Provided:

ASTRO Academy Adults

ASTRO Academy Youth

Advanced Coursework Network ACN

Summer Camps link

Mentoring 

Group Therapy

Adult Daycare

Translation Services 

Provider Profiles:

ASTRO stands for Arts, Sports, Technology and Resource Organization.

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 4/22/2021
Camp Alsing View on Map
81 Brighton Avenue
Portland, ME 04102
Phone: 207-805-4155
Service Categories:
Address:
81 Brighton Avenue
Portland, ME 04102
Phone: 207-805-4155
Email: emily@campalsing.com
Eligibility: High-Functioning Autism, Asperger’s Syndrome or other social communication challenges.
Services Provided: Camp Alsing, located in Unity, ME, is a premier co-ed residential summer camp for children with High-Functioning Autism, Asperger’s Syndrome or other social communication challenges.
Camp Alsing’s specially trained staff guide children, ages 9-17, to develop connections and expand their boundaries in a traditional camp setting.

At Camp Alsing, we help your child explore, grow, and soar.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 3/5/2019
RI
Service Categories:
Organization Name: Episcopal Diocese of Rhode Island
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Address:
RI
Email: director@eccri.org
Eligibility: * Campers with some special needs have been part of our regular sessions for years, and are still invited to participate as they have before. This camp is designed for young people who might not able to attend a regular camp session.
Services Provided: Bridge Camp:
Helper Campers entering grades 9-12 June 29 - July 3 (Monday - Friday) Bridge Camp is open to individuals with special needs ages 8 and up June 30 - July 3 (Tuesday - Friday)
We are so excited to once again offer this integrated camp for teenagers and campers with special needs.* High school students are invited to serve as "helper campers" and are paired with special needs campers for a truly wonderful camp experience. Counselors and trained adults are available for support throughout the week. Parents and friends of children or young adults with special needs should contact Meaghan at director@eccri.org for more information.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/30/2019
Camp Ruggles View on Map
PO Box 353
Chepachet, RI 02814
Phone: 401-567-8914
Service Categories:
Address:
PO Box 353
Chepachet, RI 02814
Phone: 401-567-8914
Email: jim@campruggles.com
Eligibility:

Summer day camp program for children, ages 6-12, who are clinically diagnosed with emotional and behavioral disabilities.

Services Provided:

Camp Ruggles facilitates the physical development and confidence building of campers through individual and group instruction periods. Campers work on self-control,
managing frustration, building independence and enhancing communication skills.
6 week session includes:
Swimming, kayaking, fishing, canoeing, team building and other summer recreation activities.

FAQs

Provider Profiles:

Our program is designed specifically for children with significant difficulties in these areas who cannot succeed in a regular camp environment. All aspects of our camp are designed to meet the individual needs of this special population. From bus pickup to return, we provide a total of 240 hours of highly supervised, case managed, therapeutic care.

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 4/22/2021
1000 Elmwood Avenue
Providence, RI
Phone: 401-785-3510 x394
Service Categories:
Address:
1000 Elmwood Avenue
Providence, RI
Phone: 401-785-3510 x394
Toll Free Phone: 02907
Email: programs@rwpzoo.org
Services Provided:

Registration for 2021 Summer ZooCamp is OPEN and space is limited.  Explore more information on our Summer Adventures and Conservation Heroes ZooCamps below!

ZooCamp

Contact ZooCamp Director, Beth Capporelli in the education department at 783-5310 ext 394 for any questions you may have.

Provider Profiles:

ZooCamp is an inclusive experience that welcomes and supports children of all abilities.

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 4/22/2021
PO Box 5299
Wakefield, RI 02880
Phone: 401-783-7000
Service Categories:
Organization Name: Camp JORI
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Address:
PO Box 5299
Wakefield, RI 02880
Phone: 401-783-7000
Email: info@campjori.com
Eligibility:

Camp JORI, on 75 pristine acres in Wakefield, Rhode Island, is a co-ed Jewish overnight and day camp for children in grades K-10. Our comprehensive program of sports, arts, adventure and special activities is enhanced by our Jewish and Israeli culture and our strong sense of “TACEO”- Taking Care of Each Other.


Reaching Up (ages 11-14) is an inclusive program for both Day and Overnight campers that makes JORI accessible for all children.

Services Provided:

Campers who may require some additional support in cognitive skills or social-emotional coaching will have that extra staff attention. Through the camp experience, the camper will expand language and communications, improve social skills, develop friendships, and expand self-awareness. The program has credentialed adult professionals and our counselors are trained and well-supervised in a supported camp environment.

Provider Profiles:

Since its beginning in 1937 as the summer program of the Jewish Orphanage of Rhode Island (JORI), campers have enjoyed summers in a nurturing, family-like environment.

Camp JORI sits on over 72 acres of pristine woodland, on the largest lake in Rhode Island with an exceptional waterfront for boating and fishing.  The site is surrounded by Nature Conservancy protected land. When you come into camp you are welcomed at the visitor center and then you begin the JORI experience.

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 4/22/2021
12 Monomonac Road
Rindge, NH 03461
Phone: 603-899-9590
Service Categories:
Organization Name: Camp Starfish
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Address:
12 Monomonac Road
Rindge, NH 03461
Phone: 603-899-9590
Email: info@campstarfish.org
Eligibility:

ages 5-12 day camp and ages 7-17 overnight camp for children with emotional, behavioral or learning problems.

Services Provided:

Therapeutic overnight camp
1:1 staff-to-camper ratio
Variety of programs link

Provider Profiles:

Camp Starfish provides a 1:1 staff-to-camper ratio at all times to enable success, build social skills, teach coping mechanisms, and help children who have difficulty finding success in traditional settings. We are a one-of-a-kind summer camp, year-round support and advocate for children and families.
Year-round mailing address
Camp Starfish
636 Great Road
Stow, MA 01775
(978) 636-2617

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 4/22/2021
Episcopal Conference Center
872 Reservoir Road
Pascoag, RI 02859
Phone: 401-568-4055
Service Categories:
Organization Name: Episcopal Conference Center (ECC)
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Address:
Episcopal Conference Center
872 Reservoir Road
Pascoag, RI 02859
Phone: 401-568-4055
Services Provided:

Overnight camps for children and teen's.

Special session's for Family Camp

Counselor in Training program

Bridge Camp for campers age 16+ who need additional support. See information below.

Activities:

Arts and Crafts
Games
Outdoor activities
Swimming

Provider Profiles:

Tuesday, July 13 - Friday, July 16 Bridge Camp is open to individuals with special needs ages 16 and up We are thrilled to welcome our Bridge Campers back to camp! To ensure the safest possible environment for our Bridge Campers, camp will begin after our staff has quarantined on the property for 10 days. We will not have helper campers this year, instead opting for our staff to work directly with our Bridge Campers to care for them and help them have an amazing camp experience. Parents and friends of young adults or adults with special needs should contact Meaghan at director@eccri.org for more information. *Campers with some special needs have been part of our regular sessions for years, and are still invited to participate as they have before. This camp is designed for young people who might not be able to attend a regular camp session.


Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 4/21/2021
144 Mohawk Hotel Road
Old Forge, NY 13420
Phone: 315-207-5706
Service Categories:
Organization Name: Mark Seven Deaf Foundation
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Address:
144 Mohawk Hotel Road
Old Forge, NY 13420
Phone: 315-207-5706
Services Provided: Variety of programs for all ages. See website for additional details [https://www.campmark7.org/programs]
Provider Profiles: Located in the beautiful Adirondack Mountains of New York, Camp Mark Seven, is a peaceful, welcoming retreat with a vast array of life-affirming educational, recreational and spiritual programs for deaf, hard of hearing, and KODA/CODA individuals. CM7, established in 1982, is home to outdoor and waterfront activities such as mountain hiking, kayaking, canoeing and swimming. Fun, adventure, safety, and great camaraderie in ASL are our passion for the campers.

Our program is unique and has left a lasting impression on each and every camper and staffer. With campers and participants from all 50 states and several countries, we value full communication access at CM7.
Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 7/23/2019
RI
Phone: 888-528-9077
Service Categories:
Organization Name: HopeHealth
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Address:
RI
Phone: 888-528-9077
Email: Information@HopeHealthCo.org
Eligibility:

Camp BraveHeart , ages 4-17 who have experienced loss.

Services Provided:

Hosts Camp Braveheart, ages 4-17, a camp for those children who have experienced loss. link

Camp program was available virtually in 2020. 


Pediatric Care (PediPal) PediPal is our palliative care program for children and families in Massachusetts.

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 4/21/2021
290 Hope Street
Bristol, RI 02809
Phone: 401-474-1606
Service Categories:
Organization Name: Camp Surefire Foundation
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Address:
290 Hope Street
Bristol, RI 02809
Phone: 401-474-1606
Email: info@campsurefire.org
Services Provided:

Camp Surefire will be hosting a one week day camp from Monday, June 28th – Friday, July 2nd at the St. Andrew’s School campus in Barrington, Rhode Island.

Camper FAQs link

Provider Profiles:

The mission of the Camp Surefire Foundation is to support and manage Camp Surefire, Rhode Island’s only camp for children with type I diabetes; to create a community of learning about diabetes between campers and their peers, counselors, and medical staff; and to promote the development of life-long skills and relationships which will minimize the impact of diabetes on participants’ lives.

Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 4/21/2021
Camp Joy View on Map
10117 Old 3c Highway
P.O. Box 157
Clarksville, OH 45113
Service Categories:
Address:
10117 Old 3c Highway
P.O. Box 157
Clarksville, OH 45113
Email: info@camp-joy.org
Eligibility: Contact for details
Services Provided:

Offers a variety of camps, including regular camps, specialty camps, and family camps.

Specialty camps include camps for children with congenital or acquired heart disease, spina bifida, tuberous sclerosis and more.

Source: MHP-Nationwide
Last Updated: 9/22/2020
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Phone: 800-342-2383
Service Categories:
Organization Name: American Diabetes Association
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Address:
2451 Crystal Drive, Suite 900
Arlington, VA 22202
Phone: 800-342-2383
Eligibility: See specific camps for details
Services Provided: Camps for children with Type I diabetes and with or at risk of developing Type II diabetes. Multiple camps.
Source: MHP-Nationwide
Last Updated: 1/6/2020
490 Concordia Avenue
St. Paul, MN 55103
Phone: 651-268-7591
Service Categories:
Organization Name: American Lung Association
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Address:
490 Concordia Avenue
St. Paul, MN 55103
Phone: 651-268-7591
Fax: 651-227-5459
Email: Val.Haga@Lung.org
Eligibility: Ages 7-12, asthma
Services Provided:

This week-long camp helps children learn more about their asthma and how to better cope with this breathing disorder while still having fun. Superkids camps in South Dakota and Minnesota.

Source: MHP-Nationwide
Last Updated: 8/7/2020
8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
Service Categories:
Address:
8630 Fenton St, Suite 820
Silver Spring, MD 20910-3819
Phone: 301-587-1788
TDD: 301-587-1789
Fax: 301-587-1791
Eligibility: deaf and hard of hearing
Services Provided: Safeguards the civil rights of deaf and hard of hearing Americans. As a national federation of state associations, individual members, and organizational and corporate affiliates, the advocacy work includes accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications, and transportation. Website features advocacy information and resources.
Provider Profiles: NAD Youth Leadership Camp (YLC) is a four-week intensive educational program for high school students. Camp Taloali, Stayton, Oregon.
Source: Medical Home Portal
Last Updated: 8/6/2019
161 N. Clark, Suite 3550
Chicago, IL 60601
Phone: 406-655-9000
Service Categories:
Address:
161 N. Clark, Suite 3550
Chicago, IL 60601
Phone: 406-655-9000
Services Provided:

Since 1950, we've spearheaded efforts to transform the lives of people with muscular dystrophy, ALS, and related neuromuscular diseases. We fund groundbreaking research for promising treatments and provide families with the highest quality care from the best doctors in the country.

Source: MHP-Nationwide
Last Updated: 6/3/2021
800 Eastown Drive, Suite 105
Chapel Hill, NC 27514
Phone: 706-256-2084
Service Categories:
Organization Name: National Respite Locator Service
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Address:
800 Eastown Drive, Suite 105
Chapel Hill, NC 27514
Phone: 706-256-2084
Services Provided: The ARCH National Respite Network includes the National Respite Locator, a service to help caregivers and professionals locate respite services in their community, the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels, and the Lifespan Respite Technical Assistance Center.
Provider Profiles: The ARCH National Respite Network includes summer camps for both children and adults with special needs.

A cooperative agreement with the US Administration for Community Living/ Administration on Aging
Source: Medical Home Portal
Last Updated: 8/6/2019
143 Nichecronk Road
Dingmans Ferry, PA 18328
Phone: 570-828-2329
Service Categories:
Organization Name: Philadelphia YMCA
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Address:
143 Nichecronk Road
Dingmans Ferry, PA 18328
Phone: 570-828-2329
Fax: 570-828-2984
Email: campspeers@philaymca.org
Eligibility: Varies by camp. Contact for details.
Services Provided:

 Dragonfly Forest is a traditional overnight camp for kids with special and medical needs: Autism, 22q Deletion Syndrome, Down Syndrome, Asthma, Sickle Cell Disease, and Hemophilia.

Campers thrive at Dragonfly with the support from a low counselor-to-camper ratio and medical team experts in neurodiversity and medical fields. This special program is built around a culture of inclusion, with outcomes that yield confidence and independence that can extend beyond a week of camp.

Activities are tailored to meet the unique abilities of each camper. Campers participate in a variety of activities such as archery, ropes courses, nature hikes, swimming, canoeing, tie-dying, rock climbing, camp fires, arts and crafts!

Campers stay in duplex cabins (2 sides) with bathrooms and a common room. Cabins have 10 campers and at least 2 counselors.

Provider Profiles:

Registration opens in January and fills quickly. Camps are in Valley Forge, PA area.

Source: MHP-Nationwide
Last Updated: 9/22/2020
Camp Taylor View on Map
8224 W Grayson Road
Modesto, CA 95358
Phone: 209-545-3853
Service Categories:
Address:
8224 W Grayson Road
Modesto, CA 95358
Phone: 209-545-3853
Email: camp@kidsheartcamp.org
Eligibility: no cost for children and youth with heart disease
Services Provided:

Camp Taylor offers several programs for young people and families of children with heart disease. Our flagship program is our well known medically supervised free youth and teen residential summer camp sessions. We offer 8 camp sessions catering to the underserved population of pediatric cardiology.

Source: MHP-Nationwide
Last Updated: 9/22/2020
11615 Hesby Street
North Hollywood, CA 91601-3620
Phone: 818-754-0312
Service Categories:
Address:
11615 Hesby Street
North Hollywood, CA 91601-3620
Phone: 818-754-0312
Eligibility: free of charge summer camp for children with heart disease, ages 7-17, 18-24
Services Provided: Camp del Corazon provides a medically supervised, residential summer camp for children ages 7-17 who are living with heart disease. Located on Catalina Island, 22 miles off the California coastline. PACE program for ages 18-24 with congenital heart disease.
Source: MHP-Nationwide
Last Updated: 1/6/2020
4301 Connecticut Ave. N.W., Suite 404
Washington, DC 20008
Phone: 800-651-9131
Service Categories:
Address:
4301 Connecticut Ave. N.W., Suite 404
Washington, DC 20008
Phone: 800-651-9131
Email: info@fabrydisease.org
Services Provided:

Information about Fabry disease, research and clinical trials information, funding programs, and more. Programs, include:

  • Annual conference
  • Family camp
  • Personal support
  • Research and educational information
Source: MHP-Nationwide
Last Updated: 8/13/2020
NY
Phone: 510-769-9295
Service Categories:
Address:
NY
Phone: 510-769-9295
Email: info@youthrally.org
Eligibility: Kids and teens ages 11 - 17 living with conditions of the bowel and bladders.
Services Provided:

Five nights of camp at a college campus for an experience that promotes independence, self-esteem, learning, friendship and fun. Each year the Youth Rally host roughly 150 campers from all over the US and beyond. Campers and counselors alike live with an array of conditions affecting their bowel and/or bladder systems. A nursing team assists campers as needed.

Source: MHP-Nationwide
Last Updated: 6/16/2020
10 W. Beaver Creek Blvd., Ste 250
PO Box 8589
Avon, CO 81620
Phone: 970-748-9983
Service Categories:
Address:
10 W. Beaver Creek Blvd., Ste 250
PO Box 8589
Avon, CO 81620
Phone: 970-748-9983
Eligibility: Roundup River Ranch serves children ages 17 and under, who have been diagnosed with a serious illness, and their families. Campers come from the 11-state region of Colorado, Wyoming, Montana, New Mexico, Kansas, Nebraska, North and South Dakota, Oklahoma, Utah, and Texas. No cost.
Services Provided:

Roundup River Ranch is part of the SeriousFun Children’s Network, a global community of medical specialty camps founded by Paul Newman. He believed that kids with serious illnesses needed a place to “kick back and raise a little hell.” Serving children with serious illnesses and their families.

Provider Profiles:

See website for up-to-date list of camp sessions.

Source: MHP-Nationwide
Last Updated: 8/7/2020
Camp Korey View on Map
24880 Brotherhood Road
Mount Vernon, WA 98274
Phone: 425-440-0850
Service Categories:
Address:
24880 Brotherhood Road
Mount Vernon, WA 98274
Phone: 425-440-0850
Fax: 425-404-2158
Email: info@campkorey.org
Eligibility: Children living with serious illness, ages 7 to 17. No cost. April 30th application deadline.
Services Provided: Camp Korey empowers children and families living with serious medical conditions through year-round, life-changing experiences, always free of charge. With specialized medical support, we help kids re-imagine the future.
All residential Summer Camp Sessions last one week and run from Monday afternoons through Friday mornings. Please apply for the session that best fits your child. Sample summer camps:
♥ Session 1: Camp Reflection, Dermatologic Conditions In partnership with the American Academy of Dermatology
♥ Session 2: *General Session
♥ Session 3: *General Session
♥ Session 4: Solid Organ Transplant
♥ Session 5: *General Session
♥ Session 6: Craniofacial Community
♥ Session 7: Orthopedic + Neuromuscular Conditions
♥ Session 8: Skeletal Dysplasia
*GENERAL SESSIONS serve campers with life altering medical conditions including but not limited to: cerebral palsy, chronic kidney disease, cystic fibrosis, Down syndrome, epilepsy, genetic syndromes, mitochondrial disease, and reconstructive pelvic medicine conditions.
Also teen and family weekend camps.
Provider Profiles: An official member of SeriousFun Children’s Network.
Camp phone: (425) 440-0850
Source: MHP-Nationwide
Last Updated: 1/6/2020
900 East Hill Ave, Suite 390
Knoxville, TN 37915
Service Categories:
Organization Name: Amputee Coalition
(Show others in Organization)
Address:
900 East Hill Ave, Suite 390
Knoxville, TN 37915
Toll Free Phone: 888-267-5669
Eligibility: Ages 10-17 who have limb loss or limb differences.
Services Provided:

Resources and support for individuals with limb loss and their families. Advocacy information and resources for state and national advocacy.

Paddy Rossbach Youth Camp: A 6-day traditional summer camp experience for children with limb loss and limb difference to increase self-confidence and self-esteem through a traditional and supportive summer camp experience. The Amputee Coalition arranges travel plans for all camp attendees. Cost: none! thanks to sponsors and donors. Opportunities for camp counselors ages 18-19 and age 20 and above.

Provider Profiles:

2016 dates July 8 - 16.

Source: MHP-Nationwide
Last Updated: 9/22/2020
10586 West Pico Boulevard, Unit 196
Los Angeles, CA 90064
Phone: 260-225-3736
Service Categories:
Address:
10586 West Pico Boulevard, Unit 196
Los Angeles, CA 90064
Phone: 260-225-3736
Email: info@kesem.org
Eligibility: children with parents with cancer
Services Provided: Kesem is a nationwide community, driven by passionate college student leaders, that supports children through and beyond their parent’s cancer. Offering innovative, fun-­filled programs that foster a lasting community, we aim to ensure that every child impacted by a parent’s cancer is never alone.
Provider Profiles: Camp locator on website
Source: MHP-Nationwide
Last Updated: 1/7/2020
120 Wall Street, 16th Floor
New York, NY 10005-3904
Phone: 212-344-6633
Service Categories:
Address:
120 Wall Street, 16th Floor
New York, NY 10005-3904
Phone: 212-344-6633
Toll Free Phone: 800-323-7938
Fax: 212-747-0004
Email: info@ctf.org
Services Provided: Ending neurofibromatosis through research. Patient Engagement program, meaning the inclusion of patient representatives in NF research, and the view that people with NF are not just subjects, but are health care consumers who have a role in managing their care, directing their health outcomes, and accelerating therapies for the entire NF community. A NF Clinic Network by state.
Provider Profiles: NF Camp is the annual summer camp of the Children's Tumor Foundation, dedicated to teens and young adults living with neurofibromatosis (NF). For over 20 years we have hosted this week-long experience for teens and young adults ages 12 to 25. NF Camp takes place on the third or fourth week of July (6 nights/6 days) in Salt Lake City, Utah. Application on CTF website.
Source: MHP-Nationwide
Last Updated: 1/6/2020
4180 Emigration Canyon Rd
Camp Kostopulos
Salt Lake City, UT 84108
Service Categories:
Organization Name: Children's Tumor Foundation
(Show others in Organization)
Address:
4180 Emigration Canyon Rd
Camp Kostopulos
Salt Lake City, UT 84108
Email: jpantoliano@ctf.org
Eligibility: Teens and young adults ages 12 to 25 living with neurofibromatosis
Services Provided: NF Camp is for children and teens with Neurofibromatosis (NF), a genetic disorder that causes tumors to grow along various types of nerves. Campers come from all over the United States, Canada, and the world. During these weeks, they are able to interact with others who have the same condition, and learn more about themselves and others while enjoying everything that Camp K has to offer.
Provider Profiles: NF Camp takes place on the third or fourth week of July (6 nights/6 days) at Camp Kostopulos in Utah. Details and application on Children's Tumor Foundation website.
Contact: Julie Pantoliano
Source: MHP-Nationwide
Last Updated: 1/7/2020
6728 Old McClean Village Dr
Mclean, VA 22101
Phone: 703-556-9222
Service Categories:
Organization Name: Pediatric Endocrine Society (PES)
(Show others in Organization)
Address:
6728 Old McClean Village Dr
Mclean, VA 22101
Phone: 703-556-9222
Fax: 703-556-8729
Email: info@pedsendo.org
Services Provided:

Offers a variety of clinical and patient resources as well as educational events for clinicians.

Find a Pediatric Endocrinologist: Search the Pediatric Endocrine Society membership list.

Upcoming Camps: Directory of specialty camps for kids, including Diabetes Camps, Turner Syndrome Camps, and Transgender Youth and Teen Camps. Not run or endorsed by the Pediatric Endocrine Society.

Source: MHP-Nationwide
Last Updated: 9/14/2020
7 Penn Plaza, Suite 1204
New York, NY 10001
Phone: 212-328-3700
Service Categories:
Address:
7 Penn Plaza, Suite 1204
New York, NY 10001
Phone: 212-328-3700
Toll Free Phone: 800-424-2634
Fax: 212-328-3777
Email: handi@hemophilia.org
Wheelchair Access: Not Applicable
Services Provided: Information about preventing the complications of these disorders through education, advocacy and research. Chapters throughout the US.

Services include:
-Information about bleeding disorders, blood types, and blood safety
-Online and in-person educational events and workshops
-Advocacy information
-[Camp Locator] helps families find a camp for a child with a bleeding disorder, siblings, or the family.
Source: Nationwide Suggest Providers Queue
Last Updated: 3/9/2020
Young Life View on Map
P.O. Box 520
Colorado Springs, CO 80901-0520
Phone: 877-438-9572
Service Categories:
Address:
P.O. Box 520
Colorado Springs, CO 80901-0520
Phone: 877-438-9572
Toll Free Phone: 877-438-9572
Fax: 719-381-1750
Services Provided: Young Life is a Christian ministry that reaches out to middle school, high school and college-aged kids in all 50 states.

Some Young Life areas have dedicated programs for students and young adults with disabilities, typically referred to as Young Life Capernaum. Young Life Capernaum gives young people with intellectual and developmental disabilities the chance to experience fun and adventure, to develop fulfilling friendships and to challenge their limits while building self-esteem through club, camp and other exciting activities.

[https://www.younglife.org/Locator/Pages/default.aspx Use the online finder] to locate a local Young Life and find out about their programs.
Source: Nationwide Suggest Providers Queue
Last Updated: 2/14/2020
39252 Winchester Road, #107-135
Murrieta, CA 92563
Phone: 918-490-3055
Service Categories:
Address:
39252 Winchester Road, #107-135
Murrieta, CA 92563
Phone: 918-490-3055
Services Provided:

Connecting Families UCD Foundation provides resources, information, and support groups for families and individuals with Urea cycle disorders (UCDs).

UCD Family Camps: Connecting Families UCD Foundation hosts annual camps for families affected by a Urea Cycle Disorder. UCD Family Camps are held in different locations across the US so that all families around the country may have an opportunity to attend. Camps are 100% free of charge to UCD families and siblings (any age). All costs of foods (low-pro), lodging, and shuttling to and from airport to camp site is provided as well.

Source: MHP-Nationwide
Last Updated: 8/19/2020