Toilet Training Children with Complex Medical Conditions
Determining when a child with complex health care needs may be ready to toilet train and how to support toilet train at school and home
Achieving continence is possible for many children with significant communication, cognitive, and motor disabilities. For some children, the goal may be toilet conditioning (staying continent if taken to the toilet on a schedule); for other children, the goal may be independent toileting. Some children may be ready to work on this goal as toddlers or preschoolers, while others may be ready at older ages. Depending on the age, the child might be trained by the parent with or without the support of a behavioral program (e.g., an ABA program). Some children are initially trained at school as a goal in their IEP. Then the toilet training is transitioned to the home. Information about toilet training readiness, methods and settings for toilet training, and the roles of the primary care clinician, pediatric specialists, and educational/therapeutic team in supporting toilet training are discussed below.
Determining Readiness
When a child approaches the age that toilet training would be a typical developmental goal (age 2-3), the clinician should have a conversation with the child’s parent or caregiver about how the child’s condition might impact toilet training. As the child matures, the clinician can monitor when the child’s skill level opens the door for toilet training to become an appropriate goal. The child’s skill level is then put in the context of the caregivers’ goals and priorities and the readiness of the setting where the child’s training might occur (e.g., school IEP or ABA program). For example, if a child has significant aggressive or self-injurious behavior, treatment may take precedence over toilet training.
Child Readiness
- Diapers are typically dry for at least 2 hours.
- The child can feel the difference between being dry or wet/soiled. Sometimes the child has to be changed into regular underwear instead of absorbent diapers or pull-ups for a few days to assess this. Awareness may be indicated by seeking a private space when having a bowel movement or taking off their diaper when wet.
- If the goal is to use a child-oriented approach, then it is important for the child to show some interest and motivation toward the toilet. However, this is not necessary for either a scheduled approach or for a behavioral/intensive approach (see Toilet Training Methods below).
- The child displays no fears of being in, on, or around the bathroom. If fears exist, a behavioral desensitization program needs to be done first.
- All medical or physical barriers (e.g., constipation) have been addressed.
Toilet Training Methods
Child-Oriented Approach
Behavioral (Intensive) Approach
Scheduled Toileting
Timer or Clock Training
Addressing Toilet Training Challenges
Medical/Physical
Motor challenges create additional support needs for many children with cerebral palsy (CP). Some children with CP may require adaptive equipment or caregiver support to transfer to the toilet, and occupational therapy or physical therapy consultation can be helpful for guidance on the equipment and assistance needed. Constipation and bladder spasticity (resulting in frequent urination) are also common in children with CP, and it is important that families work with their child’s doctor (and, in some cases, gastroenterology and/or urology) on optimal management of these conditions prior to beginning toilet training. For these reasons, toilet training generally occurs later in children with CP than in typically-developing children. Despite these challenges, toilet training is achieved for many children with CP, especially when provided with appropriate adaptive equipment and developmental therapies. Cerebral Palsy has detailed information about management, including therapies.
Children with neurogenic bladder due to spina bifida or other medical conditions often do not develop adequate bladder awareness to use the toilet to urinate. Continence through bowel and bladder programming is an important goal. Bladder catheterization (by a parent when young and by the individual when they attain the skill), as well as use of bladder muscle relaxants, can result in urinary continence. A bowel program for regular emptying of the bowels (e.g., bulk agents or softeners, rectal stimulation, or suppositories) can be used to attain bowel continence. In some cases, an anterior enema port with daily emptying may be a way to attain this goal if a bowel program is not working.
Developmental
Developmental Delay
Children with cognitive and communication delays generally
demonstrate toilet training readiness later than children without delays and
take longer to toilet train. As discussed above, some children will train
using a child-oriented approach, some may need an intensive approach, and
some will do best with initially scheduled toileting. Parents may need
guidance in deciding which approach may work best for their child.
Regardless, a stepwise approach that teaches one skill at a time (sitting on
the potty, pulling pants up and down, washing hands, etc.) can be helpful.
Some of these skills can be taught even before a child develops bladder
awareness and control. Visual schedules of the toileting routine are also
helpful. Children with communication delays benefit from working with a
speech-language pathologist to develop functional communication skills both
in general and specifically around toileting.
Autism Spectrum Disorder
Core communication, behavioral, and sensory differences in
autism spectrum disorder can result in complex toilet training difficulties.
Children with autism often have sensory sensitivities, and it is helpful to
assess their sensory experiences around toileting if they are resistant to
toilet training (see Sensory Differences below). Children
with autism also may have significant difficulties with routine changes
making the transition from diaper to toilet challenging and even
distressing. Visual schedules, ample preparation (books and television
programs about toileting, for example), and a gradual, stepwise approach can
help children adjust. In some cases, the child’s ABA therapy program can
provide guidance and support to parents as they work on this goal in the
home. In other cases, it may be more appropriate to work on it as part of
the IEP at school first and then transition home. Behavioral, occupational,
and/or speech therapy may be needed to help the child develop skills around
restricted behavior, sensory sensitivities, and communication delays that
interfere with toileting (see Behavioral Therapies
(see RI providers
[35]), Occupational Therapy
(see RI providers
[24]), and Speech - Language Pathologists
(see RI providers
[35])). Autism Spectrum Disorder has detailed
information about management, including behavioral therapy.
Behavioral
Children with behavioral challenges are generally harder to potty train than children without behavioral difficulties. Parents and caregivers of these children are often unable to find professional support because formal diagnoses (such as attention-deficit/hyperactivity disorder or oppositional defiant disorder) are not usually provided until the preschool years or later. Even when behavioral challenges are recognized, the limited availability of therapists who work with very young children and lack of funding can impede access to behavioral supports. However, if the behavioral difficulties are recognized and behavioral guidance is given, many children will respond with progress toward successful toilet training.
Children with behavioral difficulties may not respond to positive reinforcement in the same ways as other children. They may have more intense tantrums in response to changes in routine or task demands. Breaking the toilet training goal into small steps, implementing a variable positive reinforcement plan, managing mood and attention, and helping the child decide that they want to achieve the goal can foster success. It is especially important to tailor goals and rewards to the child’s current ability. For example, a child may not be motivated by a reward to urinate in the toilet if that task is too overwhelming or difficult. However, if the goal is changed to something more achievable (e.g., sitting on a small potty with the diaper on), the child may respond more positively. Goals can advance as the child develops mastery. If the child is resistant to even gradual measures, it may be helpful to wait a few weeks or months and try again.
The primary care clinician can plan an important role in recognizing behavioral challenges and linking the family to appropriate support. Families should consult with their pediatrician to screen for co-occurring neurodevelopmental disorders, such as autism or communication disorders, which often present with behavioral problems but require developmental interventions in addition to behavior supports (see Developmental section above).
Sensory Differences
Blindness and Vision Impairment
Children with significant vision impairments do not use the
visual tools and cues that are cornerstones for children without these
impairments, such as visual observation of parent and sibling toileting
behavior and toilet-themed picture books. They depend more on cognitive and
communication skills for potty training and, as a result, often potty train
later than children without vision impairments. These children benefit from
supervised and narrated tactile exploration of the bathroom and toilet and
initial guided support of the toileting process (pulling pants down, sitting
on toilet, using toilet paper, pulling pants up, washing hands, etc.). A
small potty on the floor is likely to be more accessible than a potty seat
on the adult toilet, and it is important to keep the small potty in the same
place in the bathroom so that the child can always locate it. Children’s
audiobooks about toileting help support the learning process.
Deafness and Hard of Hearing
Children with hearing loss often toilet train at a similar
age to children without hearing loss, using the same visual cues and then
signing and gesturing to communicate. Children with hearing loss and
co-occurring developmental or communication delays generally toilet train
later and benefit from a stepwise approach (see
Developmental section above). For detailed
information about delays and other management information, see
Hearing Loss and Deafness.
Sensory Integration/Processing Difficulties
Children with sensory sensitivities (common in autism
spectrum disorder and also occurs in children without autism) are often
sensitive to many aspects of the toileting process (toilet flushing,
bathroom odors, the sensation of clothing, etc.). These sensitivities may
manifest as anxiety around toileting, tantrums, and toilet training
resistance. Caregivers should evaluate their child in the toilet environment
to identify sensory-related triggers. For some children sensitive to
toilet-flushing sounds, being allowed to flush the toilet without any
expectations to use it can be a low-pressure way to help the child adjust to
this sound. Other children benefit from noise-blocking headphones. Frequent
practice in pulling up and down pants may exacerbate sensitivities to
fabrics; soft, elastic waist sweatpants can help (and are generally easier
to manipulate for all children). Consultation with an occupational therapist
can be very helpful in evaluating and managing sensory sensitivities around
toileting.
School Considerations
The family will need to work with the child’s teacher and the Individualized Education Program (IEP) team to determine when toilet training best fits into the child's educational program and which toilet training method should be used. Regardless of the method, the child should not be reprimanded or punished for accidents. If the teacher or school indicates that they have had limited experience, the family should request that a special educator within the district be identified to assist. Before beginning toilet training, physical therapy, occupational therapy, or speech therapy should be involved (as appropriate) to address assistive equipment and communication programming needed to accompany the toilet training program. These consultations can be obtained through the school services, but, on occasion, private consultation may have to be arranged if the school lacks adequate resources.
Services & Referrals
Physical Therapy
(see RI providers
[7]) and Occupational Therapy
(see RI providers
[24])
Refer for assistive equipment and communication programming needed to
accompany the toilet training program. These consultations can be obtained through
the school services, but, on occasion, private consultation may have to be arranged
if the school lacks adequate resources. Once continence is achieved, consultations
for additional or updated equipment, training to enhance independence as the child
matures, or teaching optimal transfer techniques for parents may be
helpful.
Speech - Language Pathologists
(see RI providers
[35])
Refer for concerns related to delays in language skills that impact
communication around toileting. Speech-language pathologists can provide therapy to
build functional communication skills and, if needed, augmentative or alternative
communication strategies.
Behavioral Therapies
(see RI providers
[35])
Refer for behavioral desensitization if a child displays fear of
being in, on, or around the bathroom or otherwise demonstrates persistent resistance
to toilet training that does not respond to supportive behavior strategies outlined
above. Referral to a child psychologist or therapist skilled in guiding parents on
behavioral strategies with young children can be helpful. For some children, Parent
Child Interaction Therapy (PCIT) referral may be indicated. For children with
autism, involvement of an autism services provider (e.g., Applied Behavior Analysis (ABA)
(see RI providers
[30]) may be
helpful.
Pediatric Urology
(see RI providers
[1])
Refer for concerns about unaddressed medical or urological issues
that may impede toilet training when a child is otherwise ready for this
process.
Pediatric Gastroenterology
(see RI providers
[18])
Refer if a child needs additional specialized evaluation or support
in managing effective stooling.
Pediatric Physical Medicine & Rehabilitation
(see RI providers
[6])
Refer if a child needs additional specialized evaluation or
management of muscle spasticity or neurogenic bowel or bladder.
Resources
Information & Support
Related Portal Content
The following have diagnosis and management information for clinicians:
- Constipation
- Autism Spectrum Disorder
- Cerebral Palsy
- Intellectual Disability & Global Developmental Delay
Toilet Training for Individuals with Autism or Other Developmental Issues: Second Edition
How to gauge readiness, overcome fear of the bathroom, teach how to use toilet paper, flush and wash up and deal with toileting in unfamiliar environments. by Maria Wheeler, Carol Stock Kranowitz (Oct 1, 2012).
For Professionals
Incontinence Issues among Students with Disabilities (Council for Exceptional Children)
A practical guide for teachers of children with special health care needs that includes terminology, schedules, and the practical
skills that need to be addressed for toilet training; by Clarke LS, Embury DC, and Bauer A (2014).
Toilet Training Children with Special Needs (AAP)
An excellent resource for toilet training children with sensory disorders, behavioral disorders, autism, spina bifida, cerebral
palsy, intellectual disability, and developmental disorders; American Academy of Pediatrics.
For Parents and Patients
Toilet Training (healthychildren.org)
Extensive information about potty training that addresses problematic behaviors, readiness, choosing a potty, cognitive and
emotional issues; from the American Academy of Pediatrics.
Bedwetting (healthychildren.org)
How to manage bedwetting and recognize signs of a medical problem; from the American Academy of Pediatrics.
Toilet Training for Children with a Disability (Continence Foundation of Australia)
How-to video for toilet training children with disabilities at home featuring an Australian occupational therapist and toilet
training consultant (8½ minutes).
Patient Education
Bedwetting Brochure (AAP)
Explains the causes of nighttime bedwetting and provides techniques to help parents manage the condition until it is outgrown.
Also provides signs of a possible medical problem; available for a fee from the American Academy of Pediatrics.
Toilet Training Brochure (AAP)
Details a step-by-step training program for potty training (not focused on children with special health care needs); available
for a fee from the American Academy of Pediatrics.
Toilet Training Resistance: Daytime Wetting & Soiling (Contemporary Pediatrics) ( 248 KB)
A printable handout for families with tips for helping the child to overcome hurdles in potty training.
Toilet Training your Child: The Basics (Contemporary Pediatrics) ( 375 KB)
A printable handout about potty training using the Barton Schmitt developmental approach; includes “the bare-bottom weekend”
and other helpful information (not focused on children with special health care needs).
Tools
Potty Tracking Chart (AAP) ( 96 KB)
A simple, printable chart to count potty times each day for a week; from the American Academy of Pediatrics.
Potty Tracking Chart in Spanish (AAP) ( 86 KB)
A simple, printable chart to count potty times each day for a week; from the American Academy of Pediatrics.
Services for Patients & Families in Rhode Island (RI)
Service Categories | # of providers* in: | RI | NW | Other states (3) (show) | | NM | NV | UT |
---|---|---|---|---|---|---|---|---|
Applied Behavior Analysis (ABA) | 30 | 2 | 17 | 11 | 62 | |||
Behavioral Therapies | 35 | 1 | 17 | 19 | 37 | |||
Occupational Therapy | 24 | 1 | 17 | 22 | 37 | |||
Pediatric Gastroenterology | 18 | 2 | 5 | 2 | ||||
Pediatric Physical Medicine & Rehabilitation | 6 | 3 | 3 | 3 | 11 | |||
Pediatric Urology | 1 | 13 | 3 | |||||
Physical Therapy | 7 | 12 | 9 | 40 | ||||
Speech - Language Pathologists | 35 | 4 | 23 | 11 | 65 |
For services not listed above, browse our Services categories or search our database.
* number of provider listings may vary by how states categorize services, whether providers are listed by organization or individual, how services are organized in the state, and other factors; Nationwide (NW) providers are generally limited to web-based services, provider locator services, and organizations that serve children from across the nation.
Helpful Articles
Foxx RM, Azrin NH.
Dry pants: a rapid method of toilet training children.
Behav Res Ther.
1973;11(4):435-42.
PubMed abstract
The original and most replicated rapid toilet training program (not specific to CYSHCN). More modern practice often removes
the negative reinforcement from this program.
Warzak WJ, Forcino SS, Sanberg SA, Gross AC.
Advancing Continence in Typically Developing Children: Adapting the Procedures of Foxx and Azrin for Primary Care.
J Dev Behav Pediatr.
2016;37(1):83-7.
PubMed abstract
A review of adapted rapid toilet training approaches based on the original Foxx and Azrin procedure in typically developing
children.
Klassen TP, Kiddoo D, Lang ME, Friesen C, Russell K, Spooner C, Vandermeer B.
The effectiveness of different methods of toilet training for bowel and bladder control.
Evid Rep Technol Assess (Full Rep).
2006(147):1-57.
PubMed abstract
A review of studies examining effectiveness of primarily 2 different methods of toilet training for children with diverse
health care needs. Demonstrates the effectiveness of both the Azrin and Fox model and other approaches that differ from toilet
training of typically developing children.
Levato LE, Aponte CA, Wilkins J, Travis R, Aiello R, Zanibbi K, Loring WA, Butter E, Smith T, Mruzek DW.
Use of urine alarms in toilet training children with intellectual and developmental disabilities: A review.
Res Dev Disabil.
2016;53-54:232-41.
PubMed abstract
A review of studies investigating the use of daytime wetting alarms to help children with intellectual and developmental disabilities.
Macias MM, Roberts KM, Saylor CF, Fussell JJ.
Toileting concerns, parenting stress, and behavior problems in children with special health care needs.
Clin Pediatr (Phila).
2006;45(5):415-22.
PubMed abstract
Emphasizes the importance of medical home providers in assessing and intervening to help families with toilet training their
child with special health care needs.
Kroeger K, Sorensen R.
A parent training model for toilet training children with autism.
J Intellect Disabil Res.
2010;54(6):556-67.
PubMed abstract
Discusses a rapid training method for parents to use to toilet train children with autism within a few days.
Wright AJ, Fletcher O, Scrutton D, Baird G.
Bladder and bowel continence in bilateral cerebral palsy: A population study.
J Pediatr Urol.
2016;12(6):383.e1-383.e8.
PubMed abstract
This study describes the age of achieving day and night continence relative to the degree of motor and intellectual impairment
in children with bilateral CP.
Zickler CF, Richardson V.
Achieving continence in children with neurogenic bowel and bladder.
J Pediatr Health Care.
2004;18(6):276-83.
PubMed abstract
Detailed material on caring for and achieving continence for children with neurogenic bowel and bladder in a variety of settings.
Written from a nursing perspective.
Authors & Reviewers
Author: | Allison Ellzey, MD, MSEd |
Reviewer: | Lisa Samson-Fang, MD |
2022: update: Allison Ellzey, MD, MSEdA |
2018: update: Jennifer Goldman, MD, MRP, FAAPA |
2016: update: Jennifer Goldman, MD, MRP, FAAPA |
2008: first version: Lisa Samson-Fang, MDA |
Page Bibliography
Azrin NH, Foxx RM.
A rapid method of toilet training the institutionalized retarded.
J Appl Behav Anal.
1971;4(2):89-99.
PubMed abstract / Full Text
Brazelton TB.
A child-oriented approach to toilet training.
Pediatrics.
1962;29:121-8.
PubMed abstract
Foxx RM, Azrin NH.
Dry pants: a rapid method of toilet training children.
Behav Res Ther.
1973;11(4):435-42.
PubMed abstract
The original and most replicated rapid toilet training program (not specific to CYSHCN). More modern practice often removes
the negative reinforcement from this program.
Klassen TP, Kiddoo D, Lang ME, Friesen C, Russell K, Spooner C, Vandermeer B.
The effectiveness of different methods of toilet training for bowel and bladder control.
Evid Rep Technol Assess (Full Rep).
2006(147):1-57.
PubMed abstract
A review of studies examining effectiveness of primarily 2 different methods of toilet training for children with diverse
health care needs. Demonstrates the effectiveness of both the Azrin and Fox model and other approaches that differ from toilet
training of typically developing children.
Kroeger K, Sorensen R.
A parent training model for toilet training children with autism.
J Intellect Disabil Res.
2010;54(6):556-67.
PubMed abstract
Discusses a rapid training method for parents to use to toilet train children with autism within a few days.
Levato LE, Aponte CA, Wilkins J, Travis R, Aiello R, Zanibbi K, Loring WA, Butter E, Smith T, Mruzek DW.
Use of urine alarms in toilet training children with intellectual and developmental disabilities: A review.
Res Dev Disabil.
2016;53-54:232-41.
PubMed abstract
A review of studies investigating the use of daytime wetting alarms to help children with intellectual and developmental disabilities.
Macias MM, Roberts KM, Saylor CF, Fussell JJ.
Toileting concerns, parenting stress, and behavior problems in children with special health care needs.
Clin Pediatr (Phila).
2006;45(5):415-22.
PubMed abstract
Emphasizes the importance of medical home providers in assessing and intervening to help families with toilet training their
child with special health care needs.
Warzak WJ, Forcino SS, Sanberg SA, Gross AC.
Advancing Continence in Typically Developing Children: Adapting the Procedures of Foxx and Azrin for Primary Care.
J Dev Behav Pediatr.
2016;37(1):83-7.
PubMed abstract
A review of adapted rapid toilet training approaches based on the original Foxx and Azrin procedure in typically developing
children.
Wright AJ, Fletcher O, Scrutton D, Baird G.
Bladder and bowel continence in bilateral cerebral palsy: A population study.
J Pediatr Urol.
2016;12(6):383.e1-383.e8.
PubMed abstract
This study describes the age of achieving day and night continence relative to the degree of motor and intellectual impairment
in children with bilateral CP.
Zickler CF, Richardson V.
Achieving continence in children with neurogenic bowel and bladder.
J Pediatr Health Care.
2004;18(6):276-83.
PubMed abstract
Detailed material on caring for and achieving continence for children with neurogenic bowel and bladder in a variety of settings.
Written from a nursing perspective.