Family Advocacy

Organizations that support the passage and enforcement of laws and other social measures that protect and promote the rights of families.

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Disclaimer...
Note: Service listings do not represent a recommendation or endorsement by the Medical Home Portal staff or its sponsoring organizations; nor do they reflect any assessment of the quality or value of a listed Service.

RI

Statewide

Organization Name: Rhode Island Parent Information Network
Address: 1210 Pontiac Avenue
RI 02920
Phone: 401-270-0101
Toll Free Phone: 855-747-3224
Eligibility: Statewide
Services Provided: Rhode Island Parent Information Network (RIPIN) provides:
• Live answer call center during business hours, return calls within two business days
• Care coordination and service linkage for families with children with special health care needs
• Support for families navigating the special education process for children with special needs through our Parent Training and Information Center [http://www.parentcenterhub.org/]
• Support for families navigating transition to adult services for young adults with special needs
• Support for families with children with special health care needs through our Cedar Family Center

• Connection to Family Voices and Family-to-Family information and peer support groups [http://www.familyvoices.org/]
• Help with access to health care and health insurance including Healthsource RI, Medicaid, Medicare, and more
• Services provided in English and Spanish
Provider Profiles: Our mission is to assist individuals, parents, families, and children to achieve their goals for health, education, and socio-economic well-being by providing information, training, education, support and advocacy for person/family centered care and system change.

RIPIN’s staff are Certified Community Health Workers who have navigated health care and/or education systems for themselves or a loved one allowing for the inclusion of a peer perspective to our support to families.
Location:
RI Parent Information Network
1210 Pontiac Avenue
Cranston, RI 02920
Original Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 7/3/2019
Organization Name: The Autism Project
Address: 1516 Atwood Avenue
RI 02919
Phone: 401-785-2666
Fax: 401-785-2272
Eligibility: All are welcome.
Wheelchair Accessible: Yes
Services Provided: Professional Training
Program, classroom and individual consultation
Parent Education Series and Support
Grandparent Support Groups
Social Skill Groups
Summer Camp
Advocacy
Provider Profiles: The Autism Project is a ‘Hub of Hope’ that connects people—with a spectrum of needs—to the available resources and education that support independent and purposeful lives.
Autism Project
1516 Atwood AVenue
Johnston, RI 02919
Original Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 7/13/2018

Cranston, RI

1210 Pontiac Avenue
Cranston, RI 02920
Phone: 401-270-0101
Organization Name: RI Parent Information Network
Address: 1210 Pontiac Avenue
Cranston, RI 02920
Phone: 401-270-0101
Languages Spoken: Spanish
Eligibility: Families of children birth to age 21 having 2 or more chronic conditions or have one chronic condition and are at risk of developing a second. Children having a severe mental illness or severe emotional disturbance Medical Assistance Coverage ( Medical Assistance, RIte Care or RIte Share)
Services Provided: A Cedar Family Center is a site that provides evolving, family centered, intensive care management and coordination in order to assist families in reaching their full potential and thrive in their own communities.
Provider Profiles: Our mission is to assist individuals, parents, families, and children to achieve their goals for health, education, and socio-economic well-being by providing information, training, education, support and advocacy for person/family centered care and system change.
Original Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 12/14/2016

Providence, RI

Address: Rhode Island College
600 Mount Pleasant Avenue
Providence, RI 02908
Phone: 401-456-8072
TDD: 800-745-5555
Fax: 401-456-8150
Languages Spoken: Spanish via RI Relay 711 or (866) 355-9241
Eligibility: Statewide
Services Provided: Services Provided:
• Technical assistance and training in the areas of Early Intervention, infant mental health and trauma-based care practices, inclusive practices in schools, Positive Behavioral Interventions and Supports and Multi-Tiered Systems of Supports in schools, learners with low incidence disabilities (vision, hearing, deaf-blindness), transition from high school, and community-based employment strategies for youth and adults.
• Services include:
o Instruction and mobility services to children who are blind or visually impaired.
o Educational Advocates for students with disabilities who are in state care.
o Benefits counseling and assistance for Social Security beneficiaries.
o Family support and navigation of services.
o Support group for self-directed support users (DDD)
o Plan writing for self-directed support users (DDD).
o Support for parents with intellectual disabilities.
o Support to students in post-secondary education.
Provider Profiles: Paul V. Sherlock Center on Disabilities, founded at Rhode Island College in 1993, is a University Center for Excellence in Developmental Disabilities (UCEDD). UCEDDs are evidence driven and designed to advance policies, practices, and research that improve the health, education, social, and economic well-being of people with disabilities, their families, and their communities. There are 67 UCEDD programs in the United States. This national network is administered through the United States Department of Health and Human Services Administration on Developmental Disabilities.
The Sherlock Center partners with state and national agencies, schools, institutions of higher education and community providers to implement its core functions: preservice preparation, services (including technical assistance, community education, and direct services), research, and information dissemination. As of 2016, the Sherlock Center is a LEND (Leadership Education in Neurodevelopmental and Related Disabilities) Program.
Areas of Emphasis:
Early Childhood and Education
Inclusion and Community Membership
Low Incidence Disabilities
Self-Determination
Transition, Employment and Adult Life
Workforce and Professional Development
Original Source: Rhode Island Dept of Health, Office of Special Needs
Last Updated: 10/21/2019

Nationwide

332 S Nucgugab Avebye Syute 121-S240
Chicago, IL 60604-4434
Service Categories:
Address: 332 S Nucgugab Avebye Syute 121-S240
Chicago, IL 60604-4434
Service Categories:
Eligibility: Siblings of individuals with disabilities
Services Provided: To provide siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families. Resources for siblings across the lifespan.

Chapter development inquiries: chapter.inquiries@siblingleadership.org
Original Source: MHP-Nationwide
Last Updated: 9/26/2019