Resources of the Month

2018 Resources of the Month

UCCCN Jan 2018 Resources of the Month (PDF Document 55 KB)
Presentation:Dr. Shannon Wnek about the UDOH Early Hearing Detection and Intervention (EHDI) program and resources.
Case: Update - single mom with 3 adopted children with special needs is getting needed help - emergency DSPD, new PCP, wheelchair and lift coming.

UCCCN Feb 2018 Resources of the Month (PDF Document 5.7 MB)
Presentation: Group discussion on organizations that help fund medical expenses.
Cases: How insurance decisions can be overturned with persistence and the right information and language; a family that received a modified van from Active Re-entry; PCH holds G-tube classes for parents and could for care managers, too.

UCCCN March 2018 Learning Session Summary (PDF Document 66 KB)
Annual Learning Session: The topic was "Care Coordination: What Families Value"

UCCCN April 2018 Resources of the Month (PDF Document 125 KB)
Presentation:Utah 2018 Legislative wrap up of healthcare and CYSHCN related bills, plus a recap of the March Learning Session on "Care Coordination: What Families Value"
Cases:Spanish speaking family on SSI with two sons on autism spectrum with very concerning issues; positive update on a homeless mom and her son with autism; 6 yr old with worsening seizures, has a SAMI (Smart Activity Monitor for individuals) monitoring device, but can’t afford Wifi.

UCCCN May 2018 Resources of the Month (PDF Document 80 KB)
Presentation:Panel discussion by care coordinators and parent partners from Summit Pediatrics, Integrated Services Program and Utah Family Voices about meeting families where they are. Also, the South Main Clinic Office Manager on Improving Medical Home and Care Coordination within a pediatric practice.
Cases:Two successes: 6 yr old boy with type 1 diabetes struggling with school, problematic 504/medical plan, ISP and UPC reps attended IEP mtg and resolved many issues; insurance care manager got a teenager to a first-time PC appointment, already had a care plan with daily management and specialists.

UCCCN June 2018 Resources of the Month (PDF Document 99 KB)
Presentation:Presentation by Andrea Hood of Utah Division of Substance Abuse and Mental Health on Suicide Prevention.
Cases:mom needing post-op details for 7 mo with planned ASD/VSD surgery; young adult about to turn 18 with autism, bipolar, ODD, needing mental health services; 6 yo with autism and other diagnoses including behavioral issues, police and DCFS involved.

UCCCN July 2018 Resources of the Month (PDF Document 71 KB)
Presentation:Claire Behnke, DPT from the Special Needs Car Seat Clinic at Shriners Hospitals for Children - Salt Lake City.
Cases:Successful use of integrated mental health in pediatric practice to avoid teen hospitalization; teen new to Utah, planning to attend a charter school, needing autism neuropsych eval.

UCCCN August 2018 Resources of the Month (PDF Document 125 KB)
Presentation:Presentation by Stephanie Roach from the Utah Parent Center on Individualized Education Programs (IEPs) and Section 504 accommodation plans.
Cases:Case was a child who needs to access the county's Asthma Home Visiting program. Two QI wins: success in SelectHealth streamlining pediatric referrals to sleep clinics; Alpine Pediatrics successfully integrated a full time mental/behavioral health provider.

2017 Resources of the Month

UCCCN Jan 2017 Resources of the Month (PDF Document 310 KB)
Presentation: Shriners Car Seat Specialty Clinic
Cases: Transition of a 22 y/o with CP needing an adult provider; shortage of home health private duty nurses and ways to pay them, extend length of benefits creatively.

UCCCN Feb 2017 Resources of the Month (PDF Document 3.5 MB)
Presentation: Utah State Division of Rehabilitation, discussing Student Transition and Youth Support.
Cases: in-home help needed for respite care; mental/behavioral health help for tween & teen with depression and other serious issues.

UCCCN March 2017 Learning Session Summary (PDF Document 131 KB)
Annual Learning Session: The topic was “Collaborating on Care Coordination.” Representatives from SelectHealth, Healthy U, Health Choice, Molina and Primary Specialty Services made up the panels.

UCCCN April 2017 Resources of the Month (PDF Document 303 KB)
Presentations: Janet Wade, Family Support & Transition Services, Easter Seals-Goodwill NRM (Early Intervention Provo, Wiggly Worm Sensory Processing classes, Peer Connections-Discovery prgm) and Jaycee Voorhees, Harmony Music Therapy for CYSHCN.
Cases: Resources needed for a parent after a sexual assault; support needed for grandparents as parents. New resource: SelectHealth Respiratory services offers travel assistance if the family must fly/travel.

UCCCN May 2017 Resources of the Month (PDF Document 2.2 MB)
Presentation: Carol Anderson from Utah State Board of Education on Behavioral interventions and supports in schools.
Cases: 15-year-old girl from outside the US, diagnosed with deafness around age 3, cared for by her grandmother, need a diagnosis beyond deafness to get SSI and more options, some cultural issues; 7-year-old with Downs syndrome, mom wants to apply for SSI.

UCCCN June 2017 Resources of the Month (PDF Document 3.0 MB)
Presentation: Jaron Poulson, CFP on Special Needs Planning. Update on the Utah Developmental Assessment Clinics moving to Primary Children's Outpatient Services.
Cases: patient with a trach and G-tube, family moving to Fresno, need MediCal 2017 to be already in place, and a physician commitment; need an affordable caregiver and/or respite for family with autistic child.

UCCCN July 2017 Resources of the Month (PDF Document 3.0 MB)
Presentation: Paige Albrecht from UPC and Julia Pearce from UCAT on how Assistive Technology can help with Mental Healthcare Needs for Youth with Dual Diagnoses. Updates on University Developmental Assessment Center, Shriners Special Needs Car Seat Clinic, and the Medical Home Portal's survey of adult care providers for transitioning youth.
Cases: how parents can be clear on what durable medical and therapies their insurance covers to avoid frustration and paying out of pocket.

UCCCN August 2017 Resources of the Month (PDF Document 4.9 MB)
Presentation: Stephanie Roach, Utah Parent Center on Answers to Your IEP & 504 Questions.
Cases: child patient is typical, mother has complex medical needs, father is looking for childcare financial support; available telehealth services to help kids living out of state; single mom with three adopted special needs children, ages 16, 20, 21, in mobile home trailer, all with severe medical problems, needing SSI and equipment.

UCCCN September 2017 Resources of the Month (PDF Document 4.8 MB)
Presentation: Colin Kingsbury, CSHCN Bureau, UDOH, talking about the new Autism System Development Program.
Case: a 9 year old pleasuring herself in the classroom - the behavior is becoming an issue.

UCCCN October 2017 Resources of the Month (PDF Document 1.3 MB)
Presentation: the Utah Asthma Program: Brittany Guerra; the Utah Asthma Home Visiting Program: Tiffany Brinton; the Association for Utah Community Health: Starr Stratford; and UPIQ's Asthma Learning Collaborative: Gabi Baraghoshi. Discussion about asthma resources for Utah pediatric practices.
No cases.

UCCCN Nov 2017 Resources of the Month (PDF Document 76 KB)
Presentation: Claudia Fruin, MD on Increasing Lead Screening in Utah.
Cases: a single homeless mom about to have another baby, needs a new place to live in January; an uninsured infant, Medicaid application dragging on for 4 months, bureaucratic loops.

UCCCN Dec 2017 Resources of the Month (PDF Document 93 KB)
Tomoko Tsukamoto, MSN, RN and David Robles, LCSW, from Pediatric Specialty Services (PSS) Connector Program, Primary Children's Hospital.
Cases: an update on soon-to-be homeless mom with past abuse, must move out on Jan. 1, undocumented, has a 6 yr old w autism; several 30 year olds with no adult care doctor, their pediatricians will retire soon; a 14 yr old with traumatic brain injury, visual and cognitive impairment, Salt Lake area.

2016 Resources of the Month

Authors & Reviewers

Initial publication: February 2018;
Current Authors and Reviewers: